Fluttering Symptoms

[Clemo66]

I have flagged up for Celiac disease in bloods, i have fluttering in my left side and lower abdomen is this normal? Im still eating gluten as i was told too but this is happening and massive swelling of my stomach ?

[cyclinglady]

43 minutes ago, Clemo66 said:

I have flagged up for Celiac disease in bloods, i have fluttering in my left side and lower abdomen is this normal? Im still eating gluten as i was told too but this is happening and massive swelling of my stomach ?

I am sorry that you are you are unwell and uncomfortable!  The flutter could be gas as it sounds like you are bloating.  A common celiac symptom.  Take this time to eat all your old favorites.  That is what I did.  For example,  I bought cookies, had a few and then gave away the rest.  That way I would literally go through all my favorites within weeks.  I was a fiend about sourdough and I baked like crazy.  

Then I had the endoscopy, went gluten free and never looked back because feeling better trumped over consuming gluten.  I also converted all my favorites into gluten free versions, so I never have missed out on anything yummy!  

[Clemo66]

Yes im going to do exactly that and then get some new cookbooks. To be fair i like Mediterranean food and i believe thats good for Celiac Disease.   I will miss bread though its my favorite thing ever thats gutting

[cyclinglady]

The only gluten item I miss and have not been able to replicate  well has been sourdough bread.  It is a small sacrifice to pay for improved health.  

Keep eating gluten until the endoscopy is done per your doctor’s instructions.  The endoscopy is the gold standard in diagnosing celiac disease.  It can set a good benchmark for future testing and rule out other illness like H. pylori or Crohn’s.  Some folks have huge wait times (like a year), others are gravely ill, or some do not have the financially means to get an endoscopy.  If you can, get it.  You will not regret it.  

In the meantime, you can eliminate lactose (dairy).  In celiacs, villi damage prevents the releasing of some enzymes that help to digest lactose (milk sugar).  It is the most common intolerance.  Test it out.  You might find some relief.  The good news is that it is often temporary.  With healing you can get it back!  

[Clemo66]

I have crohns already 25 years i have had surgery too.  This feels like a bad flare of that but the fluttering sets it apart. Its actually that driving me insane it feels like pregnancy flutters and is driving me nuts.  Im in the UK so treatment is free for endoscopy well we pay national insurance through our wages for it.

 

Cant wait to be diagnosed as im happy to cut it out if im well again  x

[cyclinglady]

Gluten free might be your best bet after all testing is complete.    There was a recent very small study done out of Scripps in San Diego.  Researchers wanted to see if the hype over the AIP diet  ( Autoimmune Protocol) was valid.  They tested UC and Crohn’s patients who stayed on their current pharmaceutical treatments while on the diet.  After six weeks, 76% went into remission!  Amazing!  

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The AIP diet is paleo in nature and is gluten free.  So, even if your biopsy for celiac disease is negative, I would trial the diet!  My niece has Crohn’s and is doing well so far.  She is a bit too young to try a restrictive diet, but I am hoping she might change her mind.