Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Day 7 of Gluten Free

MrsPeterson17

Recommended Posts

MrsPeterson17 Rookie
MrsPeterson17
Posted

I was diagnosed with celiac after spending the first 23 years of my life suffering from symptoms and being misdiagnosed. FINALLY I have the answer I've been waiting for. Today marks day 7 gluten free... I must say I feel a tremendous difference in my energy level and feel like I don't need my ADHD medication as much. My constant eczema is clearing up slowly but it's better than I've ever seen it!

But I am SO SO SO hungry. I wake up every two hours at night with a growling tummy and drinking a glass of water doesn't settle it. Throughout the day I cannot get enough to eat and enough water to drink. I'm very new to this, is this normal?? Will this adjust? I've also had to pee every hour. 

 I gained about 20lbs from celiac and I have lost 6lbs since going gluten free this week. I'm assuming water weight. . My stomach pains are still very prominent but my doctor says the damage needs some time to adjust and heal if possible. But now I'm just feeling intense hunger pain no matter how much I eat. I am still 5lbs overweight and so I really do not want to overeat. But my goodness I have no idea how else to control this. Before my diagnosis I was struggling with having zero appetite. Now I'm completely opposite ?

Thanks for being willing to be patient and share your knowledge with the newbie! ❤️

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

Hello and welcome :)

The first few days/weeks/months on the diet can be a little strange! You will have good days and bad days and progress isn't always linear, but you will get there. Take a little time out to read this thread, there's lot's of good advice in there!

Your doctor is right, it's about healing and allowing your stomach to make the most of the food you do eat. Your hunger at the moment is perhaps a sign that your body is craving nutrients. You need to eat as well as possible at this stage to give the healing process all the help you can. 

1 hour ago, MrsPeterson17 said:

 I am still 5lbs overweight and so I really do not want to overeat. But my goodness I have no idea how else to control this. Before my diagnosis I was struggling with having zero appetite. Now I'm completely opposite ?

Before when you ate it was causing your body stress. Now your body is finally receiving the nutrients its been craving and it's telling you 'more please!' - If you can stick to fresh unprocessed foods as much as possible you will benefit from it. Fruit, Vegetables, eggs, fish, unprocessed meat. Protein will fill you up for longer as will foods with a low GI rating. 

But try not to worry too much about weight on a day to day basis. The diet at this stage is not about losing weight but getting healthy.  The gluten free diet also cuts out a lot of empty calories in bread, pasta, baked goods etc, so if you avoid the gluten free replacements, which are often even higher in fat and sugar, then some weight will come off in a healthy way. 

You will hopefully have a lot more nice surprises as the healing process takes place. Be happy, you have an answer and you'll continue to get better as the diet continues. Best of luck!

MrsPeterson17 Rookie
MrsPeterson17
Posted
  • Author

Thank you so much for the reassurance! That makes me feel a lot better and ease some of the anxiety going through this lifestyle change. 

It is so amazing to me how much our bodies are impacted by things they don't respond well too. 

Luckily I haven't discovered much of the gluten free replacements yet. I'll definitely avoid those through this beginning phase until I start feeling better especially when I feel like I can eat all day long! 

The list of foods with the low GI rating was super helpful also!

Thank you for taking the time to offer some advice. I need all the pointers I can get at this point! 

Jmg Mentor
Jmg
Posted
1 hour ago, MrsPeterson17 said:

Thank you for taking the time to offer some advice. I need all the pointers I can get at this point! 

You're most welcome :)

Everyone here was once in your position and remembers just how confusing and sometimes scary it could be. The good news is that as you get more experienced in the diet that feeling lifts. The noisy tummy quietens down. You may get unexpected health bonuses, I had chronic lower back pain for 20 years which suddenly resolved, who would've guessed? 

Use this site and the experiences of the people on it to help you through the tough times. If you're ever feeling isolated or excluded from your gluten munching friends come on here and vent, we've been there :D 

It may not always feel like it and at times you'll feel some grief and resentment, but you will look back on this time as the moment you got your life back. There's no cheesecake, bagel, pizza or doughnut in the world that can rival that feeling. 

