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News: Celiac.com: The truth on gluten: Celiac vs. gluten intolerance


Scott Adams

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Scott Adams Grand Master

Gluten intolerance and Celiac's Disease appear to be on the rise. ... I've seen it happen with my father when he has eaten “gluten-free” listings on ...

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artistsl Enthusiast

I would argue that NCGS is a worse prognosis. Many who are afflicted suffer from neurological and psychiatric symptoms ranging from psychosis to epilepsy to MS like symptoms. It should not be diminished as it has been in this article.

Ennis-TX Grand Master

I find it so amusing how much this article down plays the gluten enzyme BS meds that have been featured here for years. I really love the finishing part of this article...so saving this part of it. On a side note everyone is different some NCGS people have worse reactions involving gluten ataxia. I mean gut damage takes 2-5 years to heal gluten-free.....nerve and brain damage takes decades to never.  You should never down play another persons medical condition, you do not know how bad their version is, how it effects their body, and if you do not have it and live life in the way they do you can not comprehend how hard it might make their daily lives and how it effects them.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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