Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Weight loss concern


manaja

Recommended Posts

manaja Apprentice

Hi , I'm slightly concerned with some weight loss I've been having , I've lost 5Ib in 7 weeks , I went from 11stone 5lb to 11stone , I weighed myself this morning , I haven't altered my diet and over the last couple of weeks , I started to eat more when I realised the weight loss was there , it has made no difference .I have been gluten free since August 2016. 

 A recent blood panel last month showed elevated calcium , high end of normal , but my parathyroid had come down to normal levels , they also did an electropheresis test for myeloma which i didn't know about , that came back negative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Eat more fats, with seeds and nuts, the zinc, iron, and healthy fats help with keeping lean muscle up. If your on dairy you might want to drop it. I assume you are on dairy or some dairy alternative with calcium enrichment? Perhaps your taking tums, or some thing else with calcium in it. All good in moderation but try to cut it in half to lower you calcium intake a bit, calcium can block magnesium absorption as they use the same channels and this can lead muscle and nerve break down in the long run. Unlike some other nutrients that are harmless with each meal some nutrients need to be taken in meal rotations if they use the same channel to optimize absorption or taken in combinations.

I use BCAAs or scoops of a vegan protein powder in shakes and to maintain my weight and build muscles. Vegan proteins like pumpkin are high in zinc, pea protein is high in iron and magnesium and various trace minerals, sancha inchi is a good in its own right high in zinc, iron, and magnesium.

manaja Apprentice

Hi , thanks for the reply, the reason my calcium is quite high is because my parathyroid gland was all out of sync when I was first diagnosed , it controls the calcium levels in the blood, my parathyroid was taking the calcium from my bones and dumping it into my blood, hence I also have osteoporosis because of this  disease. I cant understand why i'm losing weight again , going to have to keep an eye on it all.

cyclinglady Grand Master

Are you celiac?  Have you had follow-up testing?  I know I can drop weight fast after a hidden gluten exposure.  

Open Original Shared Link

manaja Apprentice

Hi , yes I’m a celiac, I had the endo done Aug 2016 , shows very smooth  intestinal walls and lots of patchy inflammation etc , my latest bloods showed a drop in my antibodies 10.7 , so down from15.5 , maybe I had gluten exposure somewhere, but it’s a little concerning to me , I still eat like a horse , 

plumbago Experienced
3 hours ago, manaja said:

Hi , yes I’m a celiac, I had the endo done Aug 2016 , shows very smooth  intestinal walls and lots of patchy inflammation etc , my latest bloods showed a drop in my antibodies 10.7 , so down from15.5 , maybe I had gluten exposure somewhere, but it’s a little concerning to me , I still eat like a horse , 

Hello,

Do you know what the cause is of hyperparathyroidism? And,
is your blood glucose ok?

manaja Apprentice

Hi , no I don’t know the cause of pars hyperthyroidism, but he did say that my level was back to normal, they didn’t test for my glucose 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maddiecl Explorer

You may want to count your calories for a week or so to make sure you are eating enough.  When I was diagnosed with Celiac I had to change my diet COMPLETELY.  I went from eating mainly carbs and dairy to eating mainly fruits and veggies and I lost about 15 pounds (that I didn't have to lose) in about 4 weeks.  My GI doc recommended that I count my calories and drink gluten-free/Dairy free protein shakes twice a day until I got the hang of the diet and found more things I could eat that were more calorie dense. Once I got my energy back and had the energy to cook and grocery shop more often eating an abundance of foods became much easier. I am now 6 months into the diet and I am keeping weight on just fine, and have gained about 5 pounds back. 

manaja Apprentice
50 minutes ago, Maddiecl said:

You may want to count your calories for a week or so to make sure you are eating enough.  When I was diagnosed with Celiac I had to change my diet COMPLETELY.  I went from eating mainly carbs and dairy to eating mainly fruits and veggies and I lost about 15 pounds (that I didn't have to lose) in about 4 weeks.  My GI doc recommended that I count my calories and drink gluten-free/Dairy free protein shakes twice a day until I got the hang of the diet and found more things I could eat that were more calorie dense. Once I got my energy back and had the energy to cook and grocery shop more often eating an abundance of foods became much easier. I am now 6 months into the diet and I am keeping weight on just fine, and have gained about 5 pounds back. 

Thanks for the reply, I’ll try cutting out the carbs , the only dairy I have is milk in tea . I’ve been on the gluten-free diet for nearly two years now , I do eat a lot of carbs , but this last week I have been ravenous, pretty much how I was before I was diagnosed, my wife couldn’t fill me and combined with the weight loss I think this shouldn’t be happening .

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,988
    • Most Online (within 30 mins)
      10,442

