Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten/Dairy Free But Still Feeling Sick?


treeoflife06

Recommended Posts

treeoflife06 Newbie

Hi guys!

I have been reading this message board for the past month, but never posting but its now my turn to post I guess.

I am a 27 year old female who woke up one day and just had diarrhea for almost a month straight 7-8 times a day. It was just water. I went to a GI doctor. My blood work came back completely normal and not even a chance of Celiac's. So he told me he thinks I am gluten intolerant. I stopped eating gluten and dairy (which i was allergic to) and its been since February 2nd. 
 

Having diarrhea every day stopped completely once i went gluten & dairy free..but still have been feeling off since then. I had gas really bad for a while that smelt absolutely disgusting and i couldnt help it. My doctor told me to get on a probiotic for that. That has kind of cleared, but every  day my stomach just feels funky. Like almost like you have to poop. And it rumbles, and I still have gas a LOT, just not as much. And I poop quite often but its not water anymore. Also, I have always drank wine, and now even when I have one or two glasses, the next day I poop a ton.

 

Can anyone tell me if this happened to them? Is my stomach just regulating itself? Is this normal? I asked my GI doctor again and he said "if you really want to do an endoscopy or colonoscopy we can, but its unlikely theres anything else wrong" I never had blood in my poop or anything like that. Please give me some advice here. I am feeling completely defeated. It is super frustrating, I just want my life back. I can't go out to eat with my boyfriend cause its always so complicated & now I cant go out and get a drink either? I have to worry about if I have to poop or not or if my stomach will hurt.

 

Side note: I have a naturopathic doctor appointment in two weeks which I am excited about..ive heard good things..anyone have experience with this also? SOrry for the long post, i just need to talk to people who get it! Thank you in advance. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

What do you typically eat?

This could be anything really, from a bad strain of bacteria in your gut, a food intolerance, parasite, allergy, ulcers, or a deficiency.

Start off with a food journal and write down everything your eat. Try removing one food at a time for a week and noting your you feel and any changes. You might find you have a intolerance to something, or a allergy could be causing inflammation in the intestines. 

What is your sugar/carb intake, if your on a gluten-free diet and eating a bunch of processed foods the issue could be your having too much starches, sugars, and carbs and your gut bacteria are just having a field day. In which case adjusting your ratios adding more fiber and fats will help.

It could be the wine as some people react to the sulfates and nitrates in it same wit the vinegar.

I would really suggest dropping all of your current staples and trying a whole foods only diet of simple stewed/baked/grilled meats, eggs. veggies, sweet potatoes, nuts, and small amounts of fruit. See how you feel on that kind of diet. From there do the elimination diet and try removing some and adding something for a week at a time keeping it simple.

Heck you might even have a gluten containg spice or glutened cookware and be getting yourself just a tad with gluten.

PS welcome to the fourm say you have been here for awhile but just going to post the basics introduction links anyway.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

treeoflife06 Newbie

I scan everything i eat. So I know I am not eating gluten.

 

I have been good for like five to six days and then today I have dirreah again. It's super weird. The doctor told me IBS...but he doesnt seem concerned. I am wondering if I should switch doctors to someone who's going to be more apt to trying to find out what is wrong. My blood work is all normal and he doesnt seem to want to give me an endoscopy or colonoscopy cause he said it's "possible but probably not" something else.

Ennis-TX Grand Master
10 minutes ago, treeoflife06 said:

I scan everything i eat. So I know I am not eating gluten.

 

I have been good for like five to six days and then today I have dirreah again. It's super weird. The doctor told me IBS...but he doesnt seem concerned. I am wondering if I should switch doctors to someone who's going to be more apt to trying to find out what is wrong. My blood work is all normal and he doesnt seem to want to give me an endoscopy or colonoscopy cause he said it's "possible but probably not" something else.

Might push for the scope just to be sure what it is. Especially if covered by insurance. Most of these autoimmune diseases have a particular diet and foods to avoid that help you to live a more normal life. Just got to nail down what you have.

Your still a bit early into the gluten-free diet also, can takes weeks if not months for your system to settle. Give it more time, and keep on being vigilant with ingredients, and safe prep in a gluten-free environment. Note gluten CC is a real pain first getting into the diet. You will make mistakes with old contaminated cookware, spices, condiments, crumbs in drawers/containers/toaster/oven/counter, getting a untrusted brand etc. Best to stick to whole foods only first few weeks of the diet to jump start your healing and make it simpler.

Start the food journal to see if you can nail down some culprits and get some data on what is causing the issues. You might be able to categorize a certain kind of food (Night shades, legumes, grains)  or a food in particular that is doing it.    Say it could be stuff like sugar carbs, soy, meats, or some random intolarenace you developed. It is very common to get them with this disease, and they can cause all kind of different symptoms.     

cyclinglady Grand Master

Too bad , your lame-sounding doctor advised you to go gluten free without testing you for celiac disease.  Consider getting a new GI doctor who knows about celiac disease and get tested.  Actually any MD can test you.  The catch is you need to be on a gluten diet.  

Open Original Shared Link

IBS really means "I Be Stumped."  You might not have celiac disease, but at least you can rule it out.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.