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Does It Get Better?

StrongerToday

By StrongerToday
in Coping with Celiac Disease

Recommended Posts

key Contributor
key
Posted

Ev,

Good for you!!! Guess I should stop pouting and go cook! LOL! IT does save money not eating out.

Monica

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StrongerToday Enthusiast
StrongerToday
Posted
  • Author

It's funny - I was never one to cook either... but... a girls gotta do what a girls gotta do!! Do you have any good cookbooks? I search my library for them and try to make at least one new thing every week or two. A lot of these dishes I'm sure no one could tell they were GFDF either!

jenvan Collaborator
jenvan
Posted

Lisa-

I agree with Tiffany, if you have DH, you have Celiac...and the benefits are just as valuable to you as to the rest of us--and just as crucial. You may not have some of the worse symptoms yet, but it is only a matter ot time before the damage catches up with you...I do believe that. I'm glad I was able to encourage you a bit. Please let us know when you do revisit the subject--many of us care about you and the decision you make!

frustratedneicey Apprentice
frustratedneicey
Posted

I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness. As everyone knows, this is a grieving process, and good coping skills will go a long way. I only go once every two weeks, so it is not so bad. I am a divorced mother of 3, with a boyfriend and his child, and I am also ill with what they are coming closer to diagnosing as MS. I go through alot of emotional and physical turmoil to get to my appointments, but,you will find time, believe me. It's worth it!!!

Idahogirl Apprentice
Idahogirl
Posted

Thank you for all of the encouragement! I have been diagnosed with celiac, I was just saying that if I don't take my dapsone, I would be miserable on the outside, so even if I wanted to cheat or quit, it wouldn't be worth it.

I have a great therapist-Jesus! He gets me through a lot.

Lisa

jenvan Collaborator
jenvan
Posted

Amen to Jesus Lisa :) Your prayer for the new year could be perserverance. Maybe the verse from James 1 can become your verse for 06..."Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." Merry Christmas!

key Contributor
key
Posted

Jen,

I try and claim that promise too. Many times when I have reached the end of my rope, I have literally begged GOd to help me and He hasn't failed me yet, but I have been at some pretty low points, so if someone needs a therapist or medicine, then I think they should. Sometimes when I get real low, I believe it is because I am not taking care of myself. I have three small children and homeschool. My daily exercise routine keeps me happy!

monica

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jenvan Collaborator
jenvan
Posted

Monica-

Sounds like you have a full house and a full plate! Glad to hear He hasn't failed you yet...me neither :) I totally agree on not taking care of oneself--when I haven't taken time--I get run down, burned out and moody quickly! (My dh can vouch for that!) Merry Christmas!

christianne Newbie
christianne
Posted

I would like to add my thoughts on effexor as well. I had tried, I think< just about every pill out there. I didn't want to rely on Xanax b/c it is so addictive. Effexor has been a life saver for me. I function in life without the panic attacks and my moods are more even. If you are having anxiety, don't feel weird about taking medication for it. The difference you will feel in your quality of life will be so much better. Effexor has been great for me, unfortunately, though, there is no generic for it and it can be expensive - even with insurance. Good luck!

darlindeb25 Collaborator
darlindeb25
Posted

What does steak, cheese, and/or tuna have to do with Celiac disease or gluten intolerance? I'm new to this forum and just recently finding out about Celiac and possibly tying it to my ailments. Are these foods related somehow?

I wanted to add my thoughts to this. I dont eat any beef anymore, it's too hard on my stomach--beef is one of the toughest foods to digest. Cheese can be a problem for anyone with a problem with dairy--thank God I never had that intolerance. Tuna can be bad for the celiac who cant tolerate soy--there are a few brands that do not use soy for their vegetable broth in the tuna--I buy Bumble Bee brand tuna in the foil packets--no soy.

As for the panic, it does get better, if you are meaning true panic attacks. Panic attacks are caused by a chemical imbalance and once you get the gluten out of your system and the vitamins and minerals start working again, usually the chemical imbalance gets better too. My panic is almost gone--rarely I will still have a panic attack, but I think it is more an enviromental problem then chemical. Keep at it, things do get better. Deb

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    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
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      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
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