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Orange county ca referral


Jules22

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Jules22 Apprentice

Looking to see if anyone on here is from Orange county ca and could give us a referral.  I posted a couple of days ago about my type 1 daughter testing positive for the ttg iga antibodies (greater than 100)  her IgA immunoglobulin was 78--just slightly lower than range and I'm looking to get her seen by a gastro as soon as possible since she is only home from college until August.  She is still seeing a pediatric endocrinologist and was referred to a pediatric gastro but they are unable to even see her for an appointment until the end of July--then we would still need to schedule a biopsy!

 

Not only do I want to get this sorted out as soon as possible due to her going back to school--she is also experiencing lots of symptoms and is feeling unwell most of the time.  Stomach issues-pain in her legs-she seems very pale--I think anemic?

 

Since she is aging out of pediatrics---I would be open to either a pediatric or an adult gastro who specializes in celiac.  Anybody have any referrals?

 

Thanks!


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cyclinglady Grand Master

A great celiac research group is located at UC San Diego.  Worth a drive.  

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Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

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Jules22 Apprentice
29 minutes ago, cyclinglady said:

A great celiac research group is located at UC San Diego.  Worth a drive.  

Open Original Shared Link

Consider calling the Ped GI daily to see if there are any cancellations.  

Or check this directory from the Celiac Foundation:

Open Original Shared Link

Thank you!  I'll check it out.

TexasJen Collaborator

There is also a celiac center at UCLA - Dr Weiss

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    • RMJ
      A much better suggestion than that of the new doctor!
    • Jay Heying
      Excellent idea, thank you. Jay
    • trents
      Have you considered putting her on the autoimmune protocol diet? 
    • stephaniekl
      I suggested she just not eat gluten ans still have the scope because of the pain she has been having.  She has lost significant weight and is failure to thrive at almoat 21.  She has had GERD and bleeding ulcers previously and is having those issues now.  She also has systemic sclerosis, so we know those things are issues with that.  We will find her a new doctor back home too. 
    • RMJ
      Not only is the doctor being ridiculous, having her make herself ill so he can re-diagnose her already diagnosed celiac disease, but one week of gluten, while able to cause GI symptoms, might not be enough to cause new damage visible with a biopsy. So if she follows his advice he might say she doesn’t have celiac disease! She needs a different doctor.
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