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tummietroubles

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tummietroubles Newbie
tummietroubles
Posted

I was diganosed with Celiac Disease about a year and a half ago. I have learned over the last year to be extremely careful with any and all foods. But recently my daughter bought me a gift set from Bath & Body Works "Cucumber & Melon" lotions ect. Beautiful and smelled even better. To make a long story short I began getting headaches that were getting worse each day. Then nausea, vomiting and severe head pain this went on all of October and through most of November. I had cat scan, MRI and xrays. I do have white matter on my brain which I believe is from the disease. I was so very careful and never even thought about the lotion I was using until one moring I noticed it says right on the label contains "wheat germ oil" I couldn't believe it. My headaches are gone. So please be aware. I could have saved myself so much pain and sickness. There are just soooo many things out there that we all need to be aware of.

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chaddwell Apprentice
chaddwell
Posted

I am new to this and didn't think much about other stuff besides the food aspect so thank you for this information. I found it helpful and I'm sure others will too!

darlindeb25 Collaborator
darlindeb25
Posted

Not all Bath & Body Works products contain wheat germ oil. I use their White Tea and Ginger, it has avacado oil and almond oil--it doesnt bother me at all. I also use their Sweet Pea. I had severe reactions to their Moonlight Path. Never use a product without reading the ingredients. Deb

Rachel--24 Collaborator
Rachel--24
Posted

I had a similar experience with Aubrey Organics lotion. It had wheat germ oil and I gradually got sicker and sicker over the 2 weeks I used it. It was miserable and I lost lots of weight. :(

  • 1 month later...
Silver-naki Rookie
Silver-naki
Posted

Thanks for the "tips" on these Products here folks! I had wondered often about some of these things myself, so this was quite insightful! Thanks much!!! :)

teebs in WV Apprentice
teebs in WV
Posted

I have found that most of the lotions from Bath & Body Works contain oats, so I avoid them all. I do use their handsoap, body spray, and some body washes (gels only - every cream body wash that I have checked out has oats).

Ursa Major Collaborator
Ursa Major
Posted

I found out that when I weeded out all products with wheat germ oil my scalp stopped itching (the shampoo had it), and my eyes wouldn't burn any more (my hand soap had it, and I'd touch my eyes).

I am part of a German Celiac forum (I rarely go there now), and they drive me nuts. Somebody was saying they're so careful with their food, and is not getting better. When I suggested getting rid of skin and hair products with wheat germ oil, I just about got tarred and feathered! They seriously claim that there is NO gluten in wheat germ oil or wheat starch. And anybody who doesn't get better by following their codex alimentarius (20ppm gluten allowed in food, and they're very proud of that, since Finland allows 200ppm) must have something else, they aren't celiacs. It makes me so mad, that I just can't post there any more!

They were also complaining that the self-test for gluten intolerance costs 12 Euro (less than $20.00 US), and thought that people wanted to rip them off because the government health insurance wouldn't cover it! I checked, and that same test costs $99.00 in the US (more in Canada).

And so they complain about things we would consider a blessing, and lead people astray by claiming that the 20ppm is very reasonable, since it isn't possible to be 100% gluten free, anyway, and that wheat germ and wheat starch are fine, because they don't contain gluten.

So, to not start fights, and to not be treated like crap when I don't agree with them, I am staying away now for the most part.

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    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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