Treece68 Rookie
Treece68
Posted

When I first went gluten free it took me 4 1/2 weeks to feel 100%.  I know this because I kept track of my symptoms and how I felt every day. I have noticed that when I get glutinated I know I'm starting to heal when I am out of control hungry so I know how you feel.  I agree with one of the posters above eat as healthfully as possible until you feel better it does help a lot.

cyclinglady Grand Master
cyclinglady
Posted

Eat.  You are most likely deficient in something and your body want it.  Just reach for nourishing food instead of junk to help with healing.  You can ask your doctor to check for deficiencies.  Sometimes supplementation is need for a while.  

Welcome to the forum!

 

MrsPeterson17 Rookie
MrsPeterson17
Posted
  • Author
2 hours ago, Treece68 said:

When I first went gluten free it took me 4 1/2 weeks to feel 100%.  I know this because I kept track of my symptoms and how I felt every day. I have noticed that when I get glutinated I know I'm starting to heal when I am out of control hungry so I know how you feel.  I agree with one of the posters above eat as healthfully as possible until you feel better it does help a lot.

Thank you! Eating gluten will never feel tempting after experiencing what it is like to get it all out of my system. As dumb as it sounds, I thought those foods were going to somewhat tempt me and that this was going to be hard. But, I feel no desire whatsoever knowing how terrible this feels and the hard part is not being tempted to eat things I'm not supposed to... the hard part is learning all the small details of celiac disease that I am unaware of and dealing with the physical discomforts that should not last forever. Thanks again for the advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MrsPeterson17 Rookie
MrsPeterson17
Posted
  • Author
41 minutes ago, cyclinglady said:

Eat.  You are most likely deficient in something and your body want it.  Just reach for nourishing food instead of junk to help with healing.  You can ask your doctor to check for deficiencies.  Sometimes supplementation is need for a while.  

Welcome to the forum!

 

Thank you so much! Today I prepared enough smaller meals that I could eat throughout the day while I'm at work to hopefully give my body what it's looking for and not feel completely starving. I follow up with my doctor tomorrow and I will for sure ask about checking for deficiencies. He did recommend drinking digestive greens the first 30 days and that is helping a lot. Thanks again for the advice. I'm so naive to most of this information that it helps a ton. Especially coming from others who have gone through the same thing. 

Jmg Mentor
Jmg
Posted
24 minutes ago, MrsPeterson17 said:

Thank you so much! Today I prepared enough smaller meals that I could eat throughout the day while I'm at work to hopefully give my body what it's looking for and not feel completely starving. I follow up with my doctor tomorrow and I will for sure ask about checking for deficiencies. He did recommend drinking digestive greens the first 30 days and that is helping a lot. Thanks again for the advice. I'm so naive to most of this information that it helps a ton. Especially coming from others who have gone through the same thing. 

I discovered omelettes for breakfast after I went on the diet. It gave me a chance to incorporate more vegetables by stirfrying them first and using them as a filling. A 2 egg omelette with spinach, peppers and mushroom filling sets me up for the day and because of the protein in the eggs I didn't 'crash' at 11am and start snacking.  I switch the fillings each day, onions, avocados, kale, bacon etc. so it doesn't get boring. 

Ennis-TX Grand Master
Ennis-TX
Posted

I am always snacking on nuts, seeds, almond butter, and protein shakes, full fat, and high fiber foods help you stay full longer. I use vegan protein powders like NutraKey V-pro , MRM veggie elite , etc so no issues and dairy free.

PS if you ever get those crazy random cravings or need foods I complied a comprehensive list of gluten-free food alternatives and where to get gluten free foods

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

  • 7 months later...
Emily W Rookie
Emily W
Posted
On 6/27/2017 at 10:03 PM, MrsPeterson17 said:

Today marks day 7 gluten free... I must say I feel a tremendous difference in my energy level and feel like I don't need my ADHD medication as much

I am so happy for you! I am finding the exact opposite. I am also day 7 of being gluten free and I am EXHAUSTED. All hours of the day. Has anyone else had this experience? 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.