Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need your analysis

CeliacMan2112

Recommended Posts

CeliacMan2112 Rookie
CeliacMan2112
Posted

Hello, wondering if you can please shed some light on my situation. I have been having diarrhea now for 5 weeks everyday. My doctor is on vacation right now however I went to Urgent Care and had a blood test done for celiac disease and  it appears to have come back positive; however since my doctor is on vacation I am unable to 100% confirm this. Here are my results please tell me what you think. I have included the three tests that I believe we need to look at. The E.S.R test is inflammation marker. What's weird is the result for celiac does not give me the actual number only that it's greater then > 160

Thanks for your effort.

1. transglutaminase iga ab -   

> 160(A)

2. IgA - 2.79 

3. E.S.R.  - 30

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
28 minutes ago, CeliacMan2112 said:

Hello, wondering if you can please shed some light on my situation. I have been having diarrhea now for 5 weeks everyday. My doctor is on vacation right now however I went to Urgent Care and had a blood test done for celiac disease and  it appears to have come back positive; however since my doctor is on vacation I am unable to 100% confirm this. Here are my results please tell me what you think. I have included the three tests that I believe we need to look at. The E.S.R test is inflammation marker. What's weird is the result for celiac does not give me the actual number only that it's greater then > 160

Thanks for your effort.

1. transglutaminase iga ab -   

> 160(A)

2. IgA - 2.79 

3. E.S.R.  - 30

 

Welcome! 

I am not a doctor, but it appears that your TTG is “off the charts”.  Most likely celiac disease.  Keep eating gluten and get a referral to a GI.  The next step in confirming a diagnosis is to obtain intestinal biopsies via endoscopy.  The IgA test, in the case of celiac testing is just a control test.  Confirms that the TTG IgA test worked.  No range on the ESR test, but I assume it is elevated?  

In the meantime, consume 1/2 slice of bread or equivalent per day.  Many celiacs suffer from a temporary lactose intolerance, so cut out dairy or take lactose and that may reduce your current symptoms.  

Learn more:

Open Original Shared Link

 

CeliacMan2112 Rookie
CeliacMan2112
Posted
  • Author

Hello thanks for your response. My ESR test result of 30 is above the normal range of 0-20. In regards to the gastrologist, it's going to be a while before I can get in and see one since there is a backlog of referrals. For now I'm going to assume I'm full blown celiac and start a gluten-free diet. I have to do that now because I'm having diarrhea every day and it's starting to become a very big issue. It's affecting my quality of life big time. 

My next question is how long will it be before I see an improvement in my diarrhea symptoms after starting the gluten-free diet?

cyclinglady Grand Master
cyclinglady
Posted

Okay.   Keep keep in mind that you will have to go back on gluten for the endoscopy 2 to 4 weeks prior.  Consider investigating the possibility of a cancellation.  

Healing?  It can take a few weeks, months or years depending on collateral damage while learning the gluten free diet.  Because you have diarrhea, I would recommend ditching dairy and sticking to Whole Foods you prepare yourself.  Do not go out to eat until you feel better and can take the risk.  Eat meats, rice, veggies and fruit.  I found that stews and soups — anything mushy can be easer to digest until you see some healing.  Those are my “go-to” Foods when I take a hit because eating ANYTHING can hurt!  If you are lucky, dairy will not be an issue for you.  Expect some additional food intolerances until you heal (very common).  

Take care!  Read the Newbie 101 thread located under the  “Coping” section of the forum.   You should see some improvement hopefully within a few weeks.  

Ennis-TX Grand Master
Ennis-TX
Posted

Ditto on the above advice, ditch the dairy and oats. Go whole foods only, and keep a food diary. Many find other food intolerance issues arise, and have to remove other foods for a while. I turn to soft omelettes often, 2 parts eggs, 1 part nut milk, few tbsp of seed meal or nut meal, blend it up for a base (Personally go 220g egg whites, 100g nut milk, 2tbsp coconut flour, 2tbsp nutritional yeast, and 2tbsp ground flax/chia/almond to add fats and fiber) throw in chopped fresh veggies and cook it up as a super soft/fluffy omelette/quiche. or scramble it....some more flour and flax makes a grea waffle batter lol. I also do veggie stir fries, nut meal porridge, and soups https://www.celiac.com/forums/topic/91878-newbie-info-101/
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

 

CeliacMan2112 Rookie
CeliacMan2112
Posted
  • Author

Thanks again to all your responses. Take care 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    2. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    4. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.