Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello new here - need advice

PJP

Recommended Posts

PJP Rookie
PJP
Posted

Hello,

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain. Sorry if it makes no sense.  

Im thinking of goung to ae tomorrow as its so bad. Any advice would br sppricatef. Im sorry this couldn't be better. Thank you. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted
2 hours ago, PJP said:

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain.  

Hello and welcome :)

Were you previously gluten free? For celiac blood tests to work you need to have been eating gluten for several weeks beforehand. Two weeks may not be enough for an accurate result :( It may be, people differ, but if the test is negative be aware it could be due to such a short time on gluten. 

A gluten challenge can be rough, although I found in my case that it got easier to endure as it went on (note I tested negative). If your pain is intense do go to A&E to ensure that there's not another factor at work.  

There's some info on testing here. 

 

PJP Rookie
PJP
Posted
  • Author

Thank you :) I'm making my way up to A&E in a bit. I went gluten free for 6 days and that was 3 days ago. I'm not sure if thats enough? Ive only ever been gluten free for those 6 days.  

Jmg Mentor
Jmg
Posted

I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

PJP Rookie
PJP
Posted
  • Author
6 hours ago, Jmg said:

I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well. 

Jmg Mentor
Jmg
Posted
Quote

Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well

I hope you're feeling better now.

When you get the test results you can post them here if you'd like some input from the members. They were really helpful with me when I was going through the diagnostic process :)

Once you've completed testing you may want to go gluten free regardless of the results as it seems as if your body is reacting strongly to it, celiac or not...

 

PJP Rookie
PJP
Posted
  • Author

Thank you so much and I will do. Tbh as of now things aren't much better, going for bloods tomorrow. Also I will post about my results :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PJP Rookie
PJP
Posted
  • Author

Thank you so much and I will do. Tbh as of now things aren't much better, going for bloods tomorrow. Also I will post about my results :)

Jmg Mentor
Jmg
Posted

Sounds good. Try not to worry, lots of people have been where you are and come through it feeling better than they thought possible. :)

Ennis-TX Grand Master
Ennis-TX
Posted

On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.

plumbago Experienced
plumbago
Posted
10 hours ago, Ennis_TX said:

On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.

I wonder if you meant "you can eat mostly gluten-free, and just have half a slice..."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748
    tiffanygosci
    Newest Member
    tiffanygosci
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      Does anyone here also have Afib

      By tiffanygosci · Posted

      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.