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Looking for Celiac Specialist in NH or Massachusetts for young child

NHMom1016

By NHMom1016
in Doctors

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NHMom1016 Rookie
NHMom1016
Posted

Hi,

I am looking to see if anyone has any recommendations for a good pediatric celiac specialist or GI in NH or Massachusetts.

I have read that there are many specialists now that feel a biopsy does not have to be done in some cases.

This is who I am looking for.

Thank you for your time!

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ironictruth Proficient
ironictruth
Posted
4 hours ago, NHMom1016 said:

Hi,

I am looking to see if anyone has any recommendations for a good pediatric celiac specialist or GI in NH or Massachusetts.

I have read that there are many specialists now that feel a biopsy does not have to be done in some cases.

This is who I am looking for.

Thank you for your time!

Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Good luck.

Open Original Shared Link

 I went there as an adult and they do provide virtual visits once you're established as well. So if you're not very close to Boston that is probably also an option.

NHMom1016 Rookie
NHMom1016
Posted
  • Author
19 hours ago, ironictruth said:

Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Good luck.

Open Original Shared Link

 I went there as an adult and they do provide virtual visits once you're established as well. So if you're not very close to Boston that is probably also an option.

Thank you so much!  I just called to make an appointment with Dr. Fasano, He is booked out till September :( I will try Maureen Leonard.  If I can't get appointments for awhile, do I keep my son on gluten?  At the moment, we are waiting for his 2nd test results (celiac panel) to come in.  (Should be within the next few days) to ensure it wasn't a false positive before.  My other child is being tested as well.

cyclinglady Grand Master
cyclinglady
Posted

Is there a reason why you want to avoid an endoscopy?  Look through the kids section of the forum.  You see that the experience the kids had was fine and the parents were glad they did it.  

ironictruth Proficient
ironictruth
Posted

I hear ya NHmom. But I also hear cyclinglady, and the many others on this board. 

Take it from me, it is horrible to have some questionable bloodwork and/or a questionable biopsy. I cannot imagine going through what you are with your little one. I cannot even handle it for me and I am an adult!

It is worth the wait to get an educated opinion vs getting what you want test wise at Walmart quickly. And trust me, I am a mom too so I have been there. 

How old are your kids? 

September is a quick appointment. Take it. And Dr. Leonard is great too if she can see you sooner. She was the first doc I met in person. You can always go from there. 

  • 2 months later...
NHMom1016 Rookie
NHMom1016
Posted
  • Author

Hi Everyone!  Thank you for all your responses!  This site is so helpful and I appreciate everyone who replied to my post.   I was able to get an earlier appt with Maureen Leonard who was absolutely wonderful like you all said and after more testing and even a genetics test, my son now has a diagnosis of celiac disease.  He's been gluten free now for a few weeks.  He is doing very well on the diet so far.  He does seem to be sleeping better which was always a problem since he was an infant, so that is a good sign!  We test in 3 months and I hope that his iron levels go up. 

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