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Rosemilyd

Feeling tight and twitching

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My husband has been gluten free for a week.  He said his stomach issues have improved dramatically he is not bloated at all and usually his stomach bloats three times it's size.  But he said his muscles still feel tired, tight and kind of achy and twitchy .  Is that a normal thing ?  I'm wondering how long after being off of gluten should the symptoms improve ?  We are still waiting to hear back from the doctor about results from the celiac panel thank you in advance !!! 

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If and when he is diagnosed celiac you will know more.   That could be from any number of vitamin deficiencies common to celiacs. B's, magnesium, iron. Your doctor should, and I'm sure will, test for many nutrients he may be missing. But while I started feeling better after the first week, it was many months of healing and correcting vitamin deficiencies to really feel better

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39 minutes ago, Rosemilyd said:

My husband has been gluten free for a week.  He said his stomach issues have improved dramatically he is not bloated at all and usually his stomach bloats three times it's size.  But he said his muscles still feel tired, tight and kind of achy and twitchy .  Is that a normal thing ?  I'm wondering how long after being off of gluten should the symptoms improve ?  We are still waiting to hear back from the doctor about results from the celiac panel thank you in advance !!! 

First STAY on gluten til you are done testing, you need 12 weeks for blood test with it in your system and 2 weeks for hte follow up endoscope.  Second yes, if he has celiac then his intestines are damaged and he will not be getting all the nutrients his body needs, so even when off gluten you can have issues show up like this. These can be helped by supplementing I suggest a full B-vitamin regime, and magnesium myself, there are others he might be low in like iron, folate, potassium etc. You should probably see about having his levels checked and talking to a dietician about what me might need. I personally love this blend from liquid health called stress & energy and another one from them called neurological support that I take 1tbsp of each 3 times a day. Best part they are liquid so you just add them to tea, water, or juice. Another I might suggest is Doctors Best Magnesium or Natural Vitality Calm Magnesium Supplements. Doctors best is easier on the stomach while calm can cause gut issues and a laxative effect and it is suggest you start off with 1/4tsp doses and step it up from there to the full dose. I take 2-3 times the dose on this but we are all different in the levels we will need.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Thank y'all for the info! His doc said he may not have celiac bc he doesn't look the part whatever that means I guess bc he's a big boy lol but he did the panel anyways And said he'll prob get false neg even if he has gluten issues . He also testing for b12 iron and his vit d, and inflammation. We already know his vit D is low he's been taking high amounts of D3 with magnesium for months now. Doc said could be possible MS but he had spinal tab a while back and physical test also nurve and muscle study and Nero said the results were perfect but he did have some white matter change in MRI but could be from head trauma he's had or high blood pressure or migraines . It's all too much to process sometimes. He's 26  But I would think bc his stomach issues have improved so much in the past weeks bc of going gluten free it makes me lean more towards gluten issues rather than MS wouldn't u think? 

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