Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What does my celiac blood test results mean?


Msgabbyv

Recommended Posts

Msgabbyv Newbie

Hi there! So a little back story to start:

I have been trying for the past year and a half to convince doctors to help me with my stomach problems, and after MRIs CAT scans and ultra sounds have turned up nothing I have become desperate.  My primary physician had blanketed all of my problems into Anxiety and depression and had refused to even do metabolic panels. Pretty much she just thinks I've stepped off the deep end and my mental state is what is triggering all of it. She even made me take a month off of work. Which did not help by the way. All of this just makes me feel like I'm may be just going crazy,  that its just something i made up in my head!

I didn't know about celiac until a new coworker,  who has it ,said my symptoms sounded like celiac. I did some research and boy is it similar. 

My doctor said it was incredibly unlikely and too keep to the antidepressants. I literally had too go to a nurse practitioner just to get a referral to a GI specialist.

Anyway I finally got an appointment! The specialist said it is unlikely too, but that she would test me anyway.  She has yet to call me with the results but I got an email with them,  I just don't understand what the numbers mean.  If anyone happens to be able to translate I would really appreciate it.  I am at my wits end just waiting!

Results

IgA- Sufficient 

Gliadin IgA AB-  76.4 u/ml

Tissue transglut ab iga -  >250

 Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
33 minutes ago, Msgabbyv said:

Hi there! So a little back story to start:

I have been trying for the past year and a half to convince doctors to help me with my stomach problems, and after MRIs CAT scans and ultra sounds have turned up nothing I have become desperate.  My primary physician had blanketed all of my problems into Anxiety and depression and had refused to even do metabolic panels. Pretty much she just thinks I've stepped off the deep end and my mental state is what is triggering all of it. She even made me take a month off of work. Which did not help by the way. All of this just makes me feel like I'm may be just going crazy,  that its just something i made up in my head!

I didn't know about celiac until a new coworker,  who has it ,said my symptoms sounded like celiac. I did some research and boy is it similar. 

My doctor said it was incredibly unlikely and too keep to the antidepressants. I literally had too go to a nurse practitioner just to get a referral to a GI specialist.

Anyway I finally got an appointment! The specialist said it is unlikely too, but that she would test me anyway.  She has yet to call me with the results but I got an email with them,  I just don't understand what the numbers mean.  If anyone happens to be able to translate I would really appreciate it.  I am at my wits end just waiting!

Results

IgA- Sufficient 

Gliadin IgA AB-  76.4 u/ml

Tissue transglut ab iga -  >250

 Thank you!

Welcome! 

You did not provide the lab ranges, but I suspect that you exceeded them!  My best guess is that your lab stats that anything over 20 is a positive.  I am not a doctor, but if my guess is correct (about the lab ranges), you probably have celiac disease,  the next step is to obtain biopsies via an endoscopy.  You might consider doing them to get a solid diagnosis, since your doctors have not been very supportive.  You might even consider a celiac-savvy GI.  

Oh, the first test is just a control test indicating that the 2nd and 3rd tests are valid.  

I can tell you that anxiety and depression are common for celiacs!  It can resolve on a gluten free diet.  But do not go gluten free until you have completed all testing.  

Not all celiacs have GI issues.  I presented with anemia.  I was a bit crazy too, but I was going through menopause at the same time.  But....it was gluten all along (though going through menopause did not help!)

We are here to help!  

tessa25 Rising Star

Wow! If your ranges are 20 or lower like cycling lady said you have to have celiac (not a doc). Those numbers are high! Stay on gluten until the endoscopy is done. Congratulations on now knowing that all you have to do is be extremely strict on the gluten free diet. It could take a while for your symptoms to go away.

 

ravenwoodglass Mentor

If your doctor doesn't give you an apology you might want to find a new GP. Do keep eating gluten until all testing related to celiac is finished and then get strictly on the diet. Use the time until your endo, if you are having one, to learn as much as you can about what you need to do to keep safe. The newbie 101 thread at the top of the coping section will be helpful and ask any more questions you need.  Do talk to your doctor before stopping the antidepressent as some need to be tapered off. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.