Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Before40

Recommended Posts

Before40 Newbie

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
36 minutes ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

That is not a Celiac test.  So I am not sure how you know you don't have Celiac.  A lactose intolerance is quite common side effect of  Celiac

Ennis-TX Grand Master
1 hour ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

You can not diagnosis celiac with saliva and hair.....celiac is a autoimmune disease, where your immune system reacts to gluten. THE ONLY way to test is 1. Check the BLOOD for ANTIBODIES to gluten where you have to be eating it til you get them in your blood stream. 2. Checking for damage to your intestines like blunted vili by taking a biopsy of the small intestine.
Open Original Shared Link
Lactose Intolerance is a MAJOR issue with celiac as the enzymes to break ti down are not present in sufficient quantity with the damaged villi. Vitamin D is another huge absorption issue with cealic disease. SO before you go dismissing it, go get the proper blood test done. There is a company you can send the blood in yourself and get tested much cheaper then the doctors office but it is VIALS OF BLOOD.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - wellthatsfun posted a topic in Coping with Celiac Disease
      0

      still struggling with cravings

    2. - RDLiberty replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Toothpaste question.

    3. - RMJ replied to nanny marley's topic in Related Issues & Disorders
      12

      Manitol and mri

    4. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      12

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,795
    • Most Online (within 30 mins)
      7,748

    susaneschiff
    Newest Member
    susaneschiff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • wellthatsfun
      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
    • RMJ
      I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
    • nanny marley
      That seems at lot of solution to have put threw you when you already have bowel issues , I will phone them tomorrow because it's sorbitol I have reactions too, thankyou for the input how do you feel now ? I'm not sure I can keep still for that long with my back issues either unfortunately I didn't know it could take that long 😕
    • RMJ
      The solution I had to drink contained sorbitol and mannitol. I was in the MRI, lying on my back, for about 40 minutes. I was given glucagon partway through, and a gadolinium contrast agent. After I got home there was some diarrhea from the prep solution.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.