Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

iron suggestions?


ironictruth

Recommended Posts

ironictruth Proficient

So, my ferritin has dropped from 70's to 20 (cut off is 13). Serum iron was normal but I had eaten like 5 times that day before noon so it was not fasting. The last time I fasted for a procedure my RBC and hemoglobin dropped to mild anemia.  I drank like 2 nutrition drinks per day and took black strap molasses for a couple of weeks and then it was fine.

Anyway, I am not interested in depleting iron reserves any further and in order to avoid anemia, I bought some iron with vitamin c and thought I would take it every other day. I have a pretty high iron containing diet to begin with. But, I am alternating between the big D and big C these days and I think my "transit time" has slowed down as well. Even though I "go" every day I get a lot of pressure in the hepatic area where the colon curves and a couple of imaging tests show a moderate-large amount in the colon.  This gets relieved, so it is not a constant blockage or anything. So, of course the darn iron with vitamin c made the C worse though.

Then  I thought I better get the doc to approve the amount of iron so I am not taking too much. They have suggested 65 mg per day.

Anyone have any suggestions on brand? There are a ton online that say "gentle". It looks like ferrous is the best source of iron but that is the one that causes C. Is the "gentle" kind enough to increase ferritin?

  • 6 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PaigeyPants Rookie

Hey there! I have been struggling for years to find an iron supplement that did not upset my stomach, and recently discovered Heme Iron by New Roots Herbal. Have you tried a heme iron? It is derived from animal sources rather than elemental, so wouldn't be suitable if you're vegetarian, but is apparently easier to absorb. I haven't had any problems with it! I think there are other brands of heme iron available now too which should be similar!

lisas11lisa Apprentice

My Ferritin dropped to a 5 before I was finally diagnosed with Celiac Disease..I had to have Iron Infusions 3 times to get my levels up..now...I have been gluten-free for 5 years and I'm maintaining around 50..My Dr told me Ferris iron registers a false reading...I don't take any extra now..just test my levels every 6 months..Goodluck on your journey. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    MandyK
    Newest Member
    MandyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.