Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac ? And Gluten Intolerance


Crunches

Recommended Posts

Crunches Newbie

I'm so frustrated. Three months ago, I had an allergy test via blood and was told I'm allergic to almost everything: ie- beef, pork, shell fish, salmon, chicken, eggs, wheat, corn, banana, potatoes, yucca, beets, maple tree, hazel, peanuts, mold, dairy, soy, grass (types I can't remember) mixed feathers, ( I figured, b'cuz I can't breath around down products), dog, cat, melons, tomatoes - and the list goes on. I always complained since I was young about my body (painful, stomach pains), feels like I'm doing extreme exercise or have been beaten; and some times have seizures, just awful. I tried staying away from everything for two weeks, my blood pressure when normal and I lost 20 pounds. But I can't keep up with the meals because my family don't believe this is actually a problem, and how have I been living for the past 50+ years with such a problem. So I still have to shop for the household. But I have been struggling with the pain for years. I need help, because I cannot live without bread!!!! I keep falling off by eating bread (even gluten free - I have pain and rash). At least, bread is filling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darren Apprentice

The only way to truly know if you are celiac is to ask your doctor for a blood panel and if it's positive then a biopsy. I suggest you ask for the blood panel to help you determine celiac or not.  

ravenwoodglass Mentor

Welcome to the board. I agree you should be tested for celiac. Make sure you don't stop eating gluten until all celiac related testing is finished. I also seemed to be allergic to everything before I was diagnosed. I had skin prick testing for 99 substances and the only thing I didn't react to was beech trees!  My very savvy allergist said after I was diagnosed that was a big indication to him that I was likely celiac. He then referred me back to my GI doctor who confirmed his suspicions.

Family can be a bit hesitant to believe our diagnosis. I know my family was sceptical but as I recovered they became more suportive and even ended up getting the advised testing for first degree relatives.

I hope you can get some clear answers soon and can begin recovering.

One last thought you mentioned a rash. Celiac can produce a rash called dermatitis herpeformis (DH). A diagnosis of DH is a diagnosis of celiac. You may want to see a celiac savvy dermatologist. Do check out the DH section of the board for more info on that condition.

Ennis-TX Grand Master

You have to keep eating gluten to be tested, but only a half a slice of bread or a cracker a day. I do suggest going to you doctor and requesting a FULL celiac panel and getting the blood test done. They will follow up with a endoscope and biopsy.

On a side note Celiac is a autoimmune disease, it can lead to other issues with your body, including other immune diseases, thyroid issues, food intolerance. Now due to the damaged intestines most of us with it are prone to random food allergies and intolerance that can go away with time as we heal. We normally have to stay on a strict gluten-free diet once diagnosed and each of use being different have to find a diet that works for us. in my case it is Allergies:Corn, Olives ,Sesame, Peanuts, Whey Sensitivities/Intolerances: Dairy, Soy, Yeast ,Enzyme issues with digesting Meats, and Egg Yolks, Low Tolerance for sugars and carbs (Bloating issues) So I built a diet around nuts, seeds, veggies, small amounts of meats and egg whites, along with vegan protein powders.   I did have a few other issues that have one away over the years, like my allergy to beets and in the fact I can eat salmon, crab, swai, and lean meats cooked til they fall apart in small amounts.   

I suggest talking to a dietician about you diet and setting something up once you get your testing done. I do regardless suggest dropping all processed, foods, condiments, etc. and going to a WHOLE foods only diet of fresh veggies, meats, fruit, sweet potatoes and perhaps rice to go easy on your system for a bit. You might find your reacting something odd in your diet you did not know about that is in processed foods. Try a simple thick and hearty stews of just fresh meats and veggies for a awhile and see how you feel. A elimination diet t for a few weeks might help narrow down your issues also.

cyclinglady Grand Master

Learn more about celiac disease testing:

Open Original Shared Link

 

emma6 Enthusiast

wow thats a lot of allergies!  do you actually have an allergic reaction to all those things?

was it an IgE allergy test? i believe the blood test more commonly has false positives than the skin scratch test. did your allergist offer you any kind of allergen immunotherapy .

if you had the IgA/IgG food intolerance testing, its not scientifically accurate, the positive results just indicate food you have been exposed too which are wrongly interpreted as meaning allergies. so i wouldn't make any significant diet chances based those results.

Crunches Newbie

I'll like to thank everyone for each advise. At first, I felt like I probably had something else going on. Because I thought that you can't have celiac if you're allergic to food other than gluten. I do have an appointment with my doctor next week and we'll go from there with other test.  And Emma6, unfortunately, yes. And I didn't mention everything. I guess that's why my family is in awe. It seem unreal.Thank you for making me feel real!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.