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Should I do a gluten challenge on my own

im.really.a.mermaid

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im.really.a.mermaid Newbie
im.really.a.mermaid
Posted

Hi, this is my first time here ??

A bit of back story... I'm  41, and  have been mostly gluten-free for  7-8 months. I started feeling very nauseous and having bad episodes of diarrhea about that time and I started keeping track of what I was eating and realized I only got sick on the days I ate pastries,  bread or breaded products. So I thought I might be gluten intolerant and tried out a gluten-free diet. I started feeling better almost  immediately and i stopped having to spend my first year of marriage with the toilet more than my husband. Things that I didn't even think could be related to my  food, like joint pain, chronic migraines, and panic attacks  started to get better and some went away completely.

My  husband made me go to the Dr to get tested for a bunch of things because I'm extremely tired all the time and I asked to be tested for celiac to. I got  most of my labs right away and I had low folic acid and  vitamin D. Then today the Dr says my results for celiac are negative and is going to send me to a gastro Dr to see if they can find out what's wrong. 

I get very sick very fast if I eat gluten on accident. The last time it happened I was given a couple of teaspoonful of sauce on top of my "gluten free" steak. I was on the toilet with in 45 mins. 

I have or have had so many symptoms that  sound like celiac disease, but am afraid that  maybe it's not that and I'm missing something else by blaming gluten. 

 

So I'm wondering if I should try to go back on gluten now and ask to be retested when I see the  gastro Dr, or  should I wait until I see them? 

 

Thanks for any advice you can give ❤️ 

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cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, im.really.a.mermaid said:

Hi, this is my first time here ??

A bit of back story... I'm  41, and  have been mostly gluten-free for  7-8 months. I started feeling very nauseous and having bad episodes of diarrhea about that time and I started keeping track of what I was eating and realized I only got sick on the days I ate pastries,  bread or breaded products. So I thought I might be gluten intolerant and tried out a gluten-free diet. I started feeling better almost  immediately and i stopped having to spend my first year of marriage with the toilet more than my husband. Things that I didn't even think could be related to my  food, like joint pain, chronic migraines, and panic attacks  started to get better and some went away completely.

My  husband made me go to the Dr to get tested for a bunch of things because I'm extremely tired all the time and I asked to be tested for celiac to. I got  most of my labs right away and I had low folic acid and  vitamin D. Then today the Dr says my results for celiac are negative and is going to send me to a gastro Dr to see if they can find out what's wrong. 

I get very sick very fast if I eat gluten on accident. The last time it happened I was given a couple of teaspoonful of sauce on top of my "gluten free" steak. I was on the toilet with in 45 mins. 

I have or have had so many symptoms that  sound like celiac disease, but am afraid that  maybe it's not that and I'm missing something else by blaming gluten. 

 

So I'm wondering if I should try to go back on gluten now and ask to be retested when I see the  gastro Dr, or  should I wait until I see them? 

 

Thanks for any advice you can give ❤️ 

Most celiac experts advise being under a doctor’s care while attempting to do a gluten challenge.  You can be become pretty sick and react differently (usually worse based on forum member input).  

Your test results for celiac disease were most likely negative because you had been gluten free for so long (regardless of a few exposures).  All celiac testing requires you to be on a gluten diet.  You also might not have had the complete celiac panel either, but odds are the negative result was due to not consuming gluten daily.  

Consider the safe route.  If you find you can not tolerate gluten for 8 to 12 weeks for the blood test, your GI can order the endoscopy with only two weeks of gluten consumed daily.  Only you can decide what is best for you!  

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