Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First test


dhodgson7

Recommended Posts

dhodgson7 Newbie

Hi all,

 

so ive been tested for Coeliac Disease due to lethargy, brain fog, anxiety and I have MTHFR. The results are below. Is another test available? Did I miss a test? 

 

tTG IgA Abs 1U/ml.   ( <7 )

Deamidated Gleason IgG Abs 1U/mp ( <7 )

IgA 1.6g/L ( 0.7 - 4.0 )

 

Ive had a 23andMe test done which says

HLA-2QA2 Risk Allele = A Your Alleles = AA Your Result +/+

 

thanks

Dave


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 hour ago, dhodgson7 said:

Hi all,

 

so ive been tested for Coeliac Disease due to lethargy, brain fog, anxiety and I have MTHFR. The results are below. Is another test available? Did I miss a test? 

 

tTG IgA Abs 1U/ml.   ( <7 )

Deamidated Gleason IgG Abs 1U/mp ( <7 )

IgA 1.6g/L ( 0.7 - 4.0 )

 

Ive had a 23andMe test done which says

HLA-2QA2 Risk Allele = A Your Alleles = AA Your Result +/+

 

thanks

Dave

Hi!  

Some 30% of the population carries the genes that can develop into celiac disease.  Only a very few actually do.  This test is used usually to rule out celiac disease.   The other tests measuring antibodies?   Do you have the ranges?  Every lab is different.  

TexasJen Collaborator

I believe the American Gastroenterology association says that screening for celiac is just the Anti-TTG IgA and a total IgA level if you have low suspicion and the full panel if you have a high suspicion. The test missing from yours that would make it a "full panel" is an endomysial antibody.

Do you have a family history?

 

dhodgson7 Newbie
7 hours ago, cyclinglady said:

Hi!  

Some 30% of the population carries the genes that can develop into celiac disease.  Only a very few actually do.  This test is used usually to rule out celiac disease.   The other tests measuring antibodies?   Do you have the ranges?  Every lab is different.  

Hi Cyclinglady,

the ranges are in brackets.

rgds

Dave

cyclinglady Grand Master

Okay, I am not a doctor, but based on just these results, you do not have celiac disease (and you know that already).    But there are other things that might come into the diagnostic equation and you should discuss with your doctor.  Before asking for additional celiac testing, do you have any these other risk factors (besides the genes)?  

For example do you have any relatives who have been diagnosed with celiac disease or another autoimmune disease?  Do you have any other autoimmune diseases?  

Read about the risk factors for developing celiac disease here:

Open Original Shared Link

in my case, my GI ordered the entire blood panel because I had another commonly associated AI disorder, Autoimmune Thyroiditis (Hashimoto's).    My Mom and sibling have autoimmune thyroiditis, and my Grandmother had RA and Lupus.   I also had unexplained anemia all my life.  

celiac disease Blood Panel:

  • TTG IgA and TTG Igg
  • DGP IgA and DGP IgG
  • EMA IgA
  • IgA Deficiency (used as a control test in this case.  Validates all IgA tests e.g. TTG IgA)

 

While you have issues like anxiety and brain fog, those are often common with other autoimmune disorders or other illnesses.   So, it is difficult to base a diagnosis on symptoms.  

Talk about the results with your doctor.  If celiac disease is ruled out, consider testing the diet.  You might feel better!  In any case, keep advocating for your health.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.