Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

i have issue


maxbale

Recommended Posts

maxbale Newbie

hi everyone

I read an old thread on this topic, but many responders did not understand that ELISA/ACT is different from other blood tests for delayed food sensitivities.

This is a specific type of testing for delayed (food and other) allergies that supposedly is more accurate, with fewer false positives and greater sensitivity, but the vast majority of the reviews and articles about it online are by the person/company that does the testing.  Unlike typical food allergy (IgE) or food intolerance (IgG4) testing, this tests for lymphocyte response (LRA).

I've had blood tests over the years for over 80 foods and have delayed allergies (aka intolerances) to dozens of foods (all IgE responses were negative, but many IgG4 were positive).  I try to avoid those foods - or, if impossible to avoid, rotate so that I eat them no more often than every 5 days. But avoiding so many foods means I am eating other foods more frequently and so am likely to have become sensitive to those foods.  I can't take the years to experiment starting with an elimination diet because I have a family to feed and a limited energy budget (I have ME/CFS and that comes with super-sensitivity to light, noise, and apparently foods, too).

I've been making all meals from scratch - with many ingredients coming from my own, organic garden - for decades.  I'm even trying to improve my gut flora and fauna with homemade kefir (water kefir cuz I'm allergic to dairy), raw fermented vegetables and inulin (in my homegrown sunchokes; the powdered inulin you can buy didn't have the same effectiveness).  I've been journaling daily, foods and MANY other things that can affect symptoms for 10 years, but have so many sensitivities that journaling alone is not helping.

The ELISA/ACT testing is expensive, but I'm certain I've spent more than the $1,700.00max over the years on buying and growing the few foods left that I CAN eat.  I'd sure like to have a more accurate test of which foods are causing the many delayed symptoms I am experiencing.

Please let me know if you have had the testing and whether it seemed it really was more accurate.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,065
    • Most Online (within 30 mins)
      7,748

    Hoops
    Newest Member
    Hoops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.