Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten sensitivity?


Maddi

Recommended Posts

Maddi Community Regular

Hi you guys. 

I came to this website almost 2 years ago. I had so many crazy symptoms and wondered if I had a gluten sensitivity since my Celiac blood test came back negative. Well, slowly most of my symptoms resolved. Then they found I had Epsteins Barr virus which had been reactivated. And was diagnosed with Chronic Fatigue Syndrome. Well about 3 months ago, I started eating gluten again. (I know dumb on my part). I guess I started wondering if maybe I was really sensitive to it to begin with. While on gluten 2 years ago I had panic attacks, anxiety, depression, huge bm's (sorry if tmi), I was starting to have urinary incontinence (I was 25!! No kids!!!), shallow breathing, body aches, body tingling and burning, I had insomnia, nausea, dizziness, and hot flashes and well SEVERE fatigue. I'm sure I'm missing some but that's what I can remember.

Well, 3 months ago I started eating gluten and slowly I started getting that shallow breathing again, increased anxiety, and then in March I started with the panic attacks and the increased bm's and insomnia.  So in March I stopped eating gluten. I felt better and could sleep fine. Fast forward to two weeks ago, I decided to switch to a plant based diet. Welllll I bought pre cooked beans from Whole Foods and also corn tortillas. 2 Sundays ago I felt off. I started feeling weirdly dizzy. Then last Friday I felt very fatigued and faint. I used to feel faint while eating gluten but haven't felt this way in a longggg time. While feeling faint I felt the need to go to the bathroom. So I'm not sure if that was a panic attack or what that was. Well since then I'm having non stop sweating, nausea, body aches, insomnia and this wired feeling I used to have when I ate gluten before. Well I read the labels on the beans. BOOM they say they are processed in the same facility as wheat. Then I read the corn tortillas SAME THING. Could this be from cross contamination that I feel this way? Or could this be something else? I'm so sorry this was so long. I'm feeling desperate. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am sorry that you are not feeling well.  It could be cross contamination.  Hard to say.  I avoid grains because I have diabetes (carb really spike me and I might as well have some ice cream), but I feel good about purchasing corn tortillas for my family (marked gluten free) and I do indulge every once-in-a-while.   It might be made in a shared giant factory in Texas, but the lines are never shared.   Beans?  I make my own.  I wash and sort prior to soaking.  Amazing what you can find....wheat, stones, unidentified stuff, etc!  I freeze in small batches.  

You might just be reacting to corn too.  Developed a intolerance along the way.  

I hope you feel better soon.  Sounds like gluten is not for you!  

Maddi Community Regular

Thanks so much for your response! I actually remember you last time I was on this site! 

Also because you have diabetes... could this also be reactive hypoglycemia? Can gluten intolerance cause reactive hypoglycemia? I'm starting to think maybe this is also a problem bc I'm feeling terrible all day. And so sweaty. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,889
    • Most Online (within 30 mins)
      7,748

    glutenhater11
    Newest Member
    glutenhater11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
    • trents
      This topic has come up before on this forum and has been researched. No GMO wheat, barley and rye are commercially available in the USA. Any modifications are from hybridization, not laboratory genetic modification. Better toleration of wheat, barley and rye products in other countries is thought to be due to use of heirloom varieties of these cereal grains as opposed to the hybrids used in the USA which contain much larger amounts of gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.