Confused about Endoscopy Results

[lilly rose]

My haematologist referred to me to have a colonoscopy and endoscopy due to being anaemic for many years.  The haematologist also tested for Vitamin D and Folate level.  I am deficient in Vitamin D and my folate levels are low.  The initial result of my endoscopy  indicated slightly atrophic duodenum (2nd part.) The doctor took biopsy from duodenum and terminal ileum.  I had a follow up appointment and the result came back normal.

I am confused about this. My doctor previously advised me not to eat gluten because or stomach pains and pains in joints. 

 

 

 

[cyclinglady]

13 hours ago, lilly rose said:

My haematologist referred to me to have a colonoscopy and endoscopy due to being anaemic for many years.  The haematologist also tested for Vitamin D and Folate level.  I am deficient in Vitamin D and my folate levels are low.  The initial result of my endoscopy  indicated slightly atrophic duodenum (2nd part.) The doctor took biopsy from duodenum and terminal ileum.  I had a follow up appointment and the result came back normal.

I am confused about this. My doctor previously advised me not to eat gluten because or stomach pains and pains in joints. 

 

 

 

All celiac testing (blood tests and biopsies) require you to be on a full gluten diet.  It sounds like you might have already been gluten free when you had the endoscopy.  

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I am confused.  You stated the the initial endoscopy results indicated “slightly atrophic duodenum”, but that the biopsy showed it was normal.  How many biopsies were taken?    A minimum of four to six usually required because damage from celiac disease can be patchy.  

[lilly rose]

Thank you for reply. 

When I had an initial blood test I wasn't eating gluten. 

However based on research online I realised I need to be eating gluten and I had before the endoscopy

I haven't received the report from the follow up. But based on the initial report that it stated that the endoscope was inserted to duodenum 2nd part. It was described as slightly atrophic looking. They took 4 pathological samples. 

I had a colonoscopy with 60-90 view. Endoscope were inserted to terminal ileum. They took 4 samples and sent to histology.

The consultant in my report said everything came back normal. 

[plumbago]

1 hour ago, lilly rose said:

Thank you for reply. 

When I had an initial blood test I wasn't eating gluten. 

However based on research online I realised I need to be eating gluten and I had before the endoscopy

I haven't received the report from the follow up. But based on the initial report that it stated that the endoscope was inserted to duodenum 2nd part. It was described as slightly atrophic looking. They took 4 pathological samples. 

I had a colonoscopy with 60-90 view. Endoscope were inserted to terminal ileum. They took 4 samples and sent to histology.

The consultant in my report said everything came back normal. 

Hi Lilly,

This is still confusing.

Have you had two endoscopies? Your narrative about the second one is what's confusing. Perhaps if you could clear up the timeline we can respond better.

Plumbago

[cyclinglady]

It sounds like both your endoscopy and your colonoscopy were normal.  But what were they looking for or ruling  out as a source of your anemia  (celiac disease, cancer, inflammatory bowel disorder, etc)?  What kind of anemia do you have?  

Even on a gluten free diet, your anemia never resolved?  When did your doctor advise you to go gluten free originally?    How long was the gluten challenge before the endoscope?  

I am sorry that you have not found a source of your anemia.  Based on what you have told us, celiac disease can not be ruled out.   If your anemia and symptoms improved on a gluten free diet, consider staying on it.  No harm in that!  

 

 

[lilly rose]

On 2/25/2018 at 4:39 PM, cyclinglady said:

It sounds like both your endoscopy and your colonoscopy were normal.  But what were they looking for or ruling  out as a source of your anemia  (celiac disease, cancer, inflammatory bowel disorder, etc)?  What kind of anemia do you have?  

Even on a gluten free diet, your anemia never resolved?  When did your doctor advise you to go gluten free originally?    How long was the gluten challenge before the endoscope?  

I am sorry that you have not found a source of your anemia.  Based on what you have told us, celiac disease can not be ruled out.   If your anemia and symptoms improved on a gluten free diet, consider staying on it.  No harm in that!  

 

 

Thank you very much from your response. 

I had iron deficiency anaemia. 

My doctor asked me to follow a gluten free diet from November 2016. My blood seem to stabilise a bit but it drop when I got ill. 

I re-introduced  had a normal diet just before the test in January 2018. It did me stomach cramps and it my made my bowel movement odd and I weird odour. 

I am going to try and follow a gluten free diet.