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Biopsy Results


zip2play

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zip2play Apprentice

My biopsy results came back negative with no evidence of celiac damage. I had a GI Dr, friend of my MOM'S, say go gluten free anyway. He said, if she thinks it's celiac, it quite possibly is.

We are taking a trip December 31st through January 7th, I think when we return, I will go gluten free. If my symptoms disappear or get a lot better, then I guess we know.

Is there a good book or quick resource guide for gluten free living?

Monica

My symptoms come and go. I have read that isn't totally uncommon. That is what makes Celiac so difficult to diagnosis. Is that true?


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Carriefaith Enthusiast
My biopsy results came back negative with no evidence of celiac damage. I had a GI Dr, friend of my MOM'S, say go gluten free anyway. He said, if she thinks it's celiac, it quite possibly is.
Have you had the celiac blood test panel done? Sometimes the doctor can miss damage in the small intestine during a biopsy since the damage from gluten can be patchy.

Is there a good book or quick resource guide for gluten free living?
I think that Wheat-Free, Worry-Free: The Art of Happy, Healthy Gluten-Free Living by Danna Korn is a good book.

My symptoms come and go. I have read that isn't totally uncommon. That is what makes Celiac so difficult to diagnosis. Is that true?
Several months before my diagnosis some of my symptoms would come and go, but others were always there. However, closer to my diagnosis, I was sick almost all the time.
floridanative Community Regular

I agree with the idea that going on the gluten-free diet will either confirm Celiac or not, it will just take a while. My biopsy is in Jan. just so I can get through the holidays and a trade show trip without worrying about what I can eat. But since I really only have the anemia, my biopsy could surely come back negative - neither confirming or denying for certain the pressence of Celiac disease. Without going on the diet, there is no way to tell for sure. If I go gluten-free for six months and redo the tTg test is comes back in normal limits, I'll have my answer. I'd rather just get a positive biopsy so I'd know for sure soon as I'm tired of all this medical testing stuff already and I've only been at it for four months. Good luck to you and keep us posted on how the diet goes for you.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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