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Orange county ca referral

Jules22

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Jules22 Apprentice
Jules22
Posted

Looking to see if anyone on here is from Orange county ca and could give us a referral.  I posted a couple of days ago about my type 1 daughter testing positive for the ttg iga antibodies (greater than 100)  her IgA immunoglobulin was 78--just slightly lower than range and I'm looking to get her seen by a gastro as soon as possible since she is only home from college until August.  She is still seeing a pediatric endocrinologist and was referred to a pediatric gastro but they are unable to even see her for an appointment until the end of July--then we would still need to schedule a biopsy!

 

Not only do I want to get this sorted out as soon as possible due to her going back to school--she is also experiencing lots of symptoms and is feeling unwell most of the time.  Stomach issues-pain in her legs-she seems very pale--I think anemic?

 

Since she is aging out of pediatrics---I would be open to either a pediatric or an adult gastro who specializes in celiac.  Anybody have any referrals?

 

Thanks!

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cyclinglady Grand Master
cyclinglady
Posted

A great celiac research group is located at UC San Diego.  Worth a drive.  

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Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

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Jules22 Apprentice
Jules22
Posted
  • Author
29 minutes ago, cyclinglady said:

A great celiac research group is located at UC San Diego.  Worth a drive.  

Open Original Shared Link

Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

Open Original Shared Link

Thank you!  I'll check it out.

TexasJen Collaborator
TexasJen
Posted

There is also a celiac center at UCLA - Dr Weiss

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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