Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son not understanding my diagnosis


Deades

Recommended Posts

Deades Contributor

I am 7 weeks diagnosed with silent celiac.  I am doing great and feel like  I have a good handle on everything.  What I am struggling with is my 21 year old son not understanding my diagnosis and the importance of avoiding cross contamination and why all of a sudden I can't have a Cookie, piece of cake, etc..   Since I don't have physical symptoms, he doesn't think it will hurt to have a piece of cake or something else.  He doesn't yet know that I have contacted our doctor to have both my kids blood tested.  Is there any advice on how to convince him the severity of following a strict gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jays911 Contributor

When I get glutened, I cough. Loud.  for 20-30 minutes.  Once people hear that, they take it seriously.  Refer your son to the newbie thread. If he still doesn't get it, kick him in the posterior. Hard!  

pschwab Enthusiast

Have him read about the disease and the multitude of repercussions that occur from gluten consumption that have nothing to do with "classic stomach" issues. Not following a strict gluten free diet can lead to terrible diseases because your body will be so weak and damaged. When my son was diagnosed, reading about the disease made a big impact on our family members. Good luck and stay strong!

Victoria1234 Experienced

Tell him asap to expect to get blood drawn next week or whenever the appt. is. My boys never like surprise medical exams!

Deades Contributor

When I was diagnosed, I told both kids they will have to be tested. They don't know it will be happening sooner rather than later.

Gemini Experienced
14 hours ago, Deades said:

When I was diagnosed, I told both kids they will have to be tested. They don't know it will be happening sooner rather than later.

If your son is 21 years old, then I am not sure you can force him to be tested. He's of age. 

It is huge problem.  I have an extended family member whose early 20 something daughter is a diagnosed Celiac and she will not follow the diet.  Her mother is so worried because she is always unwell and in pain but will not follow a strict diet.  Too inconvenient at this stage of the game.  Because of her age, her mother cannot force her to do anything.  This is the hardest part of Celiac Disease.  I wish you a lot of luck convincing him!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Fiber Supplement

    2. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    3. - RMJ replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    4. - kpf posted a topic in Introduce Yourself / Share Stuff
      0

      Vegetarians and vegans with celiac disease

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,337
    • Most Online (within 30 mins)
      7,748

    SpicyNate
    Newest Member
    SpicyNate
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @Trish G to the forum. Hard or lumpy stools and infrequent bowel movements.  My brother likes Phillips Stool Softener, Ducolate Sodium.   Just a question. Was the benefiber helping?
    • kpf
      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.