Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten sensitivity?


Maddi

Recommended Posts

Maddi Community Regular

Hi you guys. 

I came to this website almost 2 years ago. I had so many crazy symptoms and wondered if I had a gluten sensitivity since my Celiac blood test came back negative. Well, slowly most of my symptoms resolved. Then they found I had Epsteins Barr virus which had been reactivated. And was diagnosed with Chronic Fatigue Syndrome. Well about 3 months ago, I started eating gluten again. (I know dumb on my part). I guess I started wondering if maybe I was really sensitive to it to begin with. While on gluten 2 years ago I had panic attacks, anxiety, depression, huge bm's (sorry if tmi), I was starting to have urinary incontinence (I was 25!! No kids!!!), shallow breathing, body aches, body tingling and burning, I had insomnia, nausea, dizziness, and hot flashes and well SEVERE fatigue. I'm sure I'm missing some but that's what I can remember.

Well, 3 months ago I started eating gluten and slowly I started getting that shallow breathing again, increased anxiety, and then in March I started with the panic attacks and the increased bm's and insomnia.  So in March I stopped eating gluten. I felt better and could sleep fine. Fast forward to two weeks ago, I decided to switch to a plant based diet. Welllll I bought pre cooked beans from Whole Foods and also corn tortillas. 2 Sundays ago I felt off. I started feeling weirdly dizzy. Then last Friday I felt very fatigued and faint. I used to feel faint while eating gluten but haven't felt this way in a longggg time. While feeling faint I felt the need to go to the bathroom. So I'm not sure if that was a panic attack or what that was. Well since then I'm having non stop sweating, nausea, body aches, insomnia and this wired feeling I used to have when I ate gluten before. Well I read the labels on the beans. BOOM they say they are processed in the same facility as wheat. Then I read the corn tortillas SAME THING. Could this be from cross contamination that I feel this way? Or could this be something else? I'm so sorry this was so long. I'm feeling desperate. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am sorry that you are not feeling well.  It could be cross contamination.  Hard to say.  I avoid grains because I have diabetes (carb really spike me and I might as well have some ice cream), but I feel good about purchasing corn tortillas for my family (marked gluten free) and I do indulge every once-in-a-while.   It might be made in a shared giant factory in Texas, but the lines are never shared.   Beans?  I make my own.  I wash and sort prior to soaking.  Amazing what you can find....wheat, stones, unidentified stuff, etc!  I freeze in small batches.  

You might just be reacting to corn too.  Developed a intolerance along the way.  

I hope you feel better soon.  Sounds like gluten is not for you!  

Maddi Community Regular

Thanks so much for your response! I actually remember you last time I was on this site! 

Also because you have diabetes... could this also be reactive hypoglycemia? Can gluten intolerance cause reactive hypoglycemia? I'm starting to think maybe this is also a problem bc I'm feeling terrible all day. And so sweaty. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,376
    • Most Online (within 30 mins)
      7,748

    Maria1984
    Newest Member
    Maria1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
    • Scott Adams
      The topic has come up in the forum a lot: https://www.celiac.com/search/?q=lymphocytic colitis&quick=1&type=forums_topic and here are discussions with "colitis": https://www.celiac.com/search/?&q=colitis&type=forums_topic&quick=1&search_and_or=and&sortby=relevancy
×
×
  • Create New...