Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy

Theri

Recommended Posts

Theri Apprentice
Theri
Posted

Recently given ttg iga test. The report came back 10H. Not sure why the H. I see 10 is week positive. Also they would like to check with a colonoscopy. Really confused, because I keep reading an endoscopy is the way to go. Would someone be able to clear up one or both of these issues. Thankyou!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TexasJen Collaborator
TexasJen
Posted
2 minutes ago, Theri said:

Recently given ttg iga test. The report came back 10H. Not sure why the H. I see 10 is week positive. Also they would like to check with a colonoscopy. Really confused, because I keep reading an endoscopy is the way to go. Would someone be able to clear up one or both of these issues. Thankyou!

 

The H just means "high" (as opposed to normal.  As for the endoscopy, I believe it is the preferred way to confirm the diagnosis. I don't think the large intestine has the same changes of celiac (i.e. there are no villi)

tessa25 Rising Star
tessa25
Posted

Endoscopy is used to confirm celiac. I'd go to a good gastroenterologist instead of a regular doctor. I looked at reviews online to pick out my gastroenterologist.

Theri Apprentice
Theri
Posted
  • Author
28 minutes ago, TexasJen said:

The H just means "high" (as opposed to normal.  As for the endoscopy, I believe it is the preferred way to confirm the diagnosis. I don't think the large intestine has the same changes of celiac (i.e. there are no villi)

Thankyou! Just frustrated because I know they should be taking 4-6 biopsies in upper intestines.

 

Theri Apprentice
Theri
Posted
  • Author
12 minutes ago, tessa25 said:

Endoscopy is used to confirm celiac. I'd go to a good gastroenterologist instead of a regular doctor. I looked at reviews online to pick out my gastroenterologist.

You are smart. I would do the same if I could.

 

squirmingitch Veteran
squirmingitch
Posted
17 hours ago, Theri said:

Recently given ttg iga test. The report came back 10H. Not sure why the H. I see 10 is week positive. Also they would like to check with a colonoscopy. Really confused, because I keep reading an endoscopy is the way to go. Would someone be able to clear up one or both of these issues. Thankyou!

 

As previously stated the H means it's a high reading aka above normal aka positive. Colonoscopy is NOT a way to dx celiac or even to check for it. Endoscopy taking 4-6 biopsies, preferably minimum of 6 is the gold standard for dx when combined with positive blood which you have. A colonoscopy will tell you nothing about celiac. Find a celiac savvy GI specialist.

AND......

Imperative!!!!!

Do NOT STOP eating gluten until after the endoscopy or you will get a false negative. You don't need to eat a ton of gluten every day but you do need to eat some every day.  1 slice of gluten bread each day should do it.

Theri Apprentice
Theri
Posted
  • Author
2 hours ago, squirmingitch said:

As previously stated the H means it's a high reading aka above normal aka positive. Colonoscopy is NOT a way to dx celiac or even to check for it. Endoscopy taking 4-6 biopsies, preferably minimum of 6 is the gold standard for dx when combined with positive blood which you have. A colonoscopy will tell you nothing about celiac. Find a celiac savvy GI specialist.

AND......

Imperative!!!!!

Do NOT STOP eating gluten until after the endoscopy or you will get a false negative. You don't need to eat a ton of gluten every day but you do need to eat some every day.  1 slice of gluten bread each day should do it.

Thankyou! You are right! I did quit eating gluten and lost 6 more pounds from withdrawals. That made it 94 lbs. Gained 3 back. The withdrawals are horrible. I think I will stay off gluten. Need to anyways because of ibs.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
35 minutes ago, Theri said:

Thankyou! You are right! I did quit eating gluten and lost 6 more pounds from withdrawals. That made it 94 lbs. Gained 3 back. The withdrawals are horrible. I think I will stay off gluten. Need to anyways because of ibs.

Nooooooooooooooooooooooooooooo, you misunderstand. You MUST eat gluten every day for a minimum of 2 weeks prior to an endoscopy!!!!!!!! If you stay gluten free then you will walk away with no diagnosis.

  • 2 weeks later...
Theri Apprentice
Theri
Posted
  • Author

They didn't tell me to go off gluten. I know you are right. Thankyou! I am going go rem s in hluten free. I can't have it anyways because of other health problems.

On 2/11/2017 at 4:08 PM, tessa25 said:

Endoscopy is used to confirm celiac. I'd go to a good gastroenterologist instead of a regular doctor. I looked at reviews online to pick out my gastroenterologist.

 

cyclinglady Grand Master
cyclinglady
Posted
On 2/12/2017 at 8:41 AM, Theri said:

Thankyou! You are right! I did quit eating gluten and lost 6 more pounds from withdrawals. That made it 94 lbs. Gained 3 back. The withdrawals are horrible. I think I will stay off gluten. Need to anyways because of ibs.

IBS is really code for "I be Stumped".  Chances are your IBS is really celiac disease, especially since you had a positive on the blood test.  Doctors are now being asked to screen patients for celiac disease if they have IBS.  

Open Original Shared Link

You could just go gluten free, but there are some issues that can arise.  Without a formal diagnosis, it is hard to get family members screened.  Celiac disease is genetic.  It also can leave you with doubt.  I know that I personally needed a diagnosis in order for me to stick to a gluten free diet.  Why?  My husband had been gluten free for 12 years.  I knew all the dietary restrictions.  

If your doctor is willing to diagnose you based on your blood test, then get it in writing.  But really an endoscopy is the way to go if you can afford it.  It can rule out other isssues (SIBO, H. PLylori, etc.) that you might also have in conjunction with celiac disease.  

I wish you well.  

Theri Apprentice
Theri
Posted
  • Author

Thankyou! I would do as you advised. Not covered with insurance right now. Hope it's not SIBO. I wish you well too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,832
    • Most Online (within 30 mins)
      7,748
    Jackie5577
    Newest Member
    Jackie5577
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.