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Extracts

lorka150

By lorka150
in Coping with Celiac Disease

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lorka150 Collaborator
lorka150
Posted

Hi everyone,

Does anyone have trouble with just certain flavours of extracts?

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chaddwell Apprentice
chaddwell
Posted

I don't have an answer but thought it was an interesting question. I'd like to know myself!

Carriefaith Enthusiast
Carriefaith
Posted
Does anyone have trouble with just certain flavours of extracts?
I seem to react to club house vanilla extract. It is a large container and Club House warns that there is a higher risk of cross contamination in their larger sized containers. I don't react to the smaller sized containers made by Mc Cormick and they have the same warning about their products as Club House. I am considering making my own home made vanilla extract to avoid this contamination problem.
Guhlia Rising Star
Guhlia
Posted

Be careful if you choose to make your own. My ex used to work in a vanilla plant and they made vanilla extract. His 2nd day there he broke out in a horrible rash and got very sick. He went to the doctor and they told him that it was VERY common to develop a vanilla allergy if you come in contact with raw vanilla beans. He can no longer eat anything with a strong vanilla flavoring and sometimes develops an itchy rash when just around a bakery. I've never heard of this before, and the doctor he went to was a new one since it was a workman's comp issue, so I don't know how reliable his doctor was. Still, I would use extra precaution if you choose to make your own. I don't know that I'd want to risk never eating vanilla again... Yummy! Not eating gluten is bad enough...

jerseyangel Proficient
jerseyangel
Posted

Wow Guhlia--Thanks for letting us know what happened to your husband. I thing I'll stick to the small bottles of McCormick because I also love vanilla too much to have to give up. :)

beadlady Newbie
beadlady
Posted

I don't know about extracts but recently while in Kauai, we ate a lot of papaya and other fruit and I got a really severe rash over my legs and arms and had to discontinue. Enzymes in certain foods will cause problems. Bead lady.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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