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Biopsy Details

Feeneyja

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Feeneyja Collaborator
Feeneyja
Posted

I'm one week into my gluten challenge. Felt mostly fine up until today. Very nauseated, stomach churning, mucus in stool, headache and dizziness.  We will see how far I make it. 

I have a history of anemia, headaches and vomiting, unexplained weight loss with loss of hair and diarrhea, many cavities, easily broken bones.  But the symptoms have come and gone, so never thought about the gluten connection until now.

I also found out that my great uncle died from an aggressive form of non Hodgkin lymphoma, and my uncle has also had non Hodgkin lymphoma.  Several autoimmune diseases on that side of the family as well (type 1 diabetes and alopecia).

I'm hoping to set up a GI appointment soon and want to discuss blood work and biopsy so if I need to bail on the challenge, I can hopefully have both done in a timely fashion and not waste this gluten challenge. I know what blood work to ask for.  But what about the biopsy?  What do I need to make sure of so that it's not a waste of my time and money.  This is such a knowledgeable group, I was hoping someone could help with those details.

Many thanks!

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cyclinglady Grand Master
cyclinglady
Posted

I am sorry that you are feeling sick.  A challenge is tough.  Here is information regarding the biopsies:

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  • Recent Activity

    1. Bronwyn W
      - Bronwyn W replied to Laura Q's topic in Related Issues & Disorders
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      Newly diagnosed

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
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    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Still unsure.....

      By Scott Adams · Posted

      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      4 Years and very little progress

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      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      @knitty kitty Did they give you medication for the Thiamine? I have never heard of that and have never related to symptoms more. My energy is always SO low. Zero drive to get anything done or work out. I used to love being on the go and being active. I am heading to the doctor next week so I will make sure to bring this up! Thank you so much! 
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      @trents I have had another scope done since being diagnosed. The only thing they told me at that time was my body seems to be healing very well and to continue what I was doing. At that time, I had only been diagnosed 2 years so it may be a possibility that it was healing then but not now maybe. I think you're right that it's about time one was done! I will be bringing that up to my doctor at my apt. next week. Thank you for the suggestions with food. I have tried diary so far. Seems to not be the issue (luckily!). Will have to try the others!
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