    julu
    Newest Member
    julu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel, Yes, most doctors prefer to prescribe pharmaceuticals than delve into vitamins because they aren't educated about the health impact vitamins and minerals can make in medical school. Thiamine, especially Benfotiamine, has been shown to be protective to the kidneys.  Benfotiamine improves kidney function!  Especially in people on dialysis.   Thiamine and Benfotiamine are safe and nontoxic even in high doses!  PLEASE Read! Prevention of Incipient Diabetic Nephropathy by High-Dose Thiamine and Benfotiamine  https://diabetesjournals.org/diabetes/article-abstract/52/8/2110/13835/ Benfotiamine Protects against Peritoneal and Kidney Damage in Peritoneal Dialysis https://pmc.ncbi.nlm.nih.gov/articles/PMC3083313/ Prevention of incipient diabetic nephropathy by high-dose thiamine and benfotiamine https://pubmed.ncbi.nlm.nih.gov/12882930/ If more than half your plate is carbohydrates, you need more Thiamine!  High carbohydrate diets induce thiamine because as the carbohydrate load us increased, an increased amount of thiamine is needed to process them.  I have been taking high dose thiamine as thiamine hcl and Benfotiamine for over ten years.  I have not had any bad experiences with it.   I no longer have any symptoms that reflect type two diabetes.   Doctors can't profit from prescribing vitamins because they can't be patented.  They profit from pharmaceuticals and medical procedures necessitated by health conditions that could be remedied, or at least improved, with essential vitamins and minerals!   Don't fear thiamine!  Do discuss the benefits with your doctor.  Ask if you can take 300 mg Benfotiamine in his office under medical supervision if you're nervous.  Most people have improved health within a short period of time.  You've already seen improvement with low dose thiamine hcl.  Jump in with both feet!  
    • Known1
      I found credible scientific evidence from The World Heath Organization, pertaining to nutrients in drinking-water. There are several sections within the paper regarding nutrient depleted water (aka RO water)  Below is a small sample from the PDF which is linked further below. The possible adverse consequences of low mineral content water consumption are discussed in the following categories: • Direct effects on the intestinal mucous membrane, metabolism and mineral homeostasis or other body functions. • Little or no intake of calcium and magnesium from low-mineral water. • Low intake of other essential elements and microelements. • Loss of calcium, magnesium and other essential elements in prepared food. • Possible increased dietary intake of toxic metals. I highly recommend downloading the PDF and reviewing it for yourself. https://www.who.int/publications/i/item/9241593989
    • glucel
      Great info, thanks. Luckily I am taking thiamin hcl 100mg at lunch and the 25 mg in morning b complex is made up of hcl and cocarboxlase.  I have read many of your writings about thiamin and understand/believe that the body gets rid of the excess. One thing that a gluten-free diet has done for me is no microscopic blood in urine after a lifetime of it, at least so far, but in other aspects my kidneys not so good. My kidneys have never been completely healthy and as an old guy have only gotten worse. My brother is on dialysis so I am more than concerned about excessive thiamin affect on the kidneys. It would be great to check with a dr about this but most of the time they have no interest in anything but drugs. So yes I would love to load up on b1 but it was actually a big decision for me to add 100 mg at noon time a few months ago. Normally my so called bigger meal, or at least where meat is consumed is at mid day. I eat way too much bread and cereals at night and usually stay away from meat as I try to limit cholesterol, although I do sneak a hard boiled egg in there. Maybe a half a hamburger or something like that could help curb the appetite.
    • cristiana
      Hi @Maureen armey Just one point re: PPIs.  Here in the UK the people I know with Barretts have had to take them long term, or H2 blockers instead, despite the fact they have side effects.   I feel that it is very important that you follow your consultant's advice re: this type of medication but if you do need to take them longterm, see if they can offer any advice on how to mitigate these potential side effects.   I hope you find the information contained via following the link below helpful. Do come back to us if you have any further questions. https://heartburncanceruk.org/blog/should-you-take-ppis-long-term-insights-from-a-gp-and-barretts-patient/ Cristiana
    • Stegosaurus
      For the past 3 years, I’ve bloated from most powders, e.g. gelatin, Bulk Supplements glutamine. I don’t eat processed food at all. I know now I’ve had SIBO for 3 years. I’ve been keto for 12 years, except 3 years ago I started eating more starch and fruit. Appears trehalose, a disaccharide of glucose, is used as a stabilizer in LOTS of food, and there are glowing articles about it being a safe low glycemic index sweetener.  But there’s evidence it adversely impacts the gut biome.   "...realistic trehalose consumption from natural sources could be estimated at < 0.3 g per person per day (USA)."  It’s commonly used in "baked goods, breakfast cereals, rice and pasta, processed vegetables, fruit (dried and juiced), milk products, meat and fish products, sweets, chewing gum, and ice cream...the FDA GRAS report for trehalose considers a potential mean consumption level of 34.43 g day...three epidemic strains of Clostridium difficile have evolved independent mechanisms to better metabolize this nutrient resource."  https://pmc.ncbi.nlm.nih.gov/articles/PMC6546318/&nbsp; "Trehalose binds water, prevents oxidation, and preserves the structure of food during freezing and heating. It also improves the taste while causing slightly milder blood glucose spikes. These properties made trehalose a common food additive in:     Dried and frozen food     Instant food (noodles, rice, soups)     Sugar coatings and fillings     Baked goods     Seafood Most manufacturers label trehalose under “added sugars” or “natural flavors.” People who don’t tolerate mushrooms probably lack trehalase." https://supplements.selfdecode.com/blog/trehalose-health-benefits/#Trehalose_Food_Sources Note that FDA allows food labels to exclude mention of any component that is <0.5%.  It’s called the averaging rule, and the component is not on the label.  A food can have very many components that are each <0.5%.  So reading the label is no assurance that you know what you’re consuming. https://www.allergy-insight.com/trehalose-intolerance/ "...trehalose intolerance is caused by a deficiency of the enzyme trehalase...can be genetic, or caused by severe gastroenteritis and other gut diseases." https://pubmed.ncbi.nlm.nih.gov/18777247/ Characterization of alpha,alpha-trehalase released in the intestinal lumen by the probiotic Saccharomyces boulardii  "...trehalase deficiency is more common than is believed and that oral administration of S. boulardii could be beneficial in patients with digestive symptoms caused by trehalose intolerance."  I ferment fruit juice with Florastor to greatly increase the colony count.  It's easy and delicious.  I drink 1/2 cup with any trehalose source, and it helps.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.