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How to cope


Aisling Eldridge

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Aisling Eldridge Rookie

Hi I’m 13 and I am finding this so difficult, I was diagnosed when I was 8 so near on six years ago now and I still find it incredibly hard to cope especially round friends ext. but one of my really close friends has it too but what can I do cause I can’t simply forget about it.


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ravenwoodglass Mentor

Welcome to the board. Celiac can be tough to deal with especially socially. Can you tell us more about what you are having difficulty with so we can try and help?  Feel free to ask any questions needed and do feel free to vent a bit. It is good that you have a freind with celiac but it is good to get input from others who have struggled and perhaps come out the other side.

Ennis-TX Grand Master

I have a large food list I composed of various options including the standard, instant noodle options, pizza roll, hot pockets, breaded nuggets, instant burritoes, pizza, etc. Could just keep them in stock in your house, invite friends over and provide the snacks instead of eating out or at their house. Bars, and instant microwave meals make great options with visiting friends.

What are your exact concerns and we can see how to address them.....there are some benefits with friends...like amusement parks having to allow you to bring in your own food for medical reasons so you can save them money on outings. -_- I find myself having to host for others so I can have trusted food options....

  • 2 weeks later...
Isabel Z Rookie

Hey I’m around the same age! I get it and feel the same way. I was diagnosed only over a year ago and my celiacs very hard to deal with at social events. But what ever you do, don’t cheat the diet! The consequences will come back. I’m here to chat if anyone needs support

Gail W Newbie

I get how you feel, I was diagnosed almost 5 years ago and still find challenges to overcome especially when traveling with my friends.  I get the feeling that sometimes it can seem to overshadow your life, but for me it has really shown me who some of my closest friends are as well.   My friends always find it funny and joke that I eat my way thru school classes, because I ALWAYS have ‘me proof’ snacks on me to eat so I’m never hungry when I’m away from home for longer than I thought, or can’t get food while we’re on the go!!

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    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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