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Biopsy Came Back Negative

Charmain Ross
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Charmain Ross Newbie
Charmain Ross
Posted

Tests came back negative for Celiac.  However, I have been gluten free since the scope, and do feel alot better.  Why do I feel I need a "diagnoses"?  I know the diet has helped.......I guess I just want official answers to why I have an inflamed stomach and so many gastric issues. ?

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Palvyre Apprentice
Palvyre
Posted

Did you have a positive blood test?

cyclinglady Grand Master
cyclinglady
Posted

I would add during the endoscopy, were other biopsies from the stomach (not small intestine) submitted to the pathologist?  I have celiac disease and autoimmune gastritis.  H.Pylori was ruled out.  

Diagnosis?  My hubby went gluten-free some 17 years ago (he received some poor medical advice and should have been tested for celiac disease).  But he is well now.  The diet did the trick.  So, it is not necessary to have an official diagnosis because the bottom line is feeling better.  

Consider getting a second opinion from another GI.  Pull all your records if you do decide on a consultation.  Might be worth $100 for that opinion.  

  • 2 weeks later...
Harpsichord Rookie
Harpsichord
Posted

It's possible to be gluten intolerant or have an allergy without having Celiac disease. If you feel better not eating gluten, don't eat it.

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    • Julie 911
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      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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