Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is The "real Deal" With Oats?


frustratedneicey

Recommended Posts

frustratedneicey Apprentice

Hello everyone. I have a question about oats. When I was first dx with Celiac, my GI sent me to a dietician. The dietician told me that oats contain gluten, but only oats harvested in the U.S. What are your thoughts on this subject? Can they be safe? Is there a particular brand? And if not, can anyone suggest a good alternative hot cereal. With winter on its way, I am getting a hankering for some good, hot cereal for breakfast. I have tried Cream of Rice, but, I find it rather bland. I have tried to add some things to make it more exciting, but I miss my Quaker oatmeal packets.

Thanks! Denise


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Oats are not safe in the US because they are contaminated with wheat. Quaker might as well = wheat.

A small portion of celiacs even react to the protein in even pure oats called avenin.

If you do try oats make sure they are pure. Pure= grown by themselves, transported by themselves, in a facility by themselves....no chance for contamination. Keep in mind that even some celiacs do get the intestine damage even from pure oats.

I personally stay away from them.

RiceGuy Collaborator

I always liked the plain oats. Those flavored things didn't interest me. I like adding a bit of all-natural unsweetened apple sauce, or maybe a few raisins. Cinnamon is nice too. Mostly I like what margarine does for it though. Sometimes a pinch of salt too. I'm not into the sweet stuff, so I go very lightly on that.

Oats seem subject to more cross-contamination than other things like rice or corn. Apparently there are oats that have tested fairly gluten-free, but it also depends on your sensitivity. The level of gluten can also change as the machinery involved is cleaned and such. I haven't tried any oats yet, but I've been considering some organic ones. I just don't want to take any risks right now.

As for other cereals, there are a bunch. Here's some:

brown rice farina

millet grits

corn grits

quinoa flakes

amaranth

kasha (Roasted Buckwheat)

princessfuzzball Rookie
As for other cereals, there are a bunch. Here's some:

brown rice farina

millet grits

corn grits

quinoa flakes

amaranth

kasha (Roasted Buckwheat)

I have gotten sick from Quinoa... I always thought that it had gluten in it, maybe mine was just contaminated?

Guest Viola

I've contacted a company that guarentees their oats as free from contamination. They are going to send me a sample to see if I can tollerate them. Apparently most Celiacs can eat uncontaminated oats, but a few have a problem digesting them.

We will see what happens when they arrive :rolleyes:

nettiebeads Apprentice
I've contacted a company that guarentees their oats as free from contamination. They are going to send me a sample to see if I can tollerate them. Apparently most Celiacs can eat uncontaminated oats, but a few have a problem digesting them.

We will see what happens when they arrive :rolleyes:

Oooh, let me know! I miss my oats terribly. :( So filling and satisfying. Quinoa is a fair substitute, but not the same.

I have gotten sick from Quinoa... I always thought that it had gluten in it, maybe mine was just contaminated?

I haven't had any problems with quinoa. Maybe yours was contaminated. And completely off of the subject, is that an african grey?

Guest Viola

Nettiebeads .. it's a Canadian company that I contacted, but I see you are in the US, so I'll try and find you the company that does the same in the US. I just emailed them and asked a few questions and they said they would send a sample. Hopefully you can do the same. I'll go look for the web site for you and post it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Here you go ... the US ones are from Wyoming.

www.glutenfreeoats.com

Rusla Enthusiast

Whoops,

Shirley,

Let me know how it goes with those oats. My favorite cereal was always rolled oats and there are killer cookies I make with them. So, I will be really interested in them and where they can be bought.

Guest Viola

Rusla, the uncontaminated oats in Canada come from somewhere in Quebec, so it will be awhile before I get them. I sure hope that I don't have a problem with them as it will be nice to add something new to my diet, and you're right, they are so great in baking. But years ago I used to love them for breakfast in the winter time. But I'll come back and post after they arrive and I've tried them :P

Rusla Enthusiast

If they don't cause a problem I would so order them. Like you that was my favorite winter cereal.

darlindeb25 Collaborator

I dont know that I trust oats, no matter where they came from. Maybe some dont react to oats, but then maybe they are still doing the same damage anyways. I dont react to barley, but it still is doing damage. I personally feel that some of us react to all glutens, not just the wheat, rye, barley and oats. I cant have soy or corn either. I also grew up with a father that worked in elevators. I dont know about other countries, but here in America, grains are put in the same bins when brought into the elevators and they arent cleaned out before hand--maybe sweap, but that hardly constitutes "clean". Deb

Guest Viola

Kaiti .. where did you get the fact that even "pure" oats could cause intestinal damage? I was told that they could mimic the symptoms in some people without actually causing "Celiac intestinal damage"

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.