Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Women, Have U Used Depo Provera Before Symptoms Started?


jen3899

Recommended Posts

jen3899 Apprentice

I was thinking back and realized that I started getting Depo shots just a month or so before I started getting sick. I never put the two together but now (almost 5 years later) I just stopped getting depo shots because I am wondering if the Depo could have caused the onset of the celiac disease symptoms. I know that Depo has caused many women BIG problems. Open Original Shared Link This link is about Depo side effects, if you have time to read it, it is kind of scary. Anyways, I am wondering if anyone else started taking Depo before getting sick with celiac disease? I had NO symptoms of any kind before starting the Depo, and after being gluten free for like 4 years now, I am still suffering with Diahreea, stomach pain, weight loss, fatigue. I can not work and I hardly ever leave the house because my stomach is such and issue, plus I have panic attacks due to my symptoms. Please, If you started depo before you got sick, even if you dont think the two are connected, respond to this post!

THANK YOU!

-Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bonnie Explorer

Hi Jennifer,

Now that is the strangest thing. I have been thinking a lot over the last few weeks about what could have been my trigger. I have had stomach/digestive problems my whole life but things really came to a head last year.

I got a Depo injection last year in August for the first time in my life. I had terrible problems from it - bled non-stop for almost 4 months. Had another one anyway (I know, I know) in November and vowed never to go near it again. Anyway it was around October/November last year that I got really sick and started my long journey of visits to doctors, dietitians, etc. etc. etc.

Hmmm .... interesting! Anyone else?

Yvonne

DonnaD Apprentice
Hi Jennifer,

Now that is the strangest thing. I have been thinking a lot over the last few weeks about what could have been my trigger. I have had stomach/digestive problems my whole life but things really came to a head last year.

I got a Depo injection last year in August for the first time in my life. I had terrible problems from it - bled non-stop for almost 4 months. Had another one anyway (I know, I know) in November and vowed never to go near it again. Anyway it was around October/November last year that I got really sick and started my long journey of visits to doctors, dietitians, etc. etc. etc.

Hmmm .... interesting! Anyone else?

Yvonne

Hi Jennifer, I don't post much as I'm new and still on a steep learning curve :) But I just had to reply to this.

Yes, I did have Depo, I just phoned my GP to check and certainly had it from Dec 94 to at least Dec 95 and possibly before 1989 and after '95 I cannot be sure as it is so long ago and the receptionist was busy.

I was slim and fit once...... :rolleyes:

I'v got a TERRIBLE memory and a very long, fat medical history full of odd stuff. IBS, fibro, chronic pain, weight gain, bladder issues, odd rashes, teeth grinding, freezing feet and hands etc etc etc, something new and NOT SOoooo exciting each year, a steady decline.

I'v Seen 100s of doctors, specialists, had surgery, physio, drugs (and lots of them) I only started to link everything when I found this site looking for receipes for my D just dx by biopsy in Nov.

I have so many symptoms which could be auto-immune, coeliac, gluten intolerance, experiments by aliens (LOL) :P who knows?

I am going to look into Depo a bit further, especially the Detox side and bone loss issues. I'v sent off my Entolab samples today so may have at least some answers in 3 weeks. My GP has only just started to take me seriously after 25 years, after getting a 5 page medical report from the pain clinic.

Its so frustrating, I feel like I have bits of a jigsaw puzzle but didn't get the box, don't know how many bits I have, which way up they go, or what on earth the picture should be!

morrigan Newbie

I was on the Depo shot in the past and have just recently found out that I have celiac. I think there may be a direct correlation to birth control and the onset of celiac.

cgilsing Enthusiast

I have never been on Depo Provera, but I know for a fact that taking birth contol pills triggered the onset of a lot of my health problems. I was taking a tri-phasal pill and within a month a had an orange-sized cyst and endometriosis. I switched Doctors and was told that the tri-phasal pill was the worst thing I could be on and the fluxuating hormones had caused my problems. I wasn't diagnosed with celiac disease for quite some time after that, but that was roughly the same time that I started having bowel problems too. I then went on a hormone treatment called Lupron Depo to cure my endometriosis. (I don't know if it is related to Depo Provera) It is possible that Lupron Depo contributed to triggering the Celiac disease (I have heard that Celiac disease can be triggered by stress and that particular treatment is very stressful).....but it is a miracle drug.....as you can see from my latest ultrasound it saved my fertility!

PreOptMegs Explorer

I just went to the Doctor yesterday and she is going to put me on Provera... or a possible substitution for its generic form. Do both have gluten in them?

jen3899 Apprentice

Depo Provera does not have gluten as far as I know; it just messes with your hormones. I think you should do some real research about it before deciding if you want to go on it, I was on it four years, and after two I started asking my doc every visit if it is safe to be on this long and they all said oh yeah no problem at all, well now the company has said to not be on it more then 2 years because of the bone loss it causes and who knows what else it causes. Docs don’t know crap about these drugs, they just know they make money giving them out, you tell them you have Celiac and they do not think about how drugs will affect your health differently. I don’t know, but if I were you I would just not mess around with ANY birth control but condoms, especially Depo because once they give you that shot you are stuck for at least 3 months no mater how you react to it. My last shot was on Aug 1st, I have not started my period again but in the last month my stomach has been completely different, better, but I still am not feeling good enough to get a job, and I think a lot of it has to do with the Depo! Just research it first, PLEASE!

-Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jen3899 Apprentice

anyone else?

DonnaD Apprentice
anyone else?

I have a dowagers hump, and a lot of back /neck pain and all my problems started after the jabs. I am going to get bone density scans done and see if I have a problem. My daughter who is coeliac was born after I started the jabs. I'm waiting for my Entrolab results.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    2. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    3. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety

    4. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      2

      Manitol and mri

    5. - Scott Adams replied to bombier's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      KATZ CINNAMON DONUTS


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,789
    • Most Online (within 30 mins)
      7,748

    klholt
    Newest Member
    klholt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
    • Scott Adams
      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
    • Scott Adams
      I'm so sorry to hear you're feeling so unwell, and I hope you recover quickly. While your personal experience of getting sick is absolutely valid, there are a few key inaccuracies in the information you've shared that are important to clarify for anyone else reading. The central misunderstanding is about oats and gliadin. Oats do not contain gliadin; gliadin is a specific protein found exclusively in wheat. The protein in oats is called avenin, which is similar in structure but is a completely different compound. For the vast majority of people with celiac disease or gluten sensitivity, pure, uncontaminated oats are safe. The reason "gluten-free" oats are necessary is because regular oats are frequently cross-contaminated with wheat, barley, or rye during growing and processing. Certified gluten-free oats are tested to ensure they are free from this cross-contamination. It's possible you may have a separate and less common sensitivity to avenin in oats themselves, or the illness could have been caused by another ingredient or even an unrelated virus. Given your expertise and severe reaction, it would be a good idea to discuss this with a doctor to pinpoint the exact cause. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.