Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein but not gluten sensitive?


BarryC

Recommended Posts

BarryC Collaborator

I am aware that gluten sensitives are often also sensitive to casein in dairy.  Is it possible to be sensitive to casein but not gluten? My daughter has a very mild sensitivity to gluten, but gets sick several hours after even a small amount of dairy. Ice cream, sour cream, etc are the worst offenders. She has tried lactose free to no avail. Thanks for your thoughts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Hi, I hope your daughter is feeling better.  

Sometimes gluten derivatives are added as thickened in dairy products like ice cream, sour cream and yogurt.  Most recently, genetically manipulated microbes are cultured to produce microbial tissue transglutaminase (mTg) which is used as a texture enhancer in some manufactured foods, like gluten free bakery products and dairy products.  It is also called meat glue because it is often used in formed meat products like luncheon meats, sausages, and chicken patties.  

Recent studies are finding that this food additive mTg resembles human tissue transglutaminase (one of the blood tests for celiac disease measures this, tTg), and has a similar effect.  

"mTg is immunogenic in children with celiac disease and, by complexing to gliadin, its immunogenicity is enhanced."

Open Original Shared Link

I found I had to severely limit gluten free processed foods and all dairy because I kept getting sick.  Curious as to why, I came across this study.  I was shocked.  Weren't gluten free foods supposed to be safe?

 I hope this can be helpful to your daughter and others.  

kareng Grand Master

I think the simple answer to the questions is - yes. anyone can be allergic or intolerant to any food.  So someone with or without Celiac can have an issue with casein. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

    2. - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

    3. - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      2

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    4. - KelleyJo replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

    5. - HelenH posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,547
    • Most Online (within 30 mins)
      7,748

    Lynette76
    Newest Member
    Lynette76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
    • KelleyJo
      Yes,  I've reacted to malt anything . . . it does come from barley.  I'm super careful to avoid anything containing malt or even maltodextrin unless it's labeled from corn.
    • HelenH
      Having avoided gluten well for many years I think I may have had a salad with Malt Vinegar and it was one of the worst 'attacks' I have experienced. I just want to know if anyone else has been so badly affected by malt vinegar.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.