Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

oregonceliac

Recommended Posts

oregonceliac Newbie

Hey everyone, I'm a newly diagnosed celiac and have some social skills issues as well. While I've read other guides for how to order at restaurants, I was wondering if someone could write up specific questions to ask staff that I could use and memorize, as I'm not even sure what questions to be asking or how to phrase them the best (accurately, firmly, yet politely). Without some questions to ask, I tend to fumble my words and my needs don't get met or understood. I'd like to go out to a bar, for example, and I understand what ingredients are and aren't safe but am not sure what questions about cross contamination/shared kitchen use type stuff I should be asking. Would someone be willing to share the script they use for A.) going out to a new restaurant and B.) going to a bar? I would really appreciate the guidance. 

-G


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome to the forum.

As a newly diagnosed celiac, I strongly recommend NOT eating out under you are 1) feeling well and 2) have really mastered the gluten-free diet.  You can join family and friends and order a drink.  Just eat before you go and always pack a snack.  The exception to this is a 100% gluten free restaurant.  

That said, I find that these cards were handy when I traveled abroad.  I would seriously research various restaurants recommended by celiacs prior to my departure.  Otherwise, we hit the markets and had a picnic or ate in the hotel room.  

Open Original Shared Link

Here in  the US, I use sites like "Find Me Gluten Free" but we only select restaurants that are reviewed by a celiac and not some gluten-free dieter.  We prefer 100% dedicated gluten-free restaurants.  Some chains have received training to prevent cross contamination.  

The bottom line is all about risk.  I personally avoid eating out at all costs.  I just bring my food along in a cooler.  I have traveled twice out of the country since my diagnosis,  but I would say Europe is worth the risk!   Is it worth it to eat at a fast food restaurant? No.   My two glutenings from cross contamination made me sick for three months (antibodies kept rising long after my exposure).  I still do not know what actually was the source.  

Bars?  Make sure they run their glassware through the dishwasher (or ask for a to go cup) and never get lemon or other fruit.  The cutting board could be compromised.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,381
    • Most Online (within 30 mins)
      7,748

    Becky Coleman
    Newest Member
    Becky Coleman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.