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Pre diagnosis

Audi711

By Audi711
in Related Issues & Disorders

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Audi711 Newbie
Audi711
Posted

So I know topic has been explored before but here goes

trying to get a diagnosis 

brother type 1 diabetic at age 17

I had my gallbladder removed at 40 with resulting IBS

Anxiety off and on for years 

symmetrical blister like rash on palms for years. Comes and goes mostly mild 

I usually eat low carb diet to help with IBS

poor teeth enamel

all celiac test result Iga Tttg Ttta EMA were normal. But I was on a Gluten lite type diet. I  ate occasional gluten Probably 80%. Less than the average person. No special cross contamination precautions taken. Just picked the croutons out of the salad used regular shampoo shared utensils  etc ..

I was having an exacerbation of IBs symptoms and rash at the time of  celiac testing

are the blood test results like inaccurate  ?  Seems like if I was having symptoms the antibodies would be present  I don't know  

 

 

 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome.  You might consider asking for the DGP celiac tests.  I personally have never had a positive on the TTG or the EMA -- even on follow-up testing, yet my biopsies revealed intestinal damage.  The other thing to consider is that some 10% of celiacs are seronegative.  

Learn more about the complete panel:

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Audi711 Newbie
Audi711
Posted
  • Author

Thanks cycling lady. The saga continues ....

Jmg Mentor
Jmg
Posted
6 hours ago, Audi711 said:

 Seems like if I was having symptoms the antibodies would be present  I don't know  

Stay on gluten. Keep pushing for answers. Get as comprehensive testing as you possibly can. If celiac is finally excluded do not discount the possibility that gluten is a problem for you nonetheless:

Open Original Shared Link

At that point you have nothing to lose and potentially much to gain from trialling the gluten free diet. 

Best of luck! :)

Audi711 Newbie
Audi711
Posted
  • Author

Thanks for the advice. Will do ?

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