Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

eye vitamins


Beecee

Recommended Posts

Beecee Newbie

Does anyone know a certified gluten-free version of eye vitamins for macular degeneration? I would like to use Preservision Areds 2 by Bausch and Lomb but it is not certified gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)

I looked up the website and called.  Baush and Lomb said that their products do not contain gluten, but they do not test the finished product or verify raw materials for gluten contamination.   This company has strict manufacturing processes (hubby once worked in pharmaceutical manufacturing).  I would take them.  Studies show  this supplement may help with MD.  My FIL is currently dealing with cataracts, MD, and glaucoma.  I bet you are on top of your care.  He,  unfortunately,  has prided himself on not going to the doctor.  Big mistake, but at 82, it can be hard to change.  

However, this happened to me on an antibiotic recently.    It did not contain gluten, but was not tested.  I did a risk analysis and determined that I needed the antibiotic (dental infection).  I did call the manufacturer and got the same response as your vitamin inquiry.   The odds were that I would not get glutened -- and I did not!  

It would be reassuring to see if anyone has taken this product, but I would say it is safe.  

I am sure you already know this, but please wear your sunglasser.  Research shows that UV rays may contribute to MD.  Who knows?  But my FIL never wore them.  

Edited by cyclinglady
Beecee Newbie
18 hours ago, cyclinglady said:

I looked up the website and called.  Baush and Lomb said that their products do not contain gluten, but they do not test the finished product or verify raw materials for gluten contamination.   This company has strict manufacturing processes (hubby once worked in pharmaceutical manufacturing).  I would take them.  Studies show  this supplement may help with MD.  My FIL is currently dealing with cataracts, MD, and glaucoma.  I bet you are on top of your care.  He,  unfortunately,  has prided himself on not going to the doctor.  Big mistake, but at 82, it can be hard to change.  

However, this happened to me on an antibiotic recently.    It did not contain gluten, but was not tested.  I did a risk analysis and determined that I needed the antibiotic (dental infection).  I did call the manufacturer and got the same response as your vitamin inquiry.   The odds were that I would not get glutened -- and I did not!  

It would be reassuring to see if anyone has taken this product, but I would say it is safe.  

I am sure you already know this, but please wear your sunglasser.  Research shows that UV rays may contribute to MD.  Who knows?  But my FIL never wore them.  

Thank you very much. This has been helpful. I will try the vitamins.

Linda1948 Newbie

I tried them and had a gluten reaction. I talked to their represenative and she said there are no gluten ingredients but their scientists said the raw materials do contain gluten. They still thought they were safe for gluten intolerances. I am a diagnosed Celiac and couldn't take them.  I haven't been able to find a replacement for them.

cyclinglady Grand Master
40 minutes ago, Linda1948 said:

I tried them and had a gluten reaction. I talked to their represenative and she said there are no gluten ingredients but their scientists said the raw materials do contain gluten. They still thought they were safe for gluten intolerances. I am a diagnosed Celiac and couldn't take them.  I haven't been able to find a replacement for them.

If this is the case, you should report them!  

This product is a supplement and must follow FDA food labeling rules and regulations (unlike cosmetic products).  The ingredient list does contain a highly processed Vitamin E which can be derived from wheat but most often in the US is derived from soy.    Read more about the safety of this by the gluten-free Dietician who also runs the Gluten Free WatchDog (kind of like the Consumer Reports for gluten).  

http://www.glutenfreedietitian.com/vitamin-e-from-wheat-germ-oil/

To be extra safe (and piece of mind) , you could use certified gluten free supplements that contain comparable ingredients (or food sources) of the Baush and Lomb product.  Here is the list taken from a Macular Degneration organization:

http://www.brightfocus.org/macular/news/are-you-getting-what-you-need-your-areds-supplements

500 mg vitamin C

400 IU vitamin E

10 mg lutein

2 mg zeaxanthin

80 mg zinc

2 mg copper

Just a thought (I am not a doctor or dietician).  

I hope this helps!  

cyclinglady Grand Master

@Linda1948, if you were glutened by this product you should report the company.  I was serious!  We need to advocate for the safety of our foods, supplements and prescription drugs.  

It is nerve-wracking to take a medication and really not know if the item contains gluten or not.  I personally experienced this with a recent course of antibiotics.  I had to go to six pharmacies to find a gluten free version available in stock.  I could not wait a few days for it to be ordered.  I had an infection!  I did my due diligence and found a list of antibiotics on the gluten free drug list that also reminds you to call and verify because formulations can change.  

https://celiac.org/live-gluten-free/glutenfreediet/gluten-medication/

The manufacturer was sort of helpful, but again no 100% guarantees.  Ugh!  There was a bill in Congress concerning prescription drugs, but it did not pass.  

We need to call, write and complain to our representatives.

  I know that common sense should guide us, but when you are sick, who has common sense?  Not me!!!!!!

Gemini Experienced
16 hours ago, Linda1948 said:

I tried them and had a gluten reaction. I talked to their represenative and she said there are no gluten ingredients but their scientists said the raw materials do contain gluten. They still thought they were safe for gluten intolerances. I am a diagnosed Celiac and couldn't take them.  I haven't been able to find a replacement for them.

Most of the time when someone says one thing and another company rep says another, it's just inexperience and lack of education on Celiac Disease.  No company is going to tell someone that their product contains no gluten ingredients and then have someone else say the raw materials do.  I have been gluten-free for 12 years and am extremely sensitive to tiny amounts of gluten and after 12 years of taking various supplements due to severe deficiencies, I have never, ever been glutened by a med or a vitamin.

After checking the ingredients list for this, it lists tocopherols, which some people think are unsafe for Celiac's.  Basically, it's Vitamin E.  Read the following link regarding the safety of this product for us.......

http://www.glutenfreedietitian.com/vitamin-e-from-wheat-germ-oil/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 6 months later...
Evelyn Fullerton Newbie

I have been taking Areds 2 since the beginning of 2017 and I was getting nauseous all the time the doctor thought it was my celebrex so I stop taking it didn't seem to help much. Then I ran out of Areds 2 didn't take them for about a week just started them again and guess what the nausea is back . Going to try again tomorrow if I get the same results I'ii call the eye doctor and see what he suggest

cyclinglady Grand Master
4 hours ago, Evelyn Fullerton said:

I have been taking Areds 2 since the beginning of 2017 and I was getting nauseous all the time the doctor thought it was my celebrex so I stop taking it didn't seem to help much. Then I ran out of Areds 2 didn't take them for about a week just started them again and guess what the nausea is back . Going to try again tomorrow if I get the same results I'ii call the eye doctor and see what he suggest

Hi Evelyn,

My FIL has MD, dry.  His doctor suggested an AREDS2 supplement.  He is debating the value.  He does not have celiac disease.  According the original study, about 25% of the participants did see a benefit over a course of five years.  

https://nei.nih.gov/areds2/PatientFAQ

Consider going without the supplement for a while  and focus on increasing leafy greens into your diet daily until you and your doctor can find a safe substitute.  This product does not necessarily  not contain gluten, but it seems to be making you sick.  

Consider going back to your GI to determine if your celiac disease is actually flaring up.  You should be tested annually (standard level of care for a celiac).  

Take care!  

  • 3 years later...
Carolineshasta Newbie
On 3/7/2017 at 7:22 AM, Beecee said:

Does anyone know a certified gluten-free version of eye vitamins for macular degeneration? I would like to use Preservision Areds 2 by Bausch and Lomb but it is not certified gluten free.

I could not take Preservision and others because of gluten even though it is not listed.  I take VitEYES without issue.  It has a gluten free symbol on the bottle. VitEYES Classic Advanced is AREDS 2 BASED FORMULA.   All the best!

  • 2 years later...
Susan Elizabeth Newbie
On 3/7/2017 at 10:22 AM, Beecee said:

Does anyone know a certified gluten-free version of eye vitamins for macular degeneration? I would like to use Preservision Areds 2 by Bausch and Lomb but it is not certified gluten free.

January 17, 2024

I called Bausch & Lomb and the representative told me no gluten in the ingredient list HOWEVER they are manufactured in a factory where gluten is present. For a Celiac, not a risk worth taking in my opinion. I rely upon New Chapter vitamins as they are certified gluten free and are easily absorbed due to being food based. Be well. 

Scott Adams Grand Master

It's highly doubtful that eye drops made by Bausch & Lomb would be contaminated by gluten. For many reasons, including the recent 4 deaths from sepsis, 14 cases of vision loss and more than 80 infections were reported as of May caused by contaminated eye drops, it's very important that nothing--not even bacteria--contaminate eye drops during the manufacturing process. 

Susan Elizabeth Newbie
47 minutes ago, Scott Adams said:

It's highly doubtful that eye drops made by Bausch & Lomb would be contaminated by gluten. For many reasons, including the recent 4 deaths from sepsis, 14 cases of vision loss and more than 80 infections were reported as of May caused by contaminated eye drops, it's very important that nothing--not even bacteria--contaminate eye drops during the manufacturing process. 

 

I am speaking of eye vitamins in pill form, not eye drops. 

Scott Adams Grand Master

I still doubt there would be gluten contamination in vitamins, but if you can find a similar version of eye vitamins that have "gluten-free" on the label, then it's best to go with that option.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,483
    • Most Online (within 30 mins)
      7,748

    mynameisself
    Newest Member
    mynameisself
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K.   Vitamin A toxicity does not cause Celiac disease.  Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation.  Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable.  Excessive intake of foods containing thiaminases can precipitate low thiamine.   Low thiamine can also be a result of bacterial or yeast infections.  A high carbohydrate diet encourages Candida and bacterial infections.  High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria.  Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome.  Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria.  My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex.  Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation.   Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing?  What is your Vitamin D level?  Vitamin D helps calm the immune system.  
    • cristiana
      Update - my Active B12 is 36.  Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal.   I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections.  That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type.  Can anyone help?
    • cristiana
      Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test?  I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests.  My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is  my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him.  Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      This is a very complex and difficult situation, and your intuition about a potential link to celiac disease is medically plausible. While Guillain-Barré Syndrome (GBS) is often triggered by infections, it can also be precipitated by other immune system events, including a significant gluten exposure in a person with celiac disease. The timeline you describe—neurological symptoms appearing after the GI symptoms subsided—is classic for post-infectious (or in this case, post-exposure) GBS. Furthermore, there is a recognized, though rare, neurological condition directly linked to celiac disease called Gluten Ataxia, which affects coordination and can cause gait problems. However, the rapid onset of paralysis and cranial nerve involvement you experienced is more characteristic of GBS than typical gluten ataxia. It's also important to know that a negative EMG early in the course of GBS does not rule it out, and "Functional Neurological Disorder" (FND) is not purely psychiatric; it is a real and complex disorder where there is a problem with the functioning of the nervous system, not its structure, and it can be triggered by physical illness or stress. The most critical step is to continue working closely with your neurologists. You should absolutely bring up your celiac history and your theory, as it is a relevant piece of the diagnostic puzzle. They may consider specific antibody tests related to gluten neuropathy or ataxia to help differentiate the cause. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.