Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I get glutened


Fbmb

Recommended Posts

Fbmb Rising Star

I know some of you have probably seen that I have posted on here recently about my belly not being "great" at 5 months out. Well, last week things started to improve. I didn't eat anything processed (aside from some bread and crackers) and I also did my best to calm down (I have bad anxiety) and things seemed better. Yesterday we went out of town and we had Chik-fil-a, which I know has a great reputation and I have always thought it to be safe. I had grilled nuggets, fries, and chick-fil-a sauce. Then after dinner I snacked on chips (certified gluten free) on the drive home. I know, chips are bad for me. I know.

this morning when I got up I had some D at the end of my normal bm. I don't feel bad. I was surprised. What I didn't say is yesterday, before we went out of town, I had a major anxiety issue and was kind of a ball of nerves for about 2 - 3 hours. So maybe that's what caused the D. I never know if what's there is from lunch, dinner, etc.

now I'm worried that chick-fil-a made me sick. I don't know that but I don't usually get actual D now that I'm 5 months into my diet. And of course I'm sitting here feeling like I totally derailed everything and that my intestine is damaged, that I have set myself back, that my TTG is probably high again - all over this chick fil a dinner. 

Thoughts?

 

after reading some of the posts on here about being glutened I have to wonder if my issue was more from anxiety than gluten. Because I have been gluten-free for 5 months and I don't think I've eaten gluten. But from what you all say, a glutening sounds pretty miserable. I don't feel bad. No pain. I just had some loose stool. So maybe my anxiety got my digestion all hyped up and that's what caused it. It's just so hard to know if belly issues are from stress, a bug, gluten, etc. now that I have celiac I always assume it's gluten, but some of you have taught me otherwise.

Anyway, I'm still interested in hearing your thoughts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fbmb Rising Star

Also, while at chik-fil-a I told them that my food and my son's food needed to be handled carefully because of celiac and they were "on it". They changed gloves and took time to be sure that it was ok. 

Ennis-TX Grand Master

I might be concerned about the grill, but I am pretty sure they get grilled gluten-free freeze packed to be reheated on the local stores. DO not quote me on this I am not familiar with how they do it. MY concern would be the fries.....they fry breaded chicken they fry fries, do they have a gluten-free dedicated fryer? How do they fix them, are the cooked fries kept in bins right next to fried chicken where they can CC each other, with over reach and tongs?    On the menu, and allergen page they show both to be wheat free ingredient wise, but how they get handled would be the concern, also check what sauce you had a few have wheat. We all react differently you might have gotten glutened and gotten lucky you might not have. in all honestly I would not eat a place that specializes in breaded fried foods and get anything on the fried menu.    As for set back its not that bad if you do not do it again for a long while think of it like 5 steps forward 1 step back. Just jump back on the horse and be more careful.

I really do suggest avoiding most places eating out, chicken and fries are done really easy on ones own house anyway. Meal prep and tubs lol. Chicken can be grilled cut up and vacuum packed in the freezer to be reheated months later, just poke some holes in it and zap in the microwave. Another great thing about chicken is this can be done in a BBQ sauce for great meals. Many companies make gluten-free fries in the freezer and I have some great recipes for making your own seasoned fries, (use any seasoning you want from gluten-free chili, Cajun, jerk,  or my blends I have like nacho cheese, ranch, chili cheese, etc)    You will find weber makes gluten-free marinade and seasoning mixes if your in a hurry, and other companies like spicely organics of Flavor God have some insanely good ones.....I got to admit flavor god is over priced but those seasons are great for crushing cravings.

PS your a lucky guy I can not eat meats like birds or red meat, but I cook for others a lot and can tell you all kinds of ways to fix them.

Fbmb Rising Star
27 minutes ago, Ennis_TX said:

I might be concerned about the grill, but I am pretty sure they get grilled gluten-free freeze packed to be reheated on the local stores. DO not quote me on this I am not familiar with how they do it. MY concern would be the fries.....they fry breaded chicken they fry fries, do they have a gluten-free dedicated fryer? How do they fix them, are the cooked fries kept in bins right next to fried chicken where they can CC each other, with over reach and tongs?    On the menu, and allergen page they show both to be wheat free ingredient wise, but how they get handled would be the concern, also check what sauce you had a few have wheat. We all react differently you might have gotten glutened and gotten lucky you might not have. in all honestly I would not eat a place that specializes in breaded fried foods and get anything on the fried menu.    As for set back its not that bad if you do not do it again for a long while think of it like 5 steps forward 1 step back. Just jump back on the horse and be more careful.

I really do suggest avoiding most places eating out, chicken and fries are done really easy on ones own house anyway. Meal prep and tubs lol. Chicken can be grilled cut up and vacuum packed in the freezer to be reheated months later, just poke some holes in it and zap in the microwave. Another great thing about chicken is this can be done in a BBQ sauce for great meals. Many companies make gluten-free fries in the freezer and I have some great recipes for making your own seasoned fries, (use any seasoning you want from gluten-free chili, Cajun, jerk,  or my blends I have like nacho cheese, ranch, chili cheese, etc)    You will find weber makes gluten-free marinade and seasoning mixes if your in a hurry, and other companies like spicely organics of Flavor God have some insanely good ones.....I got to admit flavor god is over priced but those seasons are great for crushing cravings.

PS your a lucky guy I can not eat meats like birds or red meat, but I cook for others a lot and can tell you all kinds of ways to fix them.

THey actually have dedicated fryers at chick-fil-a, so typically the fries are the least of my worries. 

thank you for all the tips!

Fbmb Rising Star

Also, my little guy ate the same thing (must less quantity of course) and he is fine today. He had fries and a nugget. Big eater. Lol

cyclinglady Grand Master
21 minutes ago, Fbmb said:

Also, my little guy ate the same thing (must less quantity of course) and he is fine today. He had fries and a nugget. Big eater. Lol

There you have it.  Your little canary (mine is my hubby).  One of my big glutenings I had were traced to two items that he NEVER ate.  The second was while we were traveling and it could have been anything I was served and he did not order and he did not get sick.  We'll never really know  the glutening source, but the trip was worth it.  

It was most likely your nerves was the culprit.  

Fbmb Rising Star
7 minutes ago, cyclinglady said:

There you have it.  Your little canary (mine is my hubby).  One of my big glutenings I had were traced to two items that he NEVER ate.  The second was while we were traveling and it could have been anything I was served and he did not order and he did not get sick.  We'll never really know  the glutening source, but the trip was worth it.  

It was most likely your nerves was the culprit.  

I guess it's nice to have a celiac partner in the house. It's nice that your hubby is gluten free. Mine is too for the most part. But he does eat his poisonous bread (he doesn't have celiac) and uses a toaster that I prefer to keep locked away out of sight. It about sends me into a panic when I see that he's used it and I scrub my counters like crazy. Some days I wish he had celiac too. But of course I don't want him to have it. It's just nice to have a totally gluten-free house. 

I think it's my nerves too. Damn anxiety anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hubby has been gluten-free for over 16 years now.  I was diagnosed just some 4 years ago.  I was shocked when I got my diagnosis!  We make a great team.  

Fbmb Rising Star
2 minutes ago, cyclinglady said:

Hubby has been gluten-free for over 16 years now.  I was diagnosed just some 4 years ago.  I was shocked when I got my diagnosis!  We make a great team.  

I'm sure you do! And I'm sure it helped to have his guidance. I think squirmingitch's husband has celiac too. Mine has never been tested but he always complains about GI issues. As common as this is I wonder if he should get tested.

cyclinglady Grand Master

I know, what are the odds?  But hubby is not diagnosed formally.  He went Gluten Free per the poor advice of my allergist and his PCP.  They guessed right.  He got well.  But now he refuses to do a gluten challenge and I get that!  Besides, we like to eat and pay our bills!  He would become incapacitated for sure!  It is one reason I personally push members for testing before trying the diet.  A firm diagnosis has many benefits, but feeling good trumps everything!  So, I get why some members go gluten free.  The hard thing is staying on the diet long enough to get results.  Took hubby a year to feel well and he cheated a lot that first year.  There is no doubt in our minds that he has a gluten issue.  

 

GFinDC Veteran

You can test yourself without a doctor.  You can buy the items you suspect and try them one at a time over a week and see if you react.  Or you can order a new set of nerves if you really believe you made yourself sick by worrying.  Where you'll get a good deal on a set of nerves I  am not sure, though, maybe Dr. Frankensteins store on E-bay. :)

squirmingitch Veteran

Yep, my hubby & I are a pair too. I suspect it's way more common than we know. Remember that 85% of celiacs don't know they have it. Once one does find out they are celiac then we know much more about the symptoms & realize that the big "D" is not the only symptom of celiac disease. Most media articles emphasize only the "D" part of it. Once I was diagnosed & learned, I recognized it in my husband. He of course sailed down the river of denial for a couple of months. I wouldn't let up on him though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    2. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    3. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    4. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,971
    • Most Online (within 30 mins)
      7,748

    NinaElaine
    Newest Member
    NinaElaine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.