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Had my endoscopy today

KIMKABOB

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KIMKABOB Newbie
KIMKABOB
Posted

I have two children whom are dx with celiac.  I've had stomach/intestinal issues since childhood so I finally got my biopsy today.  The biopsy results won't be in till next week but they did find Barrett's Esophagus, small hiatal hernia, gastritis in the antrum and a normal looking duodenum.  I was gluten free for two years a time ago and my stomach and gut pain went away, as did the joint pain in my wrists, fingers and ankles.  So I am definitely gluten intolerant but when I was gluten free, I didn't worry about bread crumbs in the butter or using a separate toaster.  I'm a bit nervous and overwhelmed with imagining being so strictlly gluten free as celiac's have to be.  My kids who have it are adults and are managing fine but are still suffering vitamin deficiencies and other issues.  I couldn't eat for two days before my test (they also did a colonoscopy) and as hungry as I got, my stomach pain went away.  I just wish the results were in now!!

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cyclinglady Grand Master
cyclinglady
Posted
4 hours ago, KIMKABOB said:

I have two children whom are dx with celiac.  I've had stomach/intestinal issues since childhood so I finally got my biopsy today.  The biopsy results won't be in till next week but they did find Barrett's Esophagus, small hiatal hernia, gastritis in the antrum and a normal looking duodenum.  I was gluten free for two years a time ago and my stomach and gut pain went away, as did the joint pain in my wrists, fingers and ankles.  So I am definitely gluten intolerant but when I was gluten free, I didn't worry about bread crumbs in the butter or using a separate toaster.  I'm a bit nervous and overwhelmed with imagining being so strictlly gluten free as celiac's have to be.  My kids who have it are adults and are managing fine but are still suffering vitamin deficiencies and other issues.  I couldn't eat for two days before my test (they also did a colonoscopy) and as hungry as I got, my stomach pain went away.  I just wish the results were in now!!

Welcome, Kim!  

It is hard to wait for test results!  Did they run a celiac antibodies test as well?  My GI told me that visually everything looked good, but my biopsies revealed villi damage.  Keep us posted.  

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Hi and welcome. I was told I had Gastritis and Barrett s esophagus as well upon immediate follow up after my endoscopy/colonoscopy. I was put on ppi' s and zyrtec  prior to my celiac gluten challenge. I am never certain what role they played in my testing stage or results.

I do know my symptoms while on the two were not as  extreme bloating wise but I developed joint pain  I never had. I was off gluten for 3 1/2 years prior to a bad restaurant screw up. Yep -Fed me gluten and despite me quickly realizing it the damage was done. That's when I went for testing because my body's response was even worse than when I ate gluten regularly.

Well after all the money etc and coming out of the procedure immediately to cranberry juice and crackers ?  Yes giving crackers to someone who came to your hospital for CELIAC testing. My testing was often given at the wrong time or wrong test etc. I was unable to consume more than 6 days of gluten in succession. Don't ask. No joke my husband thought perhaps it was best to heal and no longer pursue testing or follow up with that hospital. My insurance company would not pay for the next doctor procedure they wanted to send me to, to cut up my esophagus. I had no symptoms of acid reflux.

I am back to square one again at home healing from the gluten challenge. I could not finish and ironically suffering other food intolerance s as well. I feel the esophagus damage was due to the gluten and they didn't see more damage because I was unable to consume gluten past day 6.

I do hope your experience is/was better than mine. And that you find your answers quickly and painlessly. It is good you have 2 children who can support you on this journey as well as these message boards.

Best Wishes

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