Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can't stop itching

Daphne do

By Daphne do
in Dermatitis Herpetiformis

 Share

Recommended Posts

Daphne do Collaborator
Daphne do
Posted

I can't stop iching either I can't sleep I'm losing my mind I haven't slept for three days maybe two hours each night if I take Benadryl I get crazy angry and still can't sleep what else can I take a bath a shower none of that helps. I drink lots of water I do have D also it goes from diarrhea to constipation in the same day then back to diarrhea I've been sick for over a year every time I start to feel better some how I get contaminated I don't know what to do I'm do tired and it's causeing me and my boyfriend to fight or more I hate this disease my life was hard enough before now it's to overwhelming

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daphne do Collaborator
Daphne do
Posted
  • Author

I'm sorry I'm so tired the auto correct changed some of my words and I didn't notice till after I submitted it

Daphne do Collaborator
Daphne do
Posted
  • Author

Does any one else get crazy angry when they take Benadryl? I'm sure it's partly the lack of sleep but it would be nice to hear from some one else thank you for your time I appreciate this site it has helped me

kareng Grand Master
kareng
Posted

I broke this off of a really old thread so people don't get confused and answer the people from years ago.

GFinDC Veteran
GFinDC
Posted
(edited)
On 6/28/2018 at 5:54 AM, Daphne do said:

Does any one else get crazy angry when they take Benadryl? I'm sure it's partly the lack of sleep but it would be nice to hear from some one else thank you for your time I appreciate this site it has helped me

Hi daphne,

I don't have a problem with Benahdryl, but there is at least one other anti-histamine that makes me irritable.  I don't remember the name of it right now.

There may be some helpful ideas in the Newbie 101 thread.   You have to watch out for contamination from kissing also.  I have a shared kitchen situation.  I keep most of my food in a separate dorm style refrigerator.  It also helps to stop eating all the processed foods like cookies, bread etc for a few months until things settle down.

 

Edited by GFinDC
susan french Rookie
susan french
Posted

Has your dermatologist prescribed dapsone?  It helps a lot but has the side effect of possible anemia. Also, for me, he prescribed Hydroxizine and then doxepin for bedtime.  Dermatologists can prescribe a potent cream for relief.  I've found that benedryl spray or cream (I use the Walmart itch cream)  It is imperative to be gluten free!!  Good luck.

Daphne do Collaborator
Daphne do
Posted
  • Author

I have not been to a dermatologist I didn't know to do that because the itching is from the gluten right? I do have allergies to some creams and allergy meds so I not sure something I rub on my skin will work I'm just worried it will get worse instead of better . I just wish the Benadryl didn't alter my moods it makes things worse to . Thank you for helping me I do appreciate it

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


apprehensiveengineer Community Regular
apprehensiveengineer
Posted

If you have dermatitis herpetiformis (DH), Benadryl won't help... much. I used to rely heavily on Benadryl pre-gluten-free, but I would suspect its main benefit is that it knocks you out. If you are medicated towards unconsciousness, you can't notice the itch! (Achieved similar effects with alcohol, which I would also not recommend).

If you've not been tested formally for celiac disease or DH, I would recommend that first. The intensity of itch you are describing seems consistent with DH, so you should be tested. If you've already been diagnosed with celiac and suspect the rash is DH, you might consider being "ultra careful" with your GFD.

1. No eating out. No food prepared by anyone but yourself.

2. No oats, not even the gluten-free kind, not even the certified gluten-free kind.

3. Limit dietary iodine, temporarily (ie. minimize seafood, iodized salt, most dairy) until rash/itch subsides.

4. Follow diet similar to Fasano protocol - avoid processed foods (even those labelled gluten-free), emphasize single ingredient foods such as meat, veggies, rice etc.

 

GFinDC Veteran
GFinDC
Posted

Hi daphne,

A dermatologist can test you for DH by taking a small skin biopsy for next to a skin lesion, not on the lesion.  They check that skin sample for IgA antibodies.  If you have DH, you have celiac disease.

As AE said above, the treatment for DH is the gluten-free diet.  It can take months for the DH reaction to stop, and it is important to be very sure you are gluten-free,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.