Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acid Reflux?!


BarryC

Recommended Posts

BarryC Collaborator

I was very surprised to discover that acid reflux could be a symptom of celiac. I have it and am taking Omneprazole. Just another digestive problem that I have and am actually happily surprised to find out it might be related to celiac. Hoping continuong with my gluten free diet will help. Going to go off the Omneprazole, and give some of the suggestions Poster Boy gave me a try. Anyone else also have acid reflux and did a gluten free diet help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CraftyChristine84 Newbie

I was first diagnosed with Gerd/acid reflux and was put on Pantoprazole for about 3 months, but the meds never really helped. Eventually I was diagnosed (by blood test) with Celiacs. After my endoscope I was on a gluten free diet for about a week and my GI dr told me I can completely stop the acid reflux meds.  Had no problems, minus just the normal recovery, but any acid reflux was very minor and improved with time. I will occasionally take a couple tums and that will help now.

I know exactly what you mean about feeling happy to find the acid reflux is related to celiacs. I wasn't getting better with the acid reflux diet (where I ate a lot of bread) and the meds. I was so happy to find out I can have coffee and the occasional pop AND start to feel better!!!  Hope this helps!

trents Grand Master

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

plumbago Experienced
5 hours ago, trents said:

I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.

Hiatal hernia is definitely a risk factor for GERD, and the gastro who did my scopes said that more people than not after a certain age have hiatal hernias.

You're right that an "incompetent" lower esophageal sphincter is a primary etiological factor. And the factors affecting LES pressure include alcohol, certain drugs like anticholinergics, fatty foods, chocolate, nicotine, peppermint, tea, coffee. Other risk factors are obesity, as intraabdominal pressure is increased, cigarette and cigar smoking. So, obviously, avoid things that will decrease the pressure of the lower esophageal sphincter, including the above but also eat small frequent meals to avoid gastric distention, do not lie down 2-3 hours after eating, and don’t eat w/in 3 hours bedtime. People with GERD can sleep with the head of the bed elevated on 4-8” blocks to foster esophageal emptying.

This is from Medscape: "In the upright position, the major stimulus for transient LES relaxation is gastric distention after a meal. This accounts for the increased amount of physiologic reflux after eating, especially following the large evening meal. Thus, a reduction of meal size alone has the potential to be of benefit in the management of GERD. If this meal can be low in fat and high in protein, then this will further augment LES pressure and decrease the amount of acid reflux. Eating a large meal immediately before retiring should be discouraged, as this increases gastric volume, promoting gastroesophageal reflux with associated poor nocturnal acid clearance. I suggest to my patients that they can have a healthy evening meal, but eat or drink nothing but water for 3-4 hours before going to bed."

Plumbago

 

 

 

trents Grand Master

Plumbago has good advice. Several years ago I purchased an articulating bed for back problems and the reflux seems to have benefited from it as well. 

I have difficulty with not eating for 3 hours before bed. I typically get terribly hungry right before bed and can't sleep if I get in the sack that way.

And I know losing about 30 lbs. wold help the GERD and other things as well. I often wonder if malabsorption of nutrients from Celiac disease increases our appetites. There seems to be a growing body of evidence that going gluten-free for many Celiacs doesn't arrest the SB inflammation as was previously assumed so that substantial recovery of the villi doesn't happen.

 

At one point I considered the GERD lap surgery but the potential side effects scared me enough I just concluded that since the PPI worked so well I would just stay with that. Though as we all know, ongoing PPI use has significant long term risks as well.

BarryC Collaborator

Great advice thanks so much. I am hoping that as I continue to lose weight- intraabdominal pressure- it will improve. BTW I used to get up to pee three or more times a night. Since I have lost a bit of weight on a gluten free diet, I am down to one trip or less!  Or, is peeing at night (nocturia) another side effect of celiac?  Also, the constant dull pain in my stomach is lessening.  It suddenly showed up after way too many 'pop's, and since I am pop free, it has improved.  Was it gastritis or celiac related inflammation?  Just another of the multiple digestive issues I have that finally seem to be improving. Hopefully, I just have a more severe form of gluten intolerance, and my body can heal, even pushing 60!  For those of you with true celiac, my thoughts and prayers go out to you. Thanks again, Celiac.com-you rock!

trents Grand Master

I'm not aware that nocturia is connected to gluten intolerance but they are finding more connections all the time.

I too suffered from nocturia but it was mostly related to enlarged prostrate which was fixed with a TURP. As we age most things get smaller but some keep growing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

My trips at night were because of sleep apnea. With my cpap , I just get up once a night!

plumbago Experienced

This may not be super helpful, but according to Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications by Libonati (RN, BSN), there is an increased prevalence of GERD in celiac disease patients, especially untreated, and that studies show improvement on a gluten-free diet. Gluten is something, they say, that increases abdominal pressure. It goes on to say, "celiac disease may represent a risk factor for the development of reflux esophagitis."

BarryC Collaborator

I also have sleep apnea, have been on a CPAP for years.  The worst was when I had plantar faciitis and had to stumble around to get up and pee. You to get lots of muscle joint pronlems, but those have lessened.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.