Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5 year old results came back lower!i don’t understand

Kayleigh

Recommended Posts

Kayleigh Newbie
Kayleigh
Posted

Hi there!

 

my son has had coeliac symptoms for a while now also has an aunt with celiac disease his first screening came back with tTg 27 (I know it’s not hugely high but positive for celiac disease he has had a second lot of screening; including a genetic test (which doesn’t come back for another month) but the tTg has come back as 14. My consultant has said he didn’t expect this and that he wants home retested in 3 months. 

 

Im confused as that is still above the normal range. After his bloods we were told to put him on a gluten-free diet as he has been loosing weight and refusing foods besides apples and baked beans. We have seen an improvement after just over a week where is is not being sick in the evenings and less belly aches. 

 

No we are having to to go back to gluten. 

Are these  results still positive at 14? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pschwab Enthusiast
pschwab
Posted

It’s my understanding that ttgs below 20 is considered normal. 

RMJ Mentor
RMJ
Posted

It depends on the normal range for the lab where the test was run.  The results are in arbitrary units, not absolute amounts of antibody per milliliter of blood.  Some labs the normal range is 0-19, some are 0-3, etc.

Audrey’s Mom Rookie
Audrey’s Mom
Posted

My daughter’s levels were over 100 when she was tested last summer.  She was also positive on her scoping.  They retested her levels this month and now they are down to 28.  They go down when you stop eating gluten.  

kareng Grand Master
kareng
Posted
On 3/22/2018 at 7:15 AM, Kayleigh said:

Hi there!

 

my son has had coeliac symptoms for a while now also has an aunt with celiac disease his first screening came back with tTg 27 (I know it’s not hugely high but positive for celiac disease he has had a second lot of screening; including a genetic test (which doesn’t come back for another month) but the tTg has come back as 14. My consultant has said he didn’t expect this and that he wants home retested in 3 months. 

 

Im confused as that is still above the normal range. After his bloods we were told to put him on a gluten-free diet as he has been loosing weight and refusing foods besides apples and baked beans. We have seen an improvement after just over a week where is is not being sick in the evenings and less belly aches. 

 

No we are having to to go back to gluten. 

Are these  results still positive at 14? 

If the antibodies were high, and now, while eating gluten-free, they go down, ...that is what is expected,  your antibodies should go down on a gluten-free diet.  That doesn't mean you no longer have Celiac....it means you are treating it.

 For example,  a person with high blood pressure takes a medication that puts the blood pressure into a normal range , that does not mean they no longer have a high blood pressure issue.  The medicine controls it.  Our  medicine is the gluten-free diet. 

ch88 Collaborator
ch88
Posted

I am assuming the second test result was lower than the first, and that the tests were five years apart? (The post title is kindof confusing.)  

You said he was put him on a  gluten free diet after the blood tests. I am assuming this happened five years ago after the first test? 

ch88 Collaborator
ch88
Posted

If you are talking about blood tests on a five year old kid, how far apart were the two tests taken?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748
    Wendy Jo
    Newest Member
    Wendy Jo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      Chances of being coeliac

      By trents · Posted

      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.