Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


Mandysue

Recommended Posts

Mandysue Newbie

I'm 8 weeks gluten free, got diagnosed with celiac through the blood test and scope.  I went through the gluten withdrawal which was awful...I felt so tired like when I was pregnant!  I have my energy back, but I'm back to having horrible gas pains every night and being bloated and diarrhea every morning.  Everything just goes straight through me.  I've cut out dairy, stopped eating oats, and I'm taking all the supplements recommended.  But I feel worse then I did before diagnosis!  Is this normal?  Shouldn't I start feeling better by now?  And turning to google only stresses me out thinking I need to change my diet completely, again!  I have three small children, and this is already so overwhelming.  Any suggestions?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

 Sounds like gluten might have snuck back into your diet, either a condiment, spice, a contaminated pot, utensil, bowl, or cup. Is your whole house gluten-free? Are you still fixing gluten meals for the kids? Once you go completely gluten free after the first few months many become hyper sensitive to gluten, where as a tiny amount of CC throws it all off the cliff like all hell broke loose in your guts. Double check back over everything. Read the 101, clean out and double check everything, I found freezer paper/butcher paper to make a nice clean work area and clean up a breeze, foil line pans etc. Cheap starts with cookware are to use microwave cook ware from nordicware, crock pot liners, and disposable or new utensils/cookware.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Try keeping a food diary with a list of everything your eating, include every condiment/spice etc. Try to find a common denominator, Rotate your meals using different foods, cuisines, and source that are gluten-free. You might find some other foods that offend your gut, as many of us also find or develop other intolerance in the first few months.

cyclinglady Grand Master

I am sorry that you are sick!  Ennis has offered some great advice.  With small children, they can be glutening you.  I recall member Jebby getting glutened by her kids.  She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc.  Jebby had the household go gluten free.  That might be something to consider.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,770
    • Most Online (within 30 mins)
      7,748

    Darryl Renee
    Newest Member
    Darryl Renee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.