Intolerance for wheat but not celiac?

[mystic]

Hey guys, I recently did a food sensitivity test and was told I show 86% intolerance for Wheat [Ground] but

"Wheat [Ground] is to all flour but does not mean you are intolerant Gluten."

I don't get it, how can I not be gluten intolerant?

[kareng]

1 hour ago, mystic said:

Hey guys, I recently did a food sensitivity test and was told I show 86% intolerance for Wheat [Ground] but

"Wheat [Ground] is to all flour but does not mean you are intolerant Gluten."

I don't get it, how can I not be gluten intolerant?

I don't get it either.  These food sensitivity tests have little to no real science behind them.  Do what you want with the results.

[cyclinglady]

Hi Mystic!  

Are those food intolerance tests accurate?  Not very,  based on research presented here and on allergy sites.  

I recall that you had Psoriatic Arthritis.  Has the gluten free diet helped with that condition?  Have you investigated the AIP Diet?  A small study out of Scripps in San Diego found over 70% of their IBD (Ulcerative Colitis and Crohn’s) patients experienced remission (they did stay on their normal treatments prescribed by their MDs.).    Might be worth pursuing.  

Edited May 21, 2018 by cyclinglady

[mystic]

The gluten-free, Dairy free, low sugar, no processed foods, low meat consumption Diet did not give the results I was expecting. 

The gluten-free diet made my stomach feel different, I lost a lot of weight quickly and had constipation issues.

Thanks for the suggestion on the AIP diet. I want to try out for at least 2 months the results of the test, if no change then I will try the AIP diet [thanks!].

 

[Wheatwacked]

34 minutes ago, mystic said:

The gluten-free diet made my stomach feel different, I lost a lot of weight quickly

That statement, by itself should help you stay on GFD, whether or not you are  labeled Celiac. Some of the secondary effects of your disease process can take several years to reverse. Stay the course. Subclinical malnutrition is the norm, rather than the exception, and few doctors do nutrition. In the face of overwhelming evidence, traditional medicine is reluctantly accepting the reality of NGWS (non gluten wheat sensitivity) as a real phenomenon. Most of the research on our current big diseases are done on a population that eats wheat, barley and rye as a significant part of their diet. Why take Lyrica (check out those side effects) when a gluten free diet will end your foot pain? Why has Congress exempted the wheat industry from all of their GMO regulations and discussion? Google the 200+ side effects that have been cured by a gluten free diet. Four years ago I had to crawl to the bathroom from bed (only 15 feet) because I had to pee so bad (BPH, I was diagnosed in 1972) and my feet hurt so much I could not stand on them after lying down. Now, foot pain is only intermittent numbness, BPH is gone, sleep apnea gone, fibromyalgia pains (that's a life-sucker) under control, depression gone, etc. At first it is hard to be gluten free, people will laugh at you, you will feel like you are missing out on the good life. Wheat is addictive. I was always told that my snoring and sleep apnea and COPD would get better if I quit smoking. I did not get better by quitting so eventually I quit quitting. Then I stopped eating wheat containing (barley and rye are also wheat) foods and I started feeling better. I was eating ice cream, potato chips, meat, full fat foods, family sized Hershy with almonds, fritos; anything to avoid gluten, and smoking a pack a day of Marlboro ( the original cowboy killer). I'll be darned if contrary to prediction I lost 25 pounds, breathing easy, sleeping well, feeling good. Just by giving up gluten. Big Wheat, Pharma and Medicine have been throwing everything under the bus to divert attention, but the facts are once you give up gluten and reverse your malnutrition (an unmentioned and untreated cause of many of our major diseases) then you can effectively treat whatever problems are left. Your life will improve. My long term alcoholism turned out to be, not a crazy personality disorder with multiple levels, but a simple side effect of wheat addiction. It ended (the addiction to alcohol, not the crazy) when I went gluten free. At first I had vivid dreams of boxes of Duncan Donuts. When I stopped drinking, two years before gluten free, my health started to seriously decline and the drugs prescribed were only helping the doctors' boat mechanics. I started drinking again and felt better.  I, at this point believe that the quantity of vodka I had been drinking every day was sterilizing my gut and keeping the bad intestinal flora subdued. I stopped drinking and got worse, I stopped eating gluten and got better. Go figure. Now I can drink socially if I choose but rarely choose to do so. It doesn't make me feel good anymore.

In conclusion, follow your gut, not the food industry.

 

[mystic]

Thanks for the advice and all that info. I don't intend on abandoning the GFD but the weight loss and bad stomach feeling concerns me as I am not overweight and people around me said I "looked sick", they thought something was wrong me healthwise.

So I have to sort this out somehow.

[Wheatwacked]

I have been underweight my entire life. In 1971 during the Vietnam Era when they were taking everyone for the war, I was exempted from the draft with a 4F (we don't want you and never will don't come back) because I was so underweight. I never weighed more than 173 pounds (6 feet, 2 inches) until a few years ago when I popped up to 185 pounds and a 42 inch waist. When my GFD weight loss started I dropped to 160 then came back up to 170 and has stayed there ever since. That was concerning and I did get scared maybe I was wrong. My waist stayed at 42 inches. When I started eating sushi seaweed Nori everyday (one sheet supplies 40% the recommended upper limit) not long ago my belly fat started to disappear and I started to gain muscle mass in my chest. Weight holding at 170 but my belly is down to 39 inches. To quote a song, "It's gonna take time, plenty of time'" I do not exercise. I figure if I have that much extra energy I can always do chores. The government has taken fat and eggs off of the bad list. Meat is your best source for Heme, an important nutrient for red blood cells. We can make it from iron but heme is more bioavailable. For now eggs are good again. Go back to normal eating, continuing strict GFD (most American made Soy Sauce has wheat listed as the first ingredient by the way and Twizzlers are all wheat). Your "Dairy free, low sugar, no processed foods, low meat consumption Diet" obviously is not right for you. GFD is right for you, but now you need to get enough fat, meat, vitamins and fiber to support your nutritional needs. Gluten also artificially increases your appestat by 500 calories a day. Your gut will likely to continue to bother you until healed and it's gonna take time. (there's a mechanism in your brain, perhaps in the hypothalamus, called the appestat. It's believed to monitor your blood for nutrients and regulate appetite) 

[mystic]

I just a reply from the Testing people asking them how I can be intolerant to wheat but not gluten, this is their answer:

This will refer to all wheat, this will not indicate a gluten intolerance this is a wheat intolerance. 

Gluten is only a protein found in wheat, you are intolerant to wheat as a whole not a protein that is found in wheat.

Is that accurate guys?

[cyclinglady]

There is a difference.  You can have a wheat allergy (I assume there is a wheat intolerance or it is an allergy that is simply mild).  A wheat allergy is just like a peanut allergy.  It is IgE  mediated.  Exposures can cause hives, swelling, breathing issues leading  to anaphylaxis.  If you have a true allergy, your doctor will prescribe a EPI pen to keep you from dying swiftly after an exposure.  Your test, I think, was an IgG test and that is controversial and not very accurate. If you think you have an IgE medicated wheat allergy, the. Go see a board certified allergist and get tested (e.g. scratch test).   Celiac disease is the autoimmune response to gluten found in wheat, barley or rye.  Totally different.

If you are trying to figure your current issues out on your own, you better hit the books or just find a good doctor.  

You have not been diagnosed with celiac disease, so the gluten free diet might not help your psoraratic arthritis.   The diet was worth trying.  I sincerely believe avoiding processed foods can only help and not hurt.  People are so individual, that it is hard to say which natural foods would work or not.  You are going to have to continue to experiment.   You can try the AIP diet or take drugs to suppress your immune system or nothing.  It seems like you do not have a lot of choices. ?

What does your research suggest to treat successfully treat psoriatic arthritis based on arthritis forums and leading medical researchers in the field of psoriatic arthritis?

Like celiac disease, I imagine turning off the autoimmune response for psoriatic arthritis can take time once flared.    What ever diet you attempt, keep at it.  It may take a while to see results.  It can be hard to be patient, I know. 

I wish you well!

Edited May 24, 2018 by cyclinglady

[jlcsn]

On 5/21/2018 at 12:18 PM, Wheatwacked said:

...Four years ago I had to crawl to the bathroom from bed (only 15 feet) because I had to pee so bad (BPH, I was diagnosed in 1972) and my feet hurt so much I could not stand on them after lying down. Now, foot....

Thank you for your posting, i have been dealing with Inflamed toes, and BPH for several years now, came across your posting searching and 3 weeks ago started doing the gluten-free diet, some weight off, frequency at night a little less after 3 weeks, expect to have some result in 3 months,

Thank you again. 

[knitty kitty]

This article might interest you....

Vitamin D and benign prostatic hyperplasia -- a review

https://pubmed.ncbi.nlm.nih.gov/23930605/

[jlcsn]

Have done that for 7+ years, no effect what so ever D3;

Not Celiac, but I can feel already the benefits of not eating Gluten.

 

Thank you

[Wheatwacked]

As far as prostate goes, it was the gluten free diet. I did not start vitamin D until five months later. I ended up counting 18 different symptoms that improved with GFD.

At 10,000 iu a day (250 mcg) I started feeling better.  I have continued that dose and found many other vitamins and minerals that were lacking despite my "healthy food choices".  Last month after 6 years my plasma level finally reached 84 ng/ml. The safe range is 30-100 depending on the article, keeping in mind these are often the same medical experts who say that gluten free is a fad and it is all in our heads.

Low vitamin D has been identified as common in numerous autoimmune diseases.

Estimated 1% of the population have Celiac, ten times that are estimated to have Non Celiac Gluten Sensitivity. The solution is the same Gluten Fee Diet.

The Implication of Vitamin D and Autoimmunity: a Comprehensive Review   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6047889/

Quote

 Vitamin D Toxicity Rare in People Who Take Supplements, Mayo Clinic Study Finds   "We found that even in those with high levels of vitamin D over 50 ng/mL, there was not an increased risk of hypercalcemia, or elevated serum calcium, with increasing levels of vitamin D...Only one case over the 10-year study period was identified as true acute vitamin D toxicity; the person's vitamin D level was 364 ng/mL. The individual had been taking 50,000 international units (IU) of vitamin D supplements every day for more than three months, as well as calcium supplements...The evidence is clear that vitamin D toxicity is one of the rarest medical conditions and is typically due to intentional or inadvertent intake of extremely high doses,...   https://newsnetwork.mayoclinic.org/discussion/vitamin-d-toxicity-rare-in-people-who-take-supplements-mayo-clinic-study-finds/

 

[jlcsn]

8 minutes ago, Wheatwacked said:

As far as prostate goes, it was the gluten free diet. I did not start vitamin D until five months later. I ended up counting 18 different symptoms that improved with GFD.

---

Thank you for your posting, i have been working on my Vit-D for many years, done lab tests and my levels are well above normal levels, but never did anything for BPH; now the GFD i came across here 3 weeks ago, that i believe will make the difference for me; But for sure, do not argue about the D, as in north america 80% of people have low levels, that is the average person, unless lives in Arizona and rides horses daily   :)

 

8 minutes ago, Wheatwacked said: