Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

tanya  crape

Recommended Posts

tanya  crape Newbie

dont seem to be getting  any  working treatment creams steroids antibiotic nothing seems to be working please help

17619805_1612370868776323_769524839_n.webp

17619662_1612374872109256_2078366530_n.webp

17619584_1612367902109953_664404464_n.webp

17619540_1612371012109642_1120195787_n.webp

17619085_1612375168775893_735304483_n.webp

17619123_1612371062109637_1609452489_n.webp

17619416_1612371018776308_481908965_n.webp

17619060_1612374858775924_1596595210_n.webp

17619123_1612371062109637_1609452489_n.webp

17619085_1612375168775893_735304483_n.webp

17579933_1612375068775903_905520550_n.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome Tanya!  

I know you must be suffering so!  Do you know if this is a celiac rash?  I do not have DH, but many of our members do.  Here is more information and possible treatment:

Open Original Shared Link

Open Original Shared Link

 

squirmingitch Veteran

Tanya you are clearly suffering but you told us nothing really. Have you been dx'd with celiac disease? Or have you been dx'd with dermatitis herpetiformis? If so, are you eating gluten free? For how long have you been eating gluten free?

  • 2 weeks later...
knitty kitty Grand Master

Does the rash get worse when exposed to sunlight?  It looks like it is on your neck, hands, forearms, shins and feet.  Does the rash occur anywhere else? Or just to areas exposed to sunshine?

I had Pellagra, a vitamin deficiency disease caused by a lack of Niacin, B3.  I had a similar rash on exposed areas that worsened when I was outside in the sun.  The areas that had the rash also became pigmented darker, especially my arms and hands.  This is called the gauntlet of pellagra.  The rash around the neck is called Casal's necklace.  I was tried lotions, ointment, and creams but nothing helped.  If it is Pellagra,  (check with your doctor first) you'll need to take supplementary Niacin (nicotinamide), tryptophan, and a good B Complex vitamin.  

Other symptoms of Pellagra (the four D's of Pellagra) dermatitis, diarrhea, dementia and death.  Many doctors are not familiar with Pellagra and don't recognize the symptoms. Often Pellagra is associated with alcoholism because that causes malabsorption similar to Celiac Disease.  

I began to experience relief from the itching within a few days of starting niacin supplements.

Hope this helps.

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748

    Anna Costa
    Newest Member
    Anna Costa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.