Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can't stop itching

Daphne do

By Daphne do
in Dermatitis Herpetiformis

 Share

Recommended Posts

Daphne do Collaborator
Daphne do
Posted

I can't stop iching either I can't sleep I'm losing my mind I haven't slept for three days maybe two hours each night if I take Benadryl I get crazy angry and still can't sleep what else can I take a bath a shower none of that helps. I drink lots of water I do have D also it goes from diarrhea to constipation in the same day then back to diarrhea I've been sick for over a year every time I start to feel better some how I get contaminated I don't know what to do I'm do tired and it's causeing me and my boyfriend to fight or more I hate this disease my life was hard enough before now it's to overwhelming

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daphne do Collaborator
Daphne do
Posted
  • Author

I'm sorry I'm so tired the auto correct changed some of my words and I didn't notice till after I submitted it

Daphne do Collaborator
Daphne do
Posted
  • Author

Does any one else get crazy angry when they take Benadryl? I'm sure it's partly the lack of sleep but it would be nice to hear from some one else thank you for your time I appreciate this site it has helped me

kareng Grand Master
kareng
Posted

I broke this off of a really old thread so people don't get confused and answer the people from years ago.

GFinDC Veteran
GFinDC
Posted
(edited)
On 6/28/2018 at 5:54 AM, Daphne do said:

Does any one else get crazy angry when they take Benadryl? I'm sure it's partly the lack of sleep but it would be nice to hear from some one else thank you for your time I appreciate this site it has helped me

Hi daphne,

I don't have a problem with Benahdryl, but there is at least one other anti-histamine that makes me irritable.  I don't remember the name of it right now.

There may be some helpful ideas in the Newbie 101 thread.   You have to watch out for contamination from kissing also.  I have a shared kitchen situation.  I keep most of my food in a separate dorm style refrigerator.  It also helps to stop eating all the processed foods like cookies, bread etc for a few months until things settle down.

 

Edited by GFinDC
susan french Rookie
susan french
Posted

Has your dermatologist prescribed dapsone?  It helps a lot but has the side effect of possible anemia. Also, for me, he prescribed Hydroxizine and then doxepin for bedtime.  Dermatologists can prescribe a potent cream for relief.  I've found that benedryl spray or cream (I use the Walmart itch cream)  It is imperative to be gluten free!!  Good luck.

Daphne do Collaborator
Daphne do
Posted
  • Author

I have not been to a dermatologist I didn't know to do that because the itching is from the gluten right? I do have allergies to some creams and allergy meds so I not sure something I rub on my skin will work I'm just worried it will get worse instead of better . I just wish the Benadryl didn't alter my moods it makes things worse to . Thank you for helping me I do appreciate it

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


apprehensiveengineer Community Regular
apprehensiveengineer
Posted

If you have dermatitis herpetiformis (DH), Benadryl won't help... much. I used to rely heavily on Benadryl pre-gluten-free, but I would suspect its main benefit is that it knocks you out. If you are medicated towards unconsciousness, you can't notice the itch! (Achieved similar effects with alcohol, which I would also not recommend).

If you've not been tested formally for celiac disease or DH, I would recommend that first. The intensity of itch you are describing seems consistent with DH, so you should be tested. If you've already been diagnosed with celiac and suspect the rash is DH, you might consider being "ultra careful" with your GFD.

1. No eating out. No food prepared by anyone but yourself.

2. No oats, not even the gluten-free kind, not even the certified gluten-free kind.

3. Limit dietary iodine, temporarily (ie. minimize seafood, iodized salt, most dairy) until rash/itch subsides.

4. Follow diet similar to Fasano protocol - avoid processed foods (even those labelled gluten-free), emphasize single ingredient foods such as meat, veggies, rice etc.

 

GFinDC Veteran
GFinDC
Posted

Hi daphne,

A dermatologist can test you for DH by taking a small skin biopsy for next to a skin lesion, not on the lesion.  They check that skin sample for IgA antibodies.  If you have DH, you have celiac disease.

As AE said above, the treatment for DH is the gluten-free diet.  It can take months for the DH reaction to stop, and it is important to be very sure you are gluten-free,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.