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Does It Get Better?


StrongerToday

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key Contributor

Ev,

Good for you!!! Guess I should stop pouting and go cook! LOL! IT does save money not eating out.

Monica


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StrongerToday Enthusiast

It's funny - I was never one to cook either... but... a girls gotta do what a girls gotta do!! Do you have any good cookbooks? I search my library for them and try to make at least one new thing every week or two. A lot of these dishes I'm sure no one could tell they were GFDF either!

jenvan Collaborator

Lisa-

I agree with Tiffany, if you have DH, you have Celiac...and the benefits are just as valuable to you as to the rest of us--and just as crucial. You may not have some of the worse symptoms yet, but it is only a matter ot time before the damage catches up with you...I do believe that. I'm glad I was able to encourage you a bit. Please let us know when you do revisit the subject--many of us care about you and the decision you make!

frustratedneicey Apprentice

I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness. As everyone knows, this is a grieving process, and good coping skills will go a long way. I only go once every two weeks, so it is not so bad. I am a divorced mother of 3, with a boyfriend and his child, and I am also ill with what they are coming closer to diagnosing as MS. I go through alot of emotional and physical turmoil to get to my appointments, but,you will find time, believe me. It's worth it!!!

Idahogirl Apprentice

Thank you for all of the encouragement! I have been diagnosed with celiac, I was just saying that if I don't take my dapsone, I would be miserable on the outside, so even if I wanted to cheat or quit, it wouldn't be worth it.

I have a great therapist-Jesus! He gets me through a lot.

Lisa

jenvan Collaborator

Amen to Jesus Lisa :) Your prayer for the new year could be perserverance. Maybe the verse from James 1 can become your verse for 06..."Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." Merry Christmas!

key Contributor

Jen,

I try and claim that promise too. Many times when I have reached the end of my rope, I have literally begged GOd to help me and He hasn't failed me yet, but I have been at some pretty low points, so if someone needs a therapist or medicine, then I think they should. Sometimes when I get real low, I believe it is because I am not taking care of myself. I have three small children and homeschool. My daily exercise routine keeps me happy!

monica


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jenvan Collaborator

Monica-

Sounds like you have a full house and a full plate! Glad to hear He hasn't failed you yet...me neither :) I totally agree on not taking care of oneself--when I haven't taken time--I get run down, burned out and moody quickly! (My dh can vouch for that!) Merry Christmas!

christianne Newbie

I would like to add my thoughts on effexor as well. I had tried, I think< just about every pill out there. I didn't want to rely on Xanax b/c it is so addictive. Effexor has been a life saver for me. I function in life without the panic attacks and my moods are more even. If you are having anxiety, don't feel weird about taking medication for it. The difference you will feel in your quality of life will be so much better. Effexor has been great for me, unfortunately, though, there is no generic for it and it can be expensive - even with insurance. Good luck!

darlindeb25 Collaborator

What does steak, cheese, and/or tuna have to do with Celiac disease or gluten intolerance? I'm new to this forum and just recently finding out about Celiac and possibly tying it to my ailments. Are these foods related somehow?

I wanted to add my thoughts to this. I dont eat any beef anymore, it's too hard on my stomach--beef is one of the toughest foods to digest. Cheese can be a problem for anyone with a problem with dairy--thank God I never had that intolerance. Tuna can be bad for the celiac who cant tolerate soy--there are a few brands that do not use soy for their vegetable broth in the tuna--I buy Bumble Bee brand tuna in the foil packets--no soy.

As for the panic, it does get better, if you are meaning true panic attacks. Panic attacks are caused by a chemical imbalance and once you get the gluten out of your system and the vitamins and minerals start working again, usually the chemical imbalance gets better too. My panic is almost gone--rarely I will still have a panic attack, but I think it is more an enviromental problem then chemical. Keep at it, things do get better. Deb

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    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
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