Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplements


Danarae

Recommended Posts

Danarae Newbie

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
5 minutes ago, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.  

The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.  

 

Open Original Shared Link

 

Jmg Mentor
On 1/23/2018 at 6:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Hi and welcome :)

Gluten bread etc is fortified with b vitamins, iron etc. So if you take that out of the diet you may want to replace, ideally with foods but supplements can help.

I also take Vit D (we dont see much sunshine here in the UK) and magnesium, zinc and calcium which seems to really help me mentally. 

For healing the gut you may want to check out paleo sites for info on making bone broth. Also consider probiotics and this page has some foods to try and incorporate:

Open Original Shared Link

Good luck!

Matt

Ennis-TX Grand Master

I know many need magnesium and the full spectrum of b-vitamins niacin, iron, D, C and folate can be others. IF your asking for a targeted celiac vitamins/shake Pioneer Labs specializes in a celiac shake and vitamins. Personally I use Liquid Health for most of mine as I like the liquid in a drink concept over adding more to the handfuls of pills I take. The Stress & Energy and Neurological Support 1 tbsp each 3 times a day does me great, and I use their vitamin D as I need it. All sublingual liquids, I also rotate between Doctores Best Magnesium and Natural Vitality Calm Magnesium and dose to tolerance. I take other stuff but for other issues, IE I take Marshmallow and Slippery elm for my Ulcerative Colitis, I take vitamin C since I can personally not eat fruit, I take a collagen and joint supplement since I can not consume meats, Pancreatic enzymes since I have issues with enzyme production, but again these are all just things I take to fix other issues.

selectivefocus Enthusiast
On 1/23/2018 at 1:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Eat whole food as much as possible and get a sublingual vitamin d supplement. Life extension and superior source are excellent. If you are anemic, red meat is your friend. Basically, even though it's easier to transition by purchasing all the processed gluten free packaged foods, you need whole foods to heal. I eat a lot of meat, veggies, and butter, and my hair and nails came back within 6 or 7 months. You also might find you have additional food intolerances over time. Over all, whole foods, natural ingredients, and listen to your body.

plumbago Experienced

I recommend getting labs drawn to know the various vitamin and mineral levels before you start supplementing. Eat gluten free food that agrees with you, initially. The advice to eat veggies and fruit and whole foods is of course good, but you also have to know what works for you and your stomach in general.

Ask -- how damaged is my gut? Did you have an endoscopy with biopsy?

Danarae Newbie

I did not have an endoscopy. I heard the results can be spotty 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danarae Newbie

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

cyclinglady Grand Master
18 hours ago, Danarae said:

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

If you have been grain free for a long time, you were lucky to get a positive in the celiac panel.  Gluten must have been in your diet all along.  Be sure to check all labels.  

You might consider getting an endoscopy or a pill camera.    I recently had a follow-up endoscopy.  My celiac antibodies were elevated and I was on a pretty strict gluten-free diet.  I was experiencing GI symptoms.  Discovered that my intestines were healed.  Had gastritis instead most likely from my Hashimoto’s Thyroiditis.  No H.Pylori, SIBO, etc.  My niece was diagnosed with Crohn’s using the pill camera after all other tests were negative.  

It helped to really verify the condition of my small intestine as my blood tests were misleading.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...