Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Continuous Weight Gain for Celiac


Sgf17

Recommended Posts

Sgf17 Newbie

 

 I was diagnosed with Celiac disease in September when liver phosphate levels were high in annual blood work. Right after that IgA and endoscopy was performed which confirmed villi damage and high inflammation. Since Sep 2017, I have been on SGF diet. The reason I went for check up in first place was low iron, Vitamin A deficiency and abrupt weight gain. In last 2 years I have gained 20 lbs which is strangely high for active life style. Since last 6 months,being on gluten free and lactose free diet but my weight is increasing and swelling on face, feet is constantly there. Some days I wake up and weight 5 lbs less and other days I am swollen and weigh much more than my normal weight. It’s surprising to doctor about why weight and inflammation can’t be controlled even though I have been working with nutritionist and following strict diet. She put me on low FODMAP diet to address intestine inflammation. It seems like now even after introducing slowly, I can’t take any lentils or other grains which used to be main source of proteins for me.  Any thing else than rice gives me stomach ache though it’s bought from gluten-free source. Being vegetarian whole my life and now gluten, lactose free, I am wondering if how can I control on weight and swelling issue. I have no thyroid issues but I am failing to control my weight even after eating control diet which is mainly Hemp protein, pumpkin seeds, other nuts, rice, potato, green vegetables, bell peppers squash. Anything else will make me highly bloated , painful stomach. Family thinks that I am paranoid and have psychological issues now. Any suggestions on reason for weight gain and uncontrollable swelling and how to take care of those. Appreciate help and thanks in advance!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Doxie Diva Newbie

I would have them check your Thyroid again, maybe see an Endocrinologist who can order more in-depth Thyroid tests, also have the Endocrinologist check hormone levels to make sure everything is normal. Also ask to be tested for the top 10 food allergies, if you haven’t already. Hormones as we know can play a big part in weight gain or loss. Hope this helps.

Ennis-TX Grand Master

The swelling etc, is commonly referred to as edema. I used to struggle with and had drink and eat duriatic foods through out the day to maintain it while avoiding sodium. Here are some things that might help
Open Original Shared Link

Past few years I adopted a keto/paleo diet avoiding all grains, starches, carbs, sugars. The keto diet naturally causes you to shed water weight. I do it with a ovo vegetarian diet myself with the occasional holiday fish/crab. I do keto to manage Ulcerative colitis (huge source of my inflammation) and the no meat/animal fats is to manage a issue with my pancreas. I like you live on stuff like nut butters, pecan, almond, walnut, pistachio (mill myself), rotating flax, pumpkin, sunflower, chia seeds on a bi weekly basis, egg whites, avocados, leafy green veggies, nutritional yeast, coconibs (1/4 cup a meal >.> I love my cocoa), vegan cheese, vegan cheese sauces (made myself) coconut flour/flakes/wraps, and grain free nut based baked goods.

Protein I often use vegan stuff like Naked Pea protein, Jarrow Pumpkin Protein, Julian Bakery makes a Pegan protein unflavored with sancha inchi protein, and one with pumpkin cinnamon  twist...their pegan bars are great also. Protes chips makes a grain free vegan chip out of pea protein that is GREAT. MRM makes a Veggie Elite blend that is alright...and I am weaning off of for my own blends. I used to use Nutra Key V-pro but again my rice issue.

On thing I learned when I first transition was that rice/grains, caused stomach distention and edema issues even rice protein without the carb caused my ankles and feet to swell slightly. Quinoa protein seems to not cause this oddly....BTW there is a supplement I found that I used to take to help might be of use to you. Open Original Shared Link

ONE other thing.. DROP THE HEMP PROTEIN, it is contaminated......I love hemp and I used to use the proteins daily. But the recent surge in popularity means other farmers that are non dedicated grow it now on rotation with wheat...using the same equipment to haul and harvest. I have tried, Nutiva, Manitoba, Foods Alive, Jarrow, and even the dedicated Just Hemp Foods came back positive....I glutened myself a few months back on a CERTIFIED gluten free hemp that I later Nima Tested positive, sent to a lab and came back positive....I keep buying it when a new lot comes out but so far over a year, 11 of 14lbs purchased contain gluten.  IF YOU want hemp, mygerbs.com offers the ONLY whole hemp seeds I have found that never had gluten, I sort them anyway by habit, then blend or stone mill into a hemp paste I use in cooking/smoothies.

Other causes could be diabetes, food intolerance/allergy, or a exposure to something even in the air.

Kim-McRae Newbie

No NUTRITIONAL YEAST!! NOT celiac friendly!!!! I'd say its your thyroid.  Add iodine to your diet. Regular Morton's salt.  And you could do a tincture...1 dropper full daily. 

Ennis-TX Grand Master
32 minutes ago, Kim_McRae said:

No NUTRITIONAL YEAST!! NOT celiac friendly!!!! I'd say its your thyroid.  Add iodine to your diet. Regular Morton's salt.  And you could do a tincture...1 dropper full daily. 

Your thinking of brewers yeast. Nutritional Yeast by KAL or Braggs is certified gluten free and not grown a gluten media, or alive. It is a great staple for vegans for vitamins and minerals. Also very useful for creating vegan cheese.

iodine is a great suggestion, I snack on gluten-free Nori, wakame, and other see veggies for mine, sodium again will lead to water retention issues in excess.

lisas11lisa Apprentice

All Grains bother me...You just have to test ur own body...also...Celiac is tied to Gallbladder problems...u may need to have a hydascan to test it's function..Goodluck!

Sgf17 Newbie
On 4/5/2018 at 7:23 PM, Doxie Diva said:

I would have them check your Thyroid again, maybe see an Endocrinologist who can order more in-depth Thyroid tests, also have the Endocrinologist check hormone levels to make sure everything is normal. Also ask to be tested for the top 10 food allergies, if you haven’t already. Hormones as we know can play a big part in weight gain or loss. Hope this helps.

Thank you for the input! thyroid and hormone test have been normal. I have scheduled the appointment for the allergy test. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bebee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Testing for celiac

    2. - K6315 replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

    3. - kate g posted a topic in Gluten-Free Restaurants
      0

      Nandos improper preparion celiac childrens food

    4. - Scott Adams replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High blood test numbers - with scales. Any advice?

    5. - trents replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,758
    • Most Online (within 30 mins)
      7,748

    Sarah Dustin
    Newest Member
    Sarah Dustin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
×
×
  • Create New...