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Recently Diagnosed...many questions

johnojohno

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johnojohno Apprentice
johnojohno
Posted

Hey guys

The topic title is actually misleading a little, I had an endoscopy in december, was told it was a little inflamed and they were pretty sure it wasnt celiacs, just a minor gluten intolerance. 

Long story short, its now July, had to cancel appointments due to moving to london. tried ringing for results for a long time. Nothing. Last week, find out I am celiac with some eroded Villi.....from December

Anyway. I have been gluten free for 2 weeks. I have had problems with kidneys aching, stomach pains, bladder pains, all sorts. before hand, I cut the gluten down, but was not entirely gluten free. I was told that it was early stages. 

 

Gluten Free I am not finding so hard, but I am waking up EVERY morning with stomach pains still. Or bladder, or whatever. Ill go back to the docs soon. Ive been having a lot of fruit and I am wondering if the fibre is not letting my stomach settle. Also that dairy products might be causing the issue. I was basically trying to absorb some nutrients to get rid of my hurrendous exhaustion, I cant be malabsorbing as I still have Villi. 

 

Any advice, anything would be great

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Ennis-TX Grand Master
Ennis-TX
Posted

Drop the dairy and if your eating any drop oats. Enzymes to digest lactose are produced by the tips of the villi, so your going to have issues with til they heal. Remove for a few months at least change over to a nut based milk, some hard cheeses might still be fine but you might want to change over to vegan/dairy free versions of it for a while then try reintroducing them.

 Fruits yeah large amounts of sugar are more of a issue then the fiber and bother are going to cause bloating, gas, etc. Try eating more dark green leafy veggies, smaller amounts of fruit and eating nuts, seeds, etc in there to up fiber without the sugar and get some fats in there that way,

If you eat meats stews, soups in large pots are going to be your friend for awhile easy, simple, cheap, and can be done in batches, and portioned off for a week at a time.

Check out the 101 thread for more info, I think some of our EU members can help you more with finding products that I can, same with supplements.

Cross contamination and chances your still eating gluten unknowingly are highly possible there is a HUGE learning curve refer to hte 101 thread for more info.

That covers the basics. welcome to the club?

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

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