Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy on Tuesday


dalek100

Recommended Posts

dalek100 Apprentice

Hi,

I am very sorry to be a big nuisance on here. I am scheduled for an endoscopy on Tuesday and isn't until later in the day. I was wondering if anyone had any advice on whether I should eat a lot of gluten the night before or whether it doesn't matter? 

Thank you for everyone's help on this forum.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

As long as you have kept gluten in your diet there is no need to consume larger amounts the day before your procedure. You may want to consume your favorite gluten foods, especially if you had positive blood work, but there is no need to go overboard. 

rarchy Apprentice

I has my endoscopy about 6 weeks ago, I didn't make a particular effort to eat more gluten the day before, just the same as what I had been eating, and my biopsy was positive for (partial) villous atrophy, so if its there it will show up.

dalek100 Apprentice

Hi,

Thank you for your help. I was just wondering if when you had your endoscopy if they detected it by the camera or was it the biopsies that shown it? Sorry to be a nuisance.

rarchy Apprentice

Hi, no problem! It was the biopsies and as far as I am aware that is normally the case unless you have severe atrophy. Before I went I thought they could tell on the day but the doctor carrying out the procedure said most of the time they can't see. I asked him after if he thought it was celiac and he said "It looks like it probably is but if I hadn't known I was looking for evidence of celiac I wouldn't have said you have it".... So that didn't really answer anything! 

I went gluten free immediately after as you no longer need to eat it (although 6 weeks on and I haven't noticed a huge difference except maybe my digestive issues have improved). 

Are you having sedation? I just went for the normal throat spray (which tasted of bananas and gin!), and it wasn't particularly comfortable but was ok and personally I would do the same again.

RMJ Mentor

My doctor is at a university hospital and has a very good endoscope with great magnification.  She was able to see the blunted villi during the endoscopy, confirmed by the biopsy.

dalek100 Apprentice

Hi, 

I am very sorry for being a pain by posting on here again. I was wondering if I could ask for some advice? I had my endoscopy done earlier this evening and the consultant said everything looked normal and said he has taken plenty of D2 biopsies. I was wondering does this mean that Celiac is unlikely now? I am worried in case my problems will never get resolved and the amount of weight loss. Did other people encounter this?

Thank you for all your help,

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
8 minutes ago, dalek100 said:

I was wondering does this mean that Celiac is unlikely now?

It's impossible to answer this until the biopsy results are available unfortunately. The damage to the villi is too small to see with the naked eye. It's good news however that there's nothing amiss to the naked eye :)

 

  • 2 weeks later...
Victoria1234 Experienced
On 5/9/2017 at 2:46 PM, dalek100 said:

Hi, 

I am very sorry for being a pain by posting on here again. I was wondering if I could ask for some advice? I had my endoscopy done earlier this evening and the consultant said everything looked normal and said he has taken plenty of D2 biopsies. I was wondering does this mean that Celiac is unlikely now? I am worried in case my problems will never get resolved and the amount of weight loss. Did other people encounter this?

Thank you for all your help,

 

Have the results come back yet?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,719
    • Most Online (within 30 mins)
      7,748

    Choulj
    Newest Member
    Choulj
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Many thanks for your reply Rogol72.  People have been very kind and made all sorts of suggestions. I am bearing them all in mind but at this early stage just desperately need to be itch free.  I have literally had this horrid rash from scalp to feet. My most recent outbreak was all across my face as well. At one stage it was so widespread I was having very bad thoughts. Dapsone has changed that.  I think my situation is worsened by Addison's Disease. I am totally steroid dependent. Its a constant trade-off between increasing steroids to cope with dermatitis herpetiformis vs increased risk of high steroids. I also have hypothyroidism. In fact dermatitis herpetiformis is my fifth autoimmune condition.  Hey ho, I'm muddling through. Its nice to hear that others with the condition have found various ways to get back on track.  I don't want to be on Dapsone a day longer than necessary but it's far better than the awful state I was in.  My dermatologist is keeping a close eye on my bloods. So far, so good.  Thank you again for your advice. Very much appreciated.  Sue    
    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.