Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eliminating dairy while healing

tessa25

Recommended Posts

tessa25 Rising Star
tessa25
Posted

I know it's commonly stated here to avoid dairy, but I disagree. Celiac has a higher incidence of osteopenia and osteoporosis so eliminating a main source of calcium, in my opinion, should only be done if dairy is causing symptoms.

I eliminated dairy for three months because I borderline failed a dairy scratch test at an allergist. There was no positive effect whatsoever. It was not an IGE mediated allergy. I did not feel any better at all. And my celiac blood test numbers did not improve at all (checked twice per month during that time). My gastro doc said to go back on dairy since eliminating it had no positive effect. Consuming dairy again had no negative effect.

I suspect that while dairy may cause symptoms in some people that still have damage, it doesn't do damage. So eliminating it if it bothers makes sense. But eliminating it when it doesn't cause symptoms removes an important nutrient needlessly.

So I'd say try without for a week and if digestive issues don't change for the better then put it back in.

By the way I'm on a soft food diet with lots of dairy in it and my blood test numbers have started to go down again. I should be at normal levels in a couple of months.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted
2 hours ago, tessa25 said:

I know it's commonly stated here to avoid dairy, but I disagree. Celiac has a higher incidence of osteopenia and osteoporosis so eliminating a main source of calcium, in my opinion, should only be done if dairy is causing symptoms.

I eliminated dairy for three months because I borderline failed a dairy scratch test at an allergist. There was no positive effect whatsoever. It was not an IGE mediated allergy. I did not feel any better at all. And my celiac blood test numbers did not improve at all (checked twice per month during that time). My gastro doc said to go back on dairy since eliminating it had no positive effect. Consuming dairy again had no negative effect.

I suspect that while dairy may cause symptoms in some people that still have damage, it doesn't do damage. So eliminating it if it bothers makes sense. But eliminating it when it doesn't cause symptoms removes an important nutrient needlessly.

So I'd say try without for a week and if digestive issues don't change for the better then put it back in.

By the way I'm on a soft food diet with lots of dairy in it and my blood test numbers have started to go down again. I should be at normal levels in a couple of months.

 

...What nutrient benfits? Midevil times and Renascence dairy was used to make people fat...still great for that. Dairy is for bovine on a genetic level...not humans...I would not mind homosapian milk. BS aside the non dairy alternative Almond Milk, Cashew Milk, Macadamia Milk etc....all has MORE Calcium then Dairy Milk...so I have no clue what your talking about. Diary is inflammatory for many and if you have a damaged gut YOU WILL not produce the required enzymes in the amount needed to break it down and process it....top it off if you have a leaky gut...well you just made your problems worse due to all kinds of complications. This is why we suggest removing it til you at least heal, get ability to process it back up and heal the damage before you consume something that just waste space in your stomach and causes other issues.

tessa25 Rising Star
tessa25
Posted
  • Author

Nut milks have calcium added to the ingredients.

For many the gut damage is patchy, therefore nutrients from dairy are processed from the parts without damage. So unless the damage is everywhere enzymes will be produced to break it down.

8 minutes ago, Ennis_TX said:

top it off if you have a leaky gut...well you just made your problems worse due to all kinds of complications

My post states in multiple places that dairy is for people that do not have symptoms from dairy.

My gastroenterologist does not think dairy should be eliminated if it does not cause symptoms.

cyclinglady Grand Master
cyclinglady
Posted

I agree with Tessa.  There is no “one size fits all” dietary approach that will aid in healing from celiac disease.   The only common food to be avoided at all costs is gluten.   Intolerances or allergies from other foods may impact individuals differently.  

Most of us here  will advise that if your GI issues are severe when first diagnosed, to avoid oats for the first six months (this was is still being recommended by the celiac group out of Boston) and experiment with dairy as many celiacs are lactose intolerant until they have healed.  From research, celiacs may have other intolerances due to a “leaky gut” (Dr. Fasano does not like this term).  Those intolerances may improve with healing or they can be lifelong because celiacs may have other illnesses (like a true milk protein allergy).  

Going back to dairy.   Lactose intolerance is common in the world based on your genetic makeup.  It can slowly develop as you age too.   If you are a lucky celiac, you might get dairy back or you might not have ever lost the ability to digest lactose in the first place.  

 

Jmg Mentor
Jmg
Posted

Most of the time I see people advised to cut dairy out here its in the context of just starting out on the diet, particularly when initial response is problematic. Given that I think maybe 10 to 20% percentage of celiacs may experience secondary lactose intolerance due to flattened villi I don't think that's bad advice as long as the missing calcium is replaced from other sources and that once some time has passed there's a suggestion to reintroduce dairy once the vili have had a chance to heal.

On a personal note, I have, far too slowly, realised I have a casein intolerance and I'm thus very interested in the Open Original Shared Link examining possible links between milk protein and celiac / ncgs. There are undoubtedly some visitors here who would benefit from total removal of dairy, and my unscientific guess is that there are more within the celiac / ncgs population that in the general public as a whole, but the percentages are likely to be small and no-one should have to give up one of the main food groups unless it's a genuine problem for them, because as much as a pain as the gluten-free diet can be, it's a whole lot harder once you have to eliminate all dairy as well as I've found for myself since the new year!  

 

knitty kitty Grand Master
knitty kitty
Posted

This article has a great explanation about milk digestion in Celiacs!

Open Original Shared Link

Some of us are just lucky and have a problem with the milk protein casein, too.  

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

 I agree there's not a "one size fits all" diet.  You have to find what works for you.  Be your own guinea pig.  I found out really quickly dairy is not for me.  It's for baby cows, like Enis says.  

 

Jmg Mentor
Jmg
Posted
4 hours ago, knitty kitty said:

This article has a great explanation about milk digestion in Celiacs!

 

Open Original Shared Link

 

That is a great article. Thanks for those links as well, Ive seen them before but its useful to see them together. I have some sympathy for the Paleo view on dairy but I also realise I am biased due to my own experiences. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted
10 hours ago, Jmg said:

That is a great article. Thanks for those links as well, Ive seen them before but its useful to see them together. I have some sympathy for the Paleo view on dairy but I also realise I am biased due to my own experiences. 

I'm so glad you found the articles helpful.  I'm a little more than Paleo prejudiced.  I found another article  that is more descriptive of my own experiences with dairy.  

Open Original Shared Link

"This is the first report to identify an association between the risk of schizophrenia and elevated antibodies to bovine casein prior to disease onset." 

And there's this article...

Open Original Shared Link

Dairy is scary.  With Celiac causing a "leaky gut" and permeable blood-brain barrier, and casein and antibodies wreaking havoc.....yogurt, cheese, ice cream and cafe au lait were really bad ideas for me.   

It's so easy to eliminate dairy for a few months and try adding it back later, than to continue consuming dairy and causing additional stress to an already stressed body.  I wish someone had told me.....

...and I hope this helps some one else.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748
    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.