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Glutened, It can Happen.

Ennis-TX

By Ennis-TX
in Coping with Celiac Disease

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Ennis-TX Grand Master
Ennis-TX
Posted

I been having gluten issues in my house, something minor but been present for the past 4 days. Seems even buying only foods labeled gluten free and supposedly gluten free is not always enough, and even the most cautious of can have stuff happen. I have yet to narrow down the exact source but it was something in my Pudding/Icecream/Shake base that I use for keeping weight on. After 3 days of elimination I know it is something in it and seems I keep throwing up and being fogged all night with rotating D&C, swollen lymph nodes, numbness, twitch. Not on the floor, or loss of movement so it can not be much. I am out of EZ Strips but I opened up a Nima I got and tested my batch to come back "Low Gluten" ....ok not as comforting as knowing the range like a EZ-Strip would let on but I know it means something is there. SO I threw it all out and made a new batch, but I forgot to clean the immersion blender head aside from rinsing and I forgot to run the spatula in the dishwasher, So either this contaminated my new batch (which also came back "Low Gluten" or my greatest fear is one of my ingredients is contaminated. I think the beets in my last batch which I bought from some off brand prepacked and sliced were the ones that did it. But this batch only has Silk Cashew Milk, Almonds, Nutiva Coconut Flour, So Delicious Coconut yogurt, Xclear Xylitol, NuNaturals Pure Stevia, Chia Company Chia Seeds, Pomona Pectin, Eden Agar Agar, and a tiny bit of LorAnn oils Vanilla Icecream Syrup, LorAnn Oils Honey Extract, Big Tree Coconut Sugar.

I spent all of yesterday scrubbing my kitchen with bleach, I mean everything handles, knobs, racks, buttons, walls, counters, ridges of counters and inside the fridge, all my containers I had touched, the spice bottles, oven, I even threw the dish drying rack inside the dishwasher and power scrubbed my sinks.

Bit about my pudding batches and the trials of finding the gluten.

First two days my pudding did not bother me after making it. day 3 I added the beets to it, and I rotated in strawberries into my diet, I also got new head of cabbage, bags of fresh red and green leaf lettuce, opened a new bag of beanitos, and a new block of Daiya Smoked Gouda Dairy Free Cheese.     My first thoughts after getting sick that night was the strawberries, it was the first time in 7 months I could get fresh ones and maybe I had a intolerance or they were contaminated (the fruit section is near the bakery). So Next day no strawberries and vomiting and sick again that night, and I did not have the 2 beanitos a day I crush over my salad or the cheese in it  so, maybe it was the salad and cabbage, I threw them out. Next day sick AGAIN. OK NOW, I checked and was out of EZ Strips, and got out the Nima thingy and looked up out to use it. put a bit of my pudding in and....."Low Gluten" WELL THERE YOU GO. Threw it all in the trash then then next morning crazy cleaning and new pudding batch (Forgetting to clean the blender head and take apart and dish wash the spatula also only rinsing them).....Well this time it tested low gluten but When I eat it I do not feel sick/vomit, just a tad tired and feel like sitting around all evening odd twitch and swollen lymph nodes. I figure the so called low gluten range it test is on the lower limits (Nima Claims low gluten is 15-15,000ppm). Wish I had a more exact answer, and I wish I had the money to test ALL my ingredients to be sure, but I will figure out next batch in a week. Unfortunately I go so much money in this current batch I can not afford to throw it out or I will starve (I make this in 4L batches loaded with expensive almonds, yogurt, etc. and eat it all week between meals in smoothies, or turn it into ice cream in the machine), >.< Might see about getting my numbers checked again end of this week, it is a tolerable gluten challenge lol. Joking aside and trying to cheer myself up, seems even the best most seasoned of us gluten-free warroiors can mess up, guess we are only human.

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tessa25 Rising Star
tessa25
Posted

To save money on test vials you can put 4  ingredients in the Nima at a time. Then at least you've narrowed it down to 4.

 

Jmg Mentor
Jmg
Posted
1 hour ago, Ennis_TX said:

Joking aside and trying to cheer myself up, seems even the best most seasoned of us gluten-free warroiors can mess up, guess we are only human

You deserve to feel well given the efforts you've put in to sorting your kitchen and diet. I hope you find the source and get better soon!

cyclinglady Grand Master
cyclinglady
Posted

I hope you feel better soon!  

squirmingitch Veteran
squirmingitch
Posted

UGH! I'm so sorry this has happened. I hope you recover quickly and find the source of the trouble.

Ennis-TX Grand Master
Ennis-TX
Posted
  • Author

This brings up a very intriguing question about my body. If I walk through a bakery sometimes at a grocery store, I get the whole fog, swollen lymph, and anger. Now when I consumed that low gluten first pudding batch, I got lymph, vomiting, numbness, Diarrhea in the evening, constipation hard stools the next day,  and slight fog but no anger panic, and just a slight twitch instead of the full on the floor motor loss I got last time I got glutened eating out. Now the second batch of pudding also tested low gluten (I accidentally forgot to soap scrub and dishwasher the immersion blender and spatula only rinsing under hot water)   But I do not vomit when I eat it, the numbness is minimal, fog is almost non existent, but I have a twitch and the swollen lymph nodes D is absent but I am dealing with hard stools and constipation. Nima says the low gluten can mean 5-15,000 ppm, all my ingredients are labeled gluten-free so I assume it was the CC, And seems eating 2 cups of the pudding is not enough to trigger major symptoms, so I am going to say it must be on the lower end scale of that range.    I am finding this self study of the effects of gluten to very interesting when I am giving different forms, and doses. Fearful what this is going to do to my body for a week of very low doses but hopefully I do not set myself back too far.

20 hours ago, squirmingitch said:

UGH! I'm so sorry this has happened. I hope you recover quickly and find the source of the trouble.

Pretty sure it was the presliced and packaged beets, I was fine before adding them to the pudding batch on day 2. they were not labeled gluten-free and were a off brand generic company that also makes plenty of sauced/flavored/seasoned canned goods. (Hoping it was these god forbid it was something else) >.> I used a gluten-free cotton candy extract in the first batch but it was a off white yellow color so I used beets to make it pink and add sweetness >.< Made great pudding/ice cream cotton candy flavor but perfect in smoothies.....wish I did not have to throw it out.

Jmg Mentor
Jmg
Posted
1 hour ago, Ennis_TX said:

I used beets to make it pink and add sweetness >.< Made great pudding/ice cream cotton candy flavor but perfect in smoothies.....wish I did not have to throw it out.

Next time maybe use fresh beets? They just need cooking for a little while to soften them up :)

 

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  • 3 weeks later...
Posterboy Mentor
Posterboy
Posted

enniss_tx,

This is a follow up post.

I just responded to another post about how taking betainehcl can help stomach function and when reading over the research (though I knew this) but couldn't quite pen it down at the time that the Beets you used can explain the issues you where having when you added beets.

see this article about recidification of your stomach where the drug companies studied to help medicine's work better and presumably digestion too would benefit using the same protocol they laid out.

Open Original Shared Link

I know from another post you said you were taking PPI's for gastric support.

By introducing the beets quoting " Betaine is a naturally occurring substance that can be found in a variety of foods including beets, spinach, and whole wheat foods."

On 2/14/2017 at 7:19 AM, Ennis_TX said:

day 3 I added the beets to it,

and then "all hell broke loose" my words.  They counter acted the PPI's causing your stomach to spike (but not enough to get truly to a high level enough) to digest your food.

So the splatter from too little acid make you sicker.

see this link where I explain this in more detail.

this best explains what happened I think at least to me.  When taking PPI's any acid (natural or otherwise) when it is too low can cause the same symptom's that today are/is commonly mistakenly confused for too much stomach acid.

Open Original Shared Link

It is called attachment rate and why it almost impossible for people to stop PPI's at least without taking BetaineHCL for gastric support as you when yourself off of them slowly.

Again I hope this is helpful.

posterboy,

Ennis-TX Grand Master
Ennis-TX
Posted
  • Author

No the canned beets were contaminated. it was off brand from the local chain down here. They do a bunch of sauced veggie lines also, and I assume that is where it came from but I did have another can and test it by itself to confirm.

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