Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Soy?!

chestnut

Recommended Posts

chestnut Rookie
chestnut
Posted

I'm brand new to these boards and love them dearly but find myself tearing my hair out because so many different answers from different people make answers hard to find.

I understand I should speak with my doctor and not get medical advice from a chatboard! But my question isn't about medical advice. It's about soybeans.

On some posts it says to stay away from soy items on others it says soy is okay.

I take vitamins and my Vitamin A & E is made up of soybean oils.

Is that okay (as a general rule) or not?

I understand that different people have different reactions, but as a whole, what's the deal with soybean oils?

Thanks for your responses!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

That's the thing - you see so many answers because there isn't just one answer. Some celiacs find that they have problems with soy, some don't. You have to figure out your answer yourself, because there's no way we can tell you. (I have seen the claim that the soy protein shows a similar sequence to the portion of wheat that bothers us, but I haven't seen anything backing that up. Doesn't mean it's not true, of course. :-) )

darlindeb25 Collaborator
darlindeb25
Posted

Hi Chestnut---I am one of the celiacs that cant tolerate much soy. I can eat products that have soy lecithin and I can tolerate the soy oil in margarines as long as it isnt the only oil. I absolutely can not tolerate soy flour or corn flour. I have googled soy and after reading about it, I dont think I would use it if I could..google soybeans and see what you think. After reading everything I can find on celiacs, seeing the numbers on how many people are intolerant of grains---I am coming to realize that grains are for fattening animals and not for us. I think sometimes it is an intolerance and sometimes a personal choice. By the way, I cant take vitamins with soy in them, they make me ill. Deb

Merika Contributor
Merika
Posted

Hi Chestnut,

There is no gluten in soy and having celiac does not mean you can't eat soy. What you are seeing on the boards is a lot of people who have additional food intolerances and soy is one of the "8 common allergens".

It seems that celiac messes with the body and food allergies or intolerances result from it. Different people will have different food problems, and to varying degrees. Many of us find, after going gluten-free for a while, that we need to eliminate additional foods (sometimes just for a few months, sometimes forever) in order to feel healthy.

The "8 common allergens" is recognized by the US FDA and is guiding food labelling laws to help us with this. Currently, I'm really annoyed because they are allowing some soy products to not be flagged on labels, but that is another issue. The eight items include soy, wheat, corn, dairy and peanuts (I can't remember the rest, google them).

Hth,

Merika

chestnut Rookie
chestnut
Posted
  • Author

Thanks for the answers! I'm telling you, this is kind of a mixed blessing.

It's fantastic in that I finally know what's wrong with me but upsetting when I read these boards and see that there's no "One way" to deal with it.

When you break a leg- You get a cast.

When you get diagnosed with celiac disease, you get so many different reactions from different people affected by different things.

It's kind of crazy what other people (all of us before we knew) take for granted in regard to the things we eat.

I find it hard to believe that the federal government hasn't made it a law that foods with gluten (or gluten mimicking proteins) don't have to be plainly labeled.

From the reading I've done it doesn't seem to be that we're any threat to the food industry as a whole. It's a small number of us.

It sure would make shopping a lot easier!

chestnut Rookie
chestnut
Posted
  • Author
Hi Chestnut,

There is no gluten in soy and having celiac does not mean you can't eat soy. What you are seeing on the boards is a lot of people who have additional food intolerances and soy is one of the "8 common allergens".

It seems that celiac messes with the body and food allergies or intolerances result from it. Different people will have different food problems, and to varying degrees. Many of us find, after going gluten-free for a while, that we need to eliminate additional foods (sometimes just for a few months, sometimes forever) in order to feel healthy.

The "8 common allergens" is recognized by the US FDA and is guiding food labelling laws to help us with this. Currently, I'm really annoyed because they are allowing some soy products to not be flagged on labels, but that is another issue. The eight items include soy, wheat, corn, dairy and peanuts (I can't remember the rest, google them).

Hth,

Merika

Thanks, Merika!

Your post cleared up a lot of the questions/frustrations I've been having while reading posts here.

Thank-you!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Chestnut,

You will also find that most of the people onthis board know more about what foods you can have and what you can't versus some doctor.

Most doctors have only seen celiac disease in a textbook or two (usually back in Med School) -- they can treat problems, sypmtoms and pains, but they can't help you with your diet (on a day to day basis).

This board will help you in you day to day life.

Ask any question you need to!!!

Its our lives and we need to support and be able to depend on each other to enjoy life to the fullest!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Many people with celiac disease have food intolerances in addition to gluten. I believe the most common ones are dairy, soy, corn, eggs, and nuts.

Guest kim07
Guest kim07
Posted
Many people with celiac disease have food intolerances in addition to gluten. I believe the most common ones are dairy, soy, corn, eggs, and nuts.

So, I know being diagnosed with Celiac Disease that sometimes the person can start to have intolerances to other foods such as soy, dairy, etc.

Someone mentioned peanuts.

I'm just curious, not worried, kind of a I guess 'Trivia Question'

Sense peanuts have the possibility of killing people that have peanut allergies,

I wonder what happens to Celiacs who suddenly can't eat peanuts anymore?

Could we really get as sick as to die from eating them? :o

I'm guessing the answer is no, but I'm just curious--

Kim 07

Merika Contributor
Merika
Posted
I'm just curious, not worried, kind of a I guess 'Trivia Question'

Sense peanuts have the possibility of killing people that have peanut allergies,

I wonder what happens to Celiacs who suddenly can't eat peanuts anymore?

Could we really get as sick as to die from eating them? :o

Hi Kim,

I've never heard of this happening. The peanut thing you're talking about is a specific kind of allergic reaction called anaphylactic shock. I've never heard of anyone developing an anaphylactic shock to any food because of celiac. A food may irritate us and make us feel sick, and may slow our health from improving, but that's all IME.

If you're ok eating peanuts now, you will continue to be. And by the way, people can have anaphylactic shock reactions to ANY food, peanut is just the most common :P

Merika

Claire Collaborator
Claire
Posted

See how different we all are!

I cannot handle things mad with soy flour. I can handle soy margarine in small amounts.

I can drink soy milk.

We are each weird in our own way. Claire

nogluten- Newbie
nogluten-
Posted

Doesnt the law regarding labelling change soon?